Appalling Remarks People Say to Those Who Are Grieving

People make appalling comments to us bereft. At a time when we can barely manage to drag ourselves through our days, we have to find the energy and graciousness to make allowances for people’s tactlessness, ignorance, and downright meanness. Most people are unaware of what it feels like to lose a significant part of their life, such as a spouse or a child, and they seem to be terrified of even thinking about that unthinkable happenstance, so they distance themselves from our pain with unfeeling words. They want to believe that the universe makes sense; that God is in his heaven and all is right with the world (except for that one little slip when he let your loved one die); that everything happens for the best. It is almost impossible for people to comprehend that bad things happen for no reason at all, so of course, the deceased had to have done something to cause his or her death.

Although people were generally kind to me after the death of my 63-year-old life mate/soul mate, I still got my share of inexcusable remarks such as:

Blank stare, then, “My second cousin’s great aunt just died.” (How does that in any way relate to my having lost the man with whom I shared the past thirty-three years of my life?)

“I didn’t know he smoked.” (He didn’t. And what does smoking have to do with kidney cancer?)

“How did allow himself to get so sick?” (He took excellent care of himself, better than anyone else I ever met.)

“I know how you feel. My cat just died.” (There simply is no response to this.)

“You’ll find someone else.” (What kind of comfort is that supposed to be, especially a few days after the death of the one man who ever truly loved me and had time for me?)

“It’s God’s will.” (You don’t want to know what I think of a God who allows a good man to suffer for years and then die a horrible death just to satisfy His whims.)

“God never gives you more than you can handle.” (Wanna bet?)

“Everything happens for the best.” (Who’s best?)

As grief continues, even those who started out kind become impatient. They say things such as:

“You have to get on with your life.” (This is my life).

“He wouldn’t want you to grieve.” (Well, then, he shouldn’t have died!)

“Get over it.” (I’ll get over it when he gets over being dead.)

But the worst thing anyone ever said was:

“God will never take something away from you without replacing it with something better.” It’s bad enough to say (as so many people did) “God never closes a door without opening a window.” At least this door/window analogy acknowledges that the replacement might not be as good as what was lost. But for someone to say that He will replace what was taken with something better is totally reprehensible. How could He possible replace my life mate/soul mate/business partner/best friend/comforter/supporter/companion with anyone or anything that would be better than what I had? If you lose a job, perhaps (in a good market) you can find a better one. If you lose your wedding ring, perhaps you can buy a better one. But a person? How can one unique individual be replaced with another?

Besides, I know for a fact that the aphorism is wrong. It’s been twenty-one months since my mate was taken from me, and though many things, both good and bad, have happened to me in these months, nothing comes even close to being as good as what I once had.

Click here if you want to know: What to Say to Someone Who is Grieving

The Conundrum of Grief

Tolstoy wrote, “Without knowing what I am and why I am here, life is impossible.” This is especially true of those of us who have lost our soul mates. What we once were (or thought we were) has died along with our loved ones. Now we’re wandering the desert of aloneness and wondering why we are still here. Since we don’t know, life seems impossible.

Recently, there was a news article about an elderly couple who died within hours of each other. This is the sort of romantic story that we all believe in — that when one of a pair of soul mates dies, the other will die also. Unfortunately, that does not happen very often, which is why it is noteworthy when it occurs. Life is at once very fragile and very tenacious. Having watched my life mate/soul mate’s struggles, I know how difficult it is to die. People can suffer for years, fading slowly and painfully, hoping for death to release them from their agony, but still endure.

New grief feels as if it will kill you, but it seldom does. Such grief is so very strong that it takes your very breath away. It makes you feel as if you are having a heart attack and some sort of terrible gastrointestinal disease at the same time. It can cause Post Traumatic Stress Syndrome, make wounds difficult to heal, retard recovery from illness. The death rate for those whose life mate’s died increases by 25% for all causes of death — disease, accident, trauma. Despite this, almost all of us, to our shock, find that we have survived the trauma of such a heinous loss.

Here is the conundrum of grief: if they got the better end of the deal, if they truly are in a better place, then why are we still here? And if life is worth living, how can we not care that it is being denied our loved ones?

I always thought I’d die when he did, and I wonder if that’s where some of my deep sorrow comes from — an unconscious feeling of not having loved enough, been connected enough to die at the same time as he did. But the truth is, I wanted to live, though I don’t know why.

About a year before he died, I hugged him and somehow so aggravated his pain that he pushed me away. A voice deep inside me, beneath conscious thought, proclaimed, “He might be dying, but I have to live.” I have no idea what that voice was. I’d only heard it once before, and that was when I met him. Thirty-six years ago, I walked into a health food store to buy whole-wheat pastry flour, and after talking to the owner for two minutes, that voice wailed, “But I don’t even like men with blond hair and brown eyes.” It wasn’t love at first sight, our meeting, more of a primal recognition. And that same part of me recognized that our shared life was over. After that day, our lives started to diverge — he to death, me to continued life.

I don’t know why I was so determined to live then, and don’t know why, almost twenty-two months after his death, I am still determined to live. Curiosity, perhaps. Curiosity to see what I can make of my life alone, to see what I am, to see who I become. Curiosity to see how I will make life seem possible once more.

The Five Major Challenges We Face During the Second Year of Grief

The challenges we face during the first year after the death of a life mate/soul mate (or any other significant person), are too great to enumerate. It’s all we can do to cope with the seemingly endless chores of laying our beloved to rest while dealing with the emotional shock, the physical pain, the psychological affront. Sometimes the first anniversary of his death is one of peace when we realize that we managed to survive the worst year of our life, but then we wake up to the second year and find a whole other set of challenges to meet.

These seem to be the five major challenges to face during the second year of grief:

1. Trying to understand where he went. We can understand that he is out of our lives (even though we don’t like it), but we cannot understand his total goneness from this earth. No matter what we do, how we feel, or what we believe, it doesn’t change the fact that he is dead. And there is nothing we can do about it.

2. Living without him — we can do it, we’ve proved that during the past months, but we still have a problem figuring out why we would want to.

3. Dealing with continued grief bursts. Though we do okay most of the time, and though we fulfill our daily responsibilities quite capably, upsurges of grief still hit us, sometimes right on schedule (such as my sadder Saturdays), and sometimes for no reason at all. Sometimes they last for days (such as the upsurge of grief most of us felt this New Year’s Eve) and sometimes they last for mere minutes. But always, just when we think we can handle it, grief returns and we feel as if he just died.

4. Finding something to look forward to rather than simply existing. The second years seems to be a limbo, a time of waiting though we don’t seem to be waiting for anything. We’re just . . . waiting.

5. Handling the yearning. So many people who try to explain grief get it wrong. It’s not about going through five or seven or ten stages of grief. It’s about yearning for one more smile, one more word, one more hug from the person who was everything to us. The first year of yearning was hard, but somehow many of us had the strange idea that this was some sort of test and that after we passed the test, he’d pop back into our lives and we’d go on as before. Well, now we know this is no test. It’s the real thing. And there is nothing protecting us from that great clawing yearning.

Making a list is easy. Meeting the challenges of the second year of grief is hard, but maybe we succeed simply by living, by dealing with each day as it comes.

***

Pat Bertram is the author of Grief: The Inside Story – A Guide to Surviving the Loss of a Loved One. “Grief: The Inside Story is perfect and that is not hyperbole! It is exactly what folk who are grieving need to read.” –Leesa Healy, RN, GDAS GDAT, Emotional/Mental Health Therapist & Educator.

A New Pattern of Grief

I’ve lived ninety-three Saturdays since the death of my life mate/soul mate. Of course, I’ve lived ninety-three of each of the other days, too, but Saturday is the day I cross the Rubicon. (Or do I mean it’s the day I meet my Waterloo?) Either way, it continues to be my sadder day, the day he died, the day I always have an upswing of grief.

People think that by counting these sadder days I am steeping myself in grief, when the truth is, the sadness comes even before I know what day it is. Something deep inside of me is counting the weeks of this new life of mine. I’m sure there will come a time when first one Saturday passes without an extra burst of melancholy, and then another, and eventually my internal datekeeper will forget the day ever had a special meaning.

But not yet.

I truly thought I’d be done with grief by now. I’ve had several periods of relative stasis where I felt as if I’d moved beyond the sorrow, but so far, my grief has always returned, and it will probably continue to return for many months to come. It seems as if this process takes three to five years. Most people I’ve talked to who lost a mate say it took them four years to find the joy of living again. My twenty-one months, in comparison, falls way short of that.

Lately, a new pattern has been emerging. After a grief burst, there is a backwash of serenity, an acceptance of life as it now is, a determination to deal with my remaining years as best as I can. I even start thinking about the future, trying to imagine things I might try or places I might go. My mind drifts and I wonder how he will like those things or places. Then I realize . . . again . . . that he is dead, and grief washes over me.

I feel like a not very bright child who keeps running into a wall because she can’t quite understand her inability to pass through to the other side. For me, his total goneness from this life is my wall. I don’t understand death, don’t think our brains are wired to understand it, yet I keep running into his goneness as if somehow I think the solidity of it will dissolve under my attack. Not very bright of me, is it?

I don’t live in the past. I remember our shared life, of course, but mingled with the good memories are too many recollections of his suffering, which makes the past an unpleasant place to dwell. Or to dwell on. Nor can I bear to think of a future where he has no place, and so I live in the present. But I make note of my sadder Saturdays to prove to myself that yes, I can do this. I can live in a future without him. Ninety-three weeks ago, these Saturdays were all in the future and now they are all in the past. I lived them, and I’ll continue to live and count my Saturdays.

My main problem is that even though I know I can do this — living without him — I still have a problem figuring out why I would want to. But the reason will come. It has to.

Grief: Looking at the World Through a Camera Lens

My publisher suggested adding photos to my soon-to-be-published book about grief, and I jumped at the chance. I’d recently read David Ebright’s YA novel Reckless Endeavor, and was impressed by how much veracity just a couple of photos gave his story, so I was glad of the opportunity to do the same for my book. The only problem is, I have almost no photos of me and my life mate. We simply did not take photos — not of the places we lived, and not of each other. It’s not that we weren’t visually inclined, it’s that we lived in the moment. If you take a photo of the moment, the shoot becomes the moment and you lose the moment itself.

A couple of years before he died, I was gifted with a digital camera, and I took hundreds of photos of trees, animal tracksa cattle drive, some yaks in a nearby field, wildflowers (well, weeds) along the lane where I walked. It helped me get through what I thought were the worst years of my life, the years of his dying. Oddly, during all that time, I only took one photo of him, and that was by accident. We always wanted to see the north rim of the Black Canyon of the Gunnison, but since the road leading to the canyon was gravel, it was too hard on our old cars. We promised each other that if we ever had the use of a rental car, we would take the trip. That August, I rented a car so I could visit my brother, and when I returned, I suggested we finally go see the north rim of the canyon. He didn’t want to make the trip since he was so sick, but at the last moment, he agreed to come with me. It’s a good memory. Just him and me and the ground that fell away just beyond our feet. I had my camera, and since I knew I’d never be back, I snapped a few photos, and he ended up being in one of those pictures. It still makes me cry, that photo. He’s standing with his back to me, staring at  . . . eternity, perhaps. Did he know he had just a few more months to live? I sure didn’t, or perhaps I was simply refusing to face the truth.

The year after he died (which actually was the worst year of my life), I took thousands of photos. The world had turned black and white, and it was only through the lens of a camera that I could see color and life. I roamed the neighborhood and the nearby desert, looking for visual treasures.

And then suddenly, a few months ago, I stopped carrying my camera around. Apparently, despite my continued sadness, I’m back in the moment, living life at full strength rather than diluted through the lens of the camera. I didn’t even realize how far I’d come until I started hunting photos for my book and realized I’d stopped taking pictures.

(I did manage to scrounge a few photos for the book, though not as many as my publisher wanted. And we’ll be using the only photo of the two of us for the back cover even if it is fifteen years old.)

Writing a Book I Didn’t Know I Was Writing

In Style: Writing as the Discovery of Outlook, Richard M Eastman says: “You don’t begin to write with a complete message or experience already imagined, which is then to be wrapped in language as a means of sending it to your readers. Writing isn’t so much communication as creation. In a real sense, you don’t have an outlook on anything without first having written on it. This outlook comes into being through the dozens of tests, choices, and unexpected chances which turn up as you write on some engaging topic; and most writers agree that the final creation isn’t anything you could have precisely anticipated when you first set pen to paper.”

Eastman’s discovery of outlook holds true for my fiction.  I know the story when I begin, I know the ending, and I know a few important scenes, which should mean that I know the whole story, but I don’t. I am not the same, my outlook is not the same, when I finish writing the story as when I began, so the story is not exactly as I intended. The creation process itself creates the change in outlook. Writing is all about the choices we make, and continue to make, all through the creating, editing, proofing. Sometimes I find that I’ve written a book I didn’t know I was writing. A Spark of Heavenly Fire was supposed to be the story of women who could barely cope during times of prosperity when everyone else was doing just fine, but they came alive and dazzled during dark times when everyone else could barely cope. That story is still there in A Spark of Heavenly Fire, but the overriding story is the story of love in all its guises: self-less love, self-love, friendship, romantic love, parental love, obsession.  This theme of love came about through the various elemental choices I made during the course of the book, and it makes novel strong, much stronger than it would have been if it remained simply the story of women who come alive in times of hardship.

And Eastman’s discovery of outlook especially holds true for my non-fiction. I wrote a book about grief, a book I didn’t know I was writing. After the death of my life mate/soul mate twenty-one months ago, I found solace in writing about his death and my grief, in blogging about it, in writing letters to him. And now, some of those writings have coalesced into a book that people have called “exquisite,” “profound,” “raw and real.” I wrote to help me come to terms with the soulquake I experienced after he died and with my continued grief. But what the book ends up being is a great love story, the story of a love that transcends time and physical bonds. He might be dead, my love for him is still strong.

I know what you’re going to ask, but no, the book isn’t published yet, but it should be released in March 2012. I’m putting the finishing touches on the book now, adding the few photos I have to further illustrate our life, and then it heads back to my publisher so they can add a cover and get it published.

One unintended benefit of getting the book published is that afterward, this blog will not be quite so schizophrenic. Part of the time I write about writing, the rest of the time I write about grief. The book will pull both parts of this blog together, and it will become a cohesive whole. I wonder if the book will do the same for me, help pull me together somehow, bridging two very different parts of my life — the part where I once shared a life,  and the part where I’m left alone to pick up the pieces of that shattered life.

Life’s Little Bonsai

The delightful Juliet Waldron, Crone Henge blogger and fellow Second Wind author, left a comment on my blog yesterday, saying we are all life’s little bonsai, and this image has stuck in my head because it seems so true. Life and fate do their best to form us into whatever torturous configurations please them, and we’re left to do the best we can with whatever shape we’re given.

It seems fitting then, that I planted a Japanese black pine tree yesterday as a symbol of continuing my life despite the traumas and dramas thrown at me the past few years. I doubt I will torture the poor thing into a standard bonsai shape, though I suppose unrestrained growth could make it weaker, and that would be just as torturous for the poor thing as purposeful mutilation. (I don’t know why I worry so much about torturing the tree. Nature does the same thing to wild trees, as you can see from this photo I took at the Black Canyon of the Gunnison. And anyway, I just planted the seeds yesterday, so I am a long way from having to make a decision about caring for the pine.)

I’ve been checking the final edits for my grief book, which will be published in another two or three months, and I notice how often I acknowledge the pain of having lost my life mate/soul mate and then state my determination not to let life and fate destroy the possibility of any future happiness. Sometimes, now, for just a second, I can stand outside myself and wonder how the death of one man could have put me in such a state for so long. I mean, life does torture us with all sorts of traumas, it kills with impunity, and we all will face the same fate in the end. So why should this particular loss mean so much? Why should it hurt so much? Despite all these months of pain, I’m glad I grieved for him and didn’t just go on with my life as if nothing earthshaking and soulquaking had happened. His life—and death—shouldn’t pass lightly.

I wonder what he will think of the grief book. It’s so much of a love story, this story of ours, and we were both private people. (Some called us secretive, but we weren’t. We just kept ourselves to ourselves.) And soon the whole world (well, a hundred people anyway) will know the truth of our lives and will see how we dealt with being life’s little bonsai.

Sometimes I wonder if I’m being appallingly foolish for putting myself out there like that, and other times I figure it’s just another of the twists and turns that are shaping me.

Starting From Scratch

On Saturday, I waited for the old year to play itself out, on Sunday, I started the new year with a feeling of dread, and today . . . well, today I got on with my life. Every upsurge of grief seems to end with a new level of acceptance, a renewed determination to live. One of the factors one has to deal with during the second year of grief is realizing for the hundredth time that this new state of being without our loved ones is permanent, that there is no redo. You start from here, from scratch.

Scratch is a starting line for a race scratched in the dirt, and starting from scratch means you start at the beginning with no advantages, even if you’re the weaker contender. That’s exactly how this feels — a scratch beginning, no advantages. We bereft see other couples, some who have been together for decades longer than we were granted, and yet here, at our new beginning, we start alone, uncoupled. I try to see this as being given a chance for freedom, but freedom connotes not just freedom from something, but freedom for something. I am free of my worries for my dead life mate/soul mate (though oddly, sometimes I still worry. Is he warm, comfortable, happy?) but I have not yet discovered what I am free for. That will come, perhaps, with living.

Today, as a symbol of starting from scratch, I planted my Bonsai. Well, I planted the black pine seeds. Bonsai means potted tree, and a pot of dirt and a few seeds do not equal a tree. At least, not yet. I’ll just have to wait to see what happens. Who knows, in ten, twenty, fifty years, I might have my own little potted tree. That’s assuming, of course, that if the seeds sprout and if they grow, I’ll be able to snip off any of the precious growth. I mean, how would you like it if someone decided to make a potted plant of you, and snipped off a few fingers or even a limb just because they found it pleasing? Okay, so maybe I don’t quite have the hang of positive thinking, but I did plant the seeds, so that counts for something!

My grief book is also in the works. I got my manuscript back from my publisher today with the final edits. One editor had to give up on it — couldn’t see the words through her tears. The editor who finished the work said, You’ve written an exquisite book.  It’s wrenching to read, and at the same time full of profound truths.   I can see many of the sayings from the book being used as proverbs by grief counselors, such as “time is the currency of love.” You have many, many profound insights.

A nice way to start from scratch — with a new book and wonderful compliments. My grief book probably won’t be available for a couple of months, and that’s fine. I need time to get used to the idea. It’s a hard thing to do, putting oneself out there for anyone to gawk at. People are mostly kind, especially those who will find comfort knowing someone else feels what they did, but I worry about the first time I get a nasty review. It’s one thing to get a terrible review when it’s a story you made up. It’s something completely different when it’s your life.  What if someone tells me to just stop whining and get over it? Maybe I’m gathering disadvantages before I ever cross the starting line, so I won’t think about that.

There might not be a redo button in life, but there is “do,” and putting the book out there is doing something. And so is planting a tree. This might not be an auspicious beginning, but you can’t expect more when you’re starting from scratch.

After the Waiting Comes the Dread

So, no more 2011. I stayed awake until the year was officially over . . .  waiting . . .  but I felt no different when the clock hit 12:01 a.m. than I did at 11:59 p.m. It was the passing of a moment, that’s all. But this morning, I woke with a feeling of dread. I haven’t felt such a roiling since the months immediately following the death of my life mate/soul mate. I feel as if I’ve lost something precious that I can never get back, as if the world has changed in some unidentifiable way. I don’t know what that something is, though. It’s not the loss of 2011 — those are just numbers. It’s not the loss of my mate — he already died and cannot die again.

Perhaps it’s the past that I’ve lost? All that’s left for me now is today, and the rest of my today’s, however many there will be. (And considering the age my mother was when she died and the age my father is today, I could have a LOT of days.)

Perhaps it’s that irrational hope of reunion that I’ve lost? For a long time, I had the feeling that if I am strong, if I pass the test of living without him, if I face life with hope, then I will be able to go back home to our shared life. That feeling was very strong at the beginning, and I was careful to deal with all the challenges that grief brought me. But he never came back, never called, and of course, he never will, not in this life anyway (and this life is the life I am living).

Perhaps it’s the sense of togetherness that I’ve lost? During the months since his death, I’ve often felt as if this were still our life — his and mine — with the tasks of living now solely my responsibilty.  But the truth is, this is my life, and my life alone. He’s not here to help, to listen, to care. (I talk to him, especially when I am out in the desert, but so far he’s keeping silent.)

Despite all my losses, I hope I will be able to face the coming years and the coming changes in my life with courage and hope and generosity of spirit. I am in a transitional stage, and someday — perhaps before I’m ready — I’ll have to figure out where to live, what to do, how to grow old alone.

But for now, today, all I feel is dread.

Waiting for the End of the Year

I’ve survived, celebrated, or ignored many New Year’s Eves in my life. Mostly ignored. A new year merely meant starting over with a clean unmarked calendar and remembering to use a new number when writing the date. For the rest, it didn’t matter. I dragged my old self into the new year, along with all my old problems and frustrations, griefs and hopes, so that there was nothing intrinsically different from one year to the next.

Last New Year’s Eve, the end of the worst year of my life, I toasted the upcoming new year. That was the first time in my life I ever ushered in a new year with any sort of ceremony, but I thought it was important to put on a good show for myself. I needed the symbolism of looking forward to the future, building hopes and creating dreams, finding reasons to live when I could barely find a reason to get up each day.

And now here I am, three hundred and sixty-five days later, waiting for this year to end. I’m not celebrating the end of this year or toasting the new one. I’m simply waiting.

I mentioned in a couple of previous posts this week how grief snuck up on me again. This year ends the first full calendar year since the death of my life mate/soul mate. I can no longer say, “He died last year.” Our shared life is now more remote than ever. And so I’ve been grieving the end of this year. And the end is almost upon me.

I have no sense of the future tonight. I only feel, deep in my soul, that this is the end of something. I’ll be staying up until midnight, holding on to this year as long as possible. And then? I don’t know. The end of something, if only a year, should presage the beginning of something else, shouldn’t it? But I have no plans. No plans to make plans. No plans to plan to make plans. I’m not being negative, I simply have no sense of the future, of what that future might bring.

Right now, tonight, I only feel that this year is ending, and I need to see this year to its very end.