Still Confounded by Grief

For two years, my reaction to the death of my life mate/soul mate has bewildered me. I knew he was dying and I’d spent over a decade preparing myself for that eventuality. I thought I’d accepted the inevitable, but now I see I was merely resigned (and perhaps exhausted). Still, I am independent-minded, always have been. I know how to do things on my own, know how to entertain myself, know how to take care of myself. I’ve never been afraid of being alone, never been one to hide behind pretty lies or protective fantasies. And yet his death devastated me as much as it confounded me. In fact, after almost two years (two years minus two days, to be exact; 729 days) I still feel lost, still feel broken.

Not all deaths affect people the same. My mother died three years before my mate, and my brother died a year before that. My grief for them was what I used to consider “normal.” I missed them and felt bad that they were gone, but my life went on without any major upheavals. But when my mate died, it was a cataclysm, affecting every part of my life. And the strong connection we always had, a cosmic-twin sort of connection, was broken.

The day before my mother’s funeral, I broke my ankle, so I spent her viewing at the emergency room and I spent her funeral at the bone specialist. It turns out that what I had was a very bad sprain, so bad that when the ligaments tore away, they cracked the bone.

I realize now this same sort of thing happened when my mate died. Whatever connection we had was so strong that when he was torn away from me and our life, it fractured me. This fracture had nothing to do with my being weak or too dependent on him or unwilling to face the truth or any of the other snide rationalities people have made about my sorrow. However deep and prolonged, my grief for him is normal and understandable. It takes a long time for a broken bone to heal and regain its former strength. How much longer must it take when one’s psyche has been broken.

And so, I still deal with the fracture his death caused in me, and I still deal with the bewilderment of his death. Perhaps when he died, he took a chunk of me with him, the same way bone still adheres to torn ligaments, and so part of me would be wherever he is, if he is. His death felt like an amputation, and I can no longer feel that part of me where we were attached. Some people still feel connected to those who are gone, but I never do. I merely feel his goneness, his absence, which seems as strong as his presence once did. And I still feel fractured. Still feel lost. Perhaps to a certain extent I will always feel this way, because the cause of this loss, his being dead, will always be a part of me. And that is one truth I wish I didn’t have to face.

Anniversaries of Grief

I don’t know why certain anniversaries loom so large in our lives, but for whatever reason, the anniversaries of grief are immense. At the beginning of my grief over the death of my life mate/soul mate, a minister friend told me that always on the anniversary, even if I’m not consciously aware of the date, I will feel an upsurge of grief. This is only my second anniversary, with perhaps dozens still to come, but I can already see the truth of his words. Grief comes from somewhere deep within, somewhere deeper than thought, somewhere deeper than volition. And it keeps track of time.

People who have not experienced a grievous loss often think that grief is a choice. Sometimes, especially when young children are involved, the remaining parent can put off grief to focus on the childrens’ needs, but still, grief will surface at the anniversary. Later in life, this grief will surface again, perhaps when the last child leaves home, or when a beloved pet dies. I know a woman who went from taking care of a dying husband to taking care of her aged mother. She didn’t grieve after the death of her husband because of this new focus, but the death of her mother about destroyed her. For most of us, though, grief cannot be denied. We embrace it or it embraces us, and we reap the whirlwind.

This anniversary phenomena does mystify me, though. I’ve been experiencing a devastating grief upsurge, and yet nothing significant happens on the anniversary to count for all the sorrow. In fact, if last year is anything to go by, the day itself will be peaceful, bringing with it a quiet gladness that he was in my life. But the anniversary is not the end of anything. In fact, it is the beginning of something even worse — the beginning of another year without him. Another year where he is dead. Another year of trying to build a future on the ashes of our shared past.

The worst thing, of course, is that I’ve had two years of living in a world where he does not exist. The sheer goneness of him builds rather than dissipates. He is more gone now than he was two years ago, and next year he will be even more gone. Apparently, one can get used to anything, so eventually I’ll simply get used to the feeling of emptiness he left in the world, perhaps even learn to look beyond the blank space on Earth he once inhabited.

I hope, of course, I will be able to find a new life. Or do I mean a new focus? Because, of course, this is my life and always has been. It was my life before I met him, it was my life while we were together, and it is still my life, as alien as it feels. And as much as I hate that he is dead, as much as I fight the idea that I am still alive, the truth is that he is, and that I am.

Counting Down to the Second Anniversary of Grief

I’ve been on a grief hiatus for a few months — no major upsurges of grief — but yesterday, for no apparent reason, I started crying, and I’ve been crying on and off ever since. I’ve been trying not to think of the upcoming two-year anniversary of my life mate/soul mate’s death, trying to look ahead to the future, trying to find something to be passionate about (or at least something to hang my life on). Despite the exhaustion of attempting to put a good face on the seemingly bleak future, I thought I’d been doing well.

And then came the tears.

It still surprises me that the body remembers even when the conscious mind doesn’t. I’d forgotten that yesterday was the two-year anniversary of the last time we talked, the last time we were together in our home, the last time we touched. But something deep inside, something beneath thought, remembered. And grieved.

Two years ago yesterday, the hospice nurse expressed concern for us. I hadn’t slept in I don’t how many days, and neither had he. Some people, as they near death, suffer from what is called terminal restlessness. In his case, the rapidly growing tumors, his impossibly fast heart rate, the morphine, and various other factors made it impossible for him to be still. He wanted/needed to be on his feet, moving, always moving. And since he was too weak to be left alone, I would pace with him.

That last morning at home, the nurse suggested that he go to the hospice care center for a five-day respite, and he and I agreed. He knew I needed sleep (though ironically, I got very little sleep those days) and I thought they would adjust his dosages to give him the most alertness and the least pain. But they never tried. They dosed him with tranquilizers to keep him in bed, and he never had another moment of consciousness.

Those days were exactly two years ago. And I remember them as clearly as if they were happening now. I watched him die. I was there at the end. As agonizing as that was, I know there are worse things. I might not have been there when he took his last breath. I might not have witnessed the very moment he left my life. I might not have been able to say good-bye. Unlike many bereft, I don’t have to deal with those regrets.

For a long time I regretted taking him to the hospice care center — I felt as if I’d deprived him of one more day at home, one more day of lucidity, but in the end, I suppose there was no other choice. He’d stopped being able to swallow, the morphine made him disoriented, and the tranquilizers they prescribed to stop the terminal restlessness made him delusional. I’m glad he doesn’t have to deal with his body any more, but oh, I so wish I could see him once more, or talk to him on the phone, or go back to his store where we spent so much time when we were young and new.

I hope death feels better from the other side than it does from this side, because the only thing that brings me peace is the belief that he is no longer suffering. It’s strange to think that the very moment his suffering ended, mine began. I never expected to grieve. He’d been sick for so very long that his death came as a relief, but when the truth hit me, it hit with the force of a cyclone. And two years later, I am still whirling from the pain.

How has your background influenced your writing?

I always thought I’d be a writer, so when I was twenty-five, I quit a job to write a book about a love that transcended time and physical bonds, told with sensitivity and great wisdom. Unfortunately, I discovered I had no talent for writing and no wisdom, so I gave up writing.

After I discovered I didn’t know how to write, I did temporary work for several years to gain experience of life. Or at least life as it pertains to work. I worked at hundreds of different companies doing everything from filing to billing to bookkeeping to operating a switchboard to selling cars to being a legal secretary. When I wasn’t working, which was frequently, I read. All those thousands of books seeped into my subconscious, and gave me a feel for storytelling, and so when I took up writing again, I had more of an idea of how to tell a story. I just had to learn the specifics, such as show don’t tell, which I did.

Two years ago, my life mate/soul mate died, and the only way I could handle my overwhelming grief was to pour it out onto pages of a journal, letters to him, and blog posts. When I discovered how much those blog posts meant to people who had also suffered grievous losses, I compiled my writings into a book about my first year of grief called Grief: The Great Yearning, which has recently been published by Second Wind Publishing. And so, quite by accident, I ended up writing the story of a love that transcended time and physical bonds, told with sensitivity and great wisdom. I just never knew that the story I’d always wanted to write would be mine.

Here are some ways their backgrounds influence other authors. The comments are taken from interviews posted at Pat Bertram Introduces . . .

From an interview with Sandra Shwayder Sanchez, Author of “The Nun”

I was a child people called “an old soul” . . . an aunt said I seemed to look right through people and I do remember having insights about what was going on inside the heads of adults and often felt very sorry for them. My mother used to discuss Freudian dream interpretation with me and that fascinated me as well as the mythologies and fairy tales I enjoyed reading. So it was I think inevitable that I would write books in which the world of our dreams and the world of consensual reality interface and merge with almost imperceptible boundaries.

From an interview with Dale Cozort, Author of “Exchange

I grew up in a fair-sized city, but I spent a lot of time with relatives in the country, so I probably write rural life a little more authentically than someone without that experience. I also have a computer background, so there is always a little bit of the techie in my stories. I have to dial that back so it doesn’t get in the way of the story.

From an interview with Sheila Deeth, Author of “Flower Child”

I call myself a mongrel Christian mathematician. I think my mixed-up background helps me (or forces me to) see things from a slightly different perspective. Being an English American does the same thing — it makes me more aware of how many of my assumptions are cultural, so it lets me explore characters who might make different assumptions.

So, how has your background infuenced your writing?

(If you’d like me to interview you, please check out my author questionnaire http://patbertram.wordpress.com/author-questionnaire/ and follow the instruction.)

The Top Ten Reasons We Need a Good Laugh by Lazarus Barnhill

I needed a good laugh today, and while this post by fellow Second Wind Author Lazarus Barnhill might not have given me the laugh I needed, at least he explained why I needed it. And he made me smile, so that’s a step in the right direction. I hope you enjoy Lazarus Barnhill’s article as much as I did.

The Top Ten Reasons We Need a Good Laugh by Lazarus Barnhill

A couple weeks ago I tried an experiment. For a solid week I turned off my computer at 11:30 and turned on the TV. I alternated daily between watching the monologue of Jay Leno and of David Letterman. My goal was to determine which of the two was the better comedian. I watched Leno Monday and Wednesday and Letterman Tuesday and Thursday. What did I decide? . . . Well, honestly, neither one of these guys is all that funny. On Friday I watched Leno’s monologue and then tuned in to Letterman’s famous “Top Ten” list. That made it official: you can combine the two and they still aren’t funny.

In my judgment (and I realize this is strictly my jaundiced opinion), these two guys are unfunny for different reasons. Leno constantly goes for the quick, easy, often dumb joke. His studio audience responds with regularly timed courtesy laughs, so much so I wonder how they’d respond if he said something really funny. Occasionally he does say something fairly clever, but his delivery is so popeyed and cute that it spoils the gag—like someone ruining a joke by laughing at his own punch line.

Letterman doesn’t really try to be funny so much as he coasts along trying to be hip. His entire presentation is a perpetual NYC insider joke: “I’m too fashionable to do anything but pretend to take this seriously; and if you’re hip, you’ll laugh at this pretense along with me.” The currency of Letterman’s humor is patronizing cuteness. His Top Ten list is an exercise in hipness, a big part of which is making certain nothing really funny ever gets listed.

So what? Well the reason I tried my little experiment was because I needed a good laugh. Ever been there? And what can be crueler than tuning into a TV comedian who gets millions of dollars a year because he’s supposed to be funny and not getting anything like a legit chuckle? I have this burning desire to express a thought to these two guys: you two are paid to make us laugh; we have no desire to listen to your pandering and coasting. Once upon a time, each of you knew how to be funny and you need to find that place again—and here are the top ten reasons we need a good laugh:

10. We need to remember we’re still alive. A good laugh is living proof of living. Among the prominent things dead folks don’t do is laugh.

9. We need to show God we can take a joke.

8. Laughter is free. And it’s free to laugh at people who are at different economic stations than we are. [True story: Year ago I went to an independent film at the ritziest theater in St. Louis. There I saw a well-to-do fellow come up to the kid running the concession stand and inform her that she had to hold his pager during the show so she could come get him if it went off. Funniest thing about it—the guy had utterly no idea why I was laughing.]

7. Laughter is a universal time machine, taking us individually back to our best or worst moments without cost, grief or regret.

6. A good laugh washes away our anxiety; that is, it yanks us out of what we regret (the past) and what we fear (the future) and brings us back to the present, if only for a moment. We see things more clearly after a good laugh, and make better decisions.

5. A good laugh is hard-wired into reality and truth. A spontaneous belly-laugh momentarily cuts through the sham and self-deceit of civilized living like a breath of cool, fresh air in a stuffy, moldy room.

4. A good laugh is spiritual, like a miracle: you never see it coming; it overwhelms you despite yourself; you can bask in it and be refreshed.

3. It’s a presidential election year. Presidential election cycles should be renamed: “the year of living seriously.” When did a political candidate say something funny that wasn’t a dig at somebody else?

2. We need to laugh down the walls between us. Being serious, earnest and worried about our differences hasn’t worked.

1. We all have at least ten things to cry about.

True story: On lucky April 13, 1988, my beloved red Nissan pickup was totaled in downtown Tulsa by a drunk driver who ran a red light and t-boned me. After making sure the other driver (and his drunken girl friend) were not seriously injured, I stood in the middle of the intersection looking at my crumpled vehicle. A tall, earnest fellow hustled out of the Dodge dealership on one corner of the intersection, informed me that he had called the police and said, “This may be a bad time to ask this, but are you in the market for a truck?” For a split second I was furious. And then I laughed, a nice big, curative laugh. I don’t need anymore car wrecks—but I could use a few more good laughs.

***

Lazarus Barnhill is the author of Lacey Took a Holiday and The Medicine People, available from Second Wind Publishing.

Do you think writing this book changed your life?

Speaking of Daughter Am I, I wish I could say writing this book changed my life since would make a good story, but the fact is, it made little difference. It was the third novel I wrote. I’d already experienced the joy and sense of accomplishment completing a novel gives one, and I’d already experienced the disappointment that comes from having a novel rejected. I’d already experience the joys of being published and the disappointment that comes from not having the book take off immediately. Now, if Daughter Am I would go viral, that would change my life!

Here are some challenges other authors faced as they wrote their books. The comments are taken from interviews posted at Pat Bertram Introduces . . .

From an Interview with Harold Michael Harvey, Author of “Paper Puzzle”

Yes I do think writing this book has changed my life. After leaving the practice of law I had to redefine myself, reinvent me if you will. And writing has gotten me back to the original childhood dream of what I wanted to do in life. The joy of writing legal thrillers is a lot less stressful than fighting to keep the State of Georgia from killing my client with a lethal injection as deadly as those given to Michael Jackson by Dr. Conrad Murray.

From an Interview with J J Dare, Author of False Positive and False World

Writing my first book a few years ago gave me confidence. I believe it was an exercise to prepare me for the challenges I would shortly face in my personal life.

From an Interview with Noah Baird, Author of Donations to Clarity

I think people thought I was pretty weird before the book. They still think I’m weird, but I think I get a pass now because I’m a writer.

From an Interview with Calvin Davis, Author of The Phantom Lady of Paris

After penning the Phantom Lady, I was not the same person. The actual writing of the novel took about five and a half years. During that period, I wrote and rewrote again and again, etc. That said, the truth is, it took me all my life to write the Phantom Lady. The penning of my two other novels was preparing me to write TPLOP. The production of my countless short stories was also tutoring me on how to create the Phantom Lady. And during all this time of schooling, “the lady” was inside me clamoring to be liberated, as I was clamoring to liberate her. “Free me…free me,” she screamed. When I completed the last sentence of the novel, the lady was finally liberated. “Thank you, Calvin,” she said. “Thank you.” Finally, she was free…and so was I.

From an Interview with Sherrie Hansen, Author of Merry Go Round

I think each book that I’ve written has changed my life. I remember an episode of Star Trek, Next Generation, when Jean Luc Picard was swept away to live out his life on another planet. He eventually fell in love, married, had children, and learned to play a musical instrument. When his new world came to an end, he learned that he had never left the Enterprise, and that the whole alternate life experience had occurred only in his mind, in a few days time. I feel like that every time I finish a book. It’s like I’ve visited some alternate reality and lived the life of my character from start to finish, feeling what they feel and experiencing what they experience, when in reality, I’ve just been sitting at my desk, typing away. In a very real way, I think each book makes me a richer, more multi-faceted, more understanding person because when I’ve walked a mile (or a hundred) in my character’s shoes.

List of Loaths

I have a list of words and phrases I loath.

Giving 110% – – A physical impossibility, and even if it were possible, your energy and fluids and muscles fibers would be so debilitated that you might not be able to recover

24/7 — The only thing you can do 24/7 is breathe. This monstrous figuration is particularly loathsome when  used in conjunction with 110%. Giving 110% 24/7. Yeah, right.

Coed — This is a sexist term that was born in the nineteen thirties when women enrolled in previously all-male colleges, and it is a term that should have died there. Men were educated, women were coeducated. Not the same thing at all.

Intestinal fortitude This term ties my guts in knots. Use plain old “fortitude” or have the guts to say “guts”. Even better, use the word “courage”.

Veggies — I should have put this at the top of my list. This one really grates. What is wrong with “vegetables”? Are we children, that we need cute words to entice us to eat foods that are good for us?

Today, I’m adding a couple of new phrases to my list of loaths. With election year politics fouling the air, this is a good time to mention them since you are probably as sick of hearing these hyperboles as I am. These phrases refer to POTUS, the president of the United States.

The most powerful man in the world. Uh, yeah. Don’t even know where to start with this one. There are men and women in the world who head debt-free conglomerates who could buy and sell the United States. These folks buy presidents with petty cash. They shell out billions of dollars to lobbyists to make sure their agendas are met. They buy zillions of tickets to $1000 plate dinners to make sure that their needs are known.

Our government is basically a committee. The president has advisors, has to answer to appropriations committees and other congressional groups who have the power to squelch his demands. He has to answer to his party, and most of all, during his first year, he has to pay attention to the polls. The only goal a president has his first term is to get re-elected to a second term. Doesn’t sound all that powerful to me.

Perhaps POTUS is the most powerful celebrity, perhaps he is the most powerful elected official, perhaps he is the most powerful public relations icon. But he is not the most powerful man in the world. Nor, as I have heard several times lately, is he the most powerful man in the solar system. I can’t even imagine the foolish minds that come up with this stuff.

The leader of the free world. Says who? Does anyone in France consider POTUS their leader? Does anyone in England? Or Germany? Or Canada? And what is the free world anyway?

Please, before you use such in inanities in your writing, pay attention to what you are saying. I just a picked up a book where, in the first chapter, POTUS was called the most powerful man in the country. In the second chapter, he was called the most powerful man in the world. In the third chapter, he was called the most powerful man in the solar system. I didn’t stick around for the fourth chapter, where I’m sure POTUS would have been called the most powerful man in the universe. I many not know much, but I do know this: POTUS is not now, nor ever will be, the most powerful man in the universe.

What is Life? What is Death? And What do Such Questions Have to do With Grief?

I always like when people think out loud here on my blog, when something I have said strikes an answering chord, and often when they’re not sure if they are making sense, they make the most sense to me. The only good thing about my grief is that I’ve met some wonderful people who are struggling with the same questions I am, and I’ve had some thought-provoking discussions about the meaning of life, death, grief, and whether any of it matters.

Leesa from Leesis Ponders believes that it does matter. She wrote on her blog:

I have spent my whole life asking if there is a god and if so what does it have to do with me.

And for me, life matters.

The search for self that blends into all matters.

The way we act towards others matters.

The way we raise our kids matters.

The way we treat the less empowered matters.

Leesa has been here with me through almost two years of grief, letting me know that my grief matters, that life matters.

In a previous post, Falling Into Grief, I wrote: Before people fall in love, they haven’t a clue of its true power, and then it washes over them in a life-changing moment. Before you fall into grief, you haven’t a clue of its true power, but it too washes over you in a life-changing moment, and all but drowns you. Even though I’ve experienced so much of what grief does to a person, I still can’t believe its power. The way grief reflects falling in love as in a very dark mirror, there has to be a hormonal component. I know stress releases hormones, as does shock. Adrenaline courses through your body, and there are changes in brain chemistry that produce hormones. Your immune system goes on hold.

Leesa responded: one thing you are absolutely spot on about is that we don’t know the power of falling in love nor the power of grief, nor indeed the power of love when ones baby is born until we actually experience it. The reality of life seems to be that our most intense experiences in life are about our deepest connection to each other. These experiences are life altering and this goes way beyond the DNA imperative.

For me personally then questions upon questions arise. Why is this intimate connection our deepest need, our greatest joy?  What is pain about? What is the sense of being alone about? How does our idea of separating off into couples and nuclear families contribute to our sense of loss when death occurs? Why are we so interdependent on each other, on the planet on everything else. And, what is death about? 

I know that many people feel they have their answers to that last question, some theologically, some via science but personally I don’t. Another bunch of folk seem to think we can’t answer such questions. I don’t agree. I think since many of us have dumped traditional theological answers or scientific reductionist responses as inadequate we’ve kind of given up questioning. I think we need to keep questioning because whilst we are subject to many biochemical reactions to life events there is a deeper reality.

Of course none of this helps a person smack bang in the middle of grief. It still has to be lived through. But I’m convinced that we need to keep asking. I hope this makes sense to what you’ve written…I’m not sure it makes exact sense to me. I guess I just feel that once we truly understand more our experience of these events will be perceived differently…perhaps the pain will be the same but perceived differently. I’m not sure really but I am sure we don’t know enough to interpret meaning yet.

Leesa’s question, “What is death about?” haunts me. She’s right — many people do think they know the answer, but there is no way to know for sure, which is why it’s called a “belief” and not a “surety.” I do think there is a deeper reality, I’m just not sure our conscious selves are a part of it. We are so much a product of our genetics, our hormones, our brains (anyone who has had to cope with an Alzheimer’s sufferer or a loved one who had cancer in their brains, and found a stranger in that familiar body, knows how much the brain controls who we are), that I’m not sure how much of “us” survives.

There is a theory that our bodies are like television channels, receptors for certain wavelengths, so that our “souls” actually reside outside our bodies, but what does that have to do with life in our bodies?.

My friends laugh at me (affectionately) when I ask what we’re supposed to do with eternity. We have no mouths to talk, no hands to write, no arms to hug, no eyes to read or watch movies, no legs to walk.

On the other hand, if human life is a spectrum as I postulated a few days ago, then perhaps the spectrum of a human life is the same sort of spectrum as light — beginning long before the visible part appears and ending long after the visible part disappears. Of course, the non-visible parts of the electromagnetic spectrum aren’t light but sound and radiation and other invisible waves, so whatever exists outside of the visible human spectrum might be something completely different from we can ever imagine.

When I get lost in the questioning, I hold tight to Leesa’s credo that such such questions matter, that life matters.

Falling into Grief

I wonder how much of grief is hormonal. I often think of the young women who have their lives mapped out, want to accomplish so much, are on the fast track to success and then . . . whap. They meet the love of their life, and all of a sudden, their lives, their plans, their dreams all change. Those sex/nesting/procreating hormones are so powerful, they can derail your life, make you see things in a different light, make you do things you would never do. Women who never wanted kids start dreaming of cradling sweet-smelling bundles, look for houses in neighborhoods with good schools, invest in SUVs. People call this maturity, but basically, it’s just hormones and preprogrammed DNA kicking in. After all, in terms of genetics and evolution, we are just DNA machines, and everything works together to make sure we do our duty.

Grief does the same thing. It makes us see things in a different light, makes us want things we’d never thought about, derails all our plans, makes us do and feel things we never thought possible. Changes us. People think grief is a choice, but it isn’t — it’s something that’s thrust on us. There is no way we can choose to feel things we never imagined possible. I thought grief was a quiet melancholy, a sweet nostalgia, a pervasive sadness. Grief, for me was none of those things. (Well, that’s not strictly true — it’s how I felt when my brother and my mother died, but did not at all resemble how I felt after my life mate/soul mate died.)

A friend of mine wrote me: I have done therapy for 40 years. I have worked with people who have lost kids, spouses, parents, dogs everyone and every kind of pet. I had NO clue what it was really like in spite of losing my best friends and parents. I think a therapist who counsels someone in grief should have gone through a loss like you and I have before she/he tries to help someone. God knows there are enough of us out here who REALLY know grief. NOW I am one of them. (I hope she doesn’t mind I passed this on, but it is too important to keep to myself.)

Before people fall in love, they haven’t a clue of its true power, and then it washes over them in a life-changing moment. Before you fall into grief, you haven’t a clue of its true power,  but it too washes over you in a life-changing moment, and all but drowns you. Even though I’ve experienced so much of what grief does to a person, I still can’t believe its power. The way grief reflects falling in love as in a very dark mirror, there has to be a hormonal component. I know stress releases hormones, as does shock. Adrenaline courses through your body, and there are changes in brain chemistry that produce hormones. Your immune system goes on hold.

Do our bodies know we are no longer mated and ratchet back the DNA machine? I do know there is some effect on the limbic system. The lizard brain, which has been slumbering peacefully beneath our consciousness, wakes up and screams, “What?? I could die?? Say it isn’t so!” That’s a bit fanciful, so many of us feel it deep inside, the hurt of an animal who suddenly realizes there is an end. (As if there isn’t enough to contend with when if comes to grief.)

I don’t suppose it really matters what causes the physiological changes of grief — hormones, stress, agony, lizard brains. The primary cause is what matters. Someone we were deeply connected to died, and we fell into grief.

Dealing With Grief After a Loved One’s Long-Term Illness

There are so many misconceptions about grief that still, after two years of being steeped in the culture of the bereft, I am surprised by people’s comments. I met a woman the other day who asked about my experiences with the death of my life mate/soul mate, and when I told her that he had been sick for many years, she said, “It must have been a lot easier for you than if he had died suddenly in a car accident or something.” Um . . . no.

All deaths bring trauma to the survivors, and you cannot compare relative severities. If someone dies suddenly, the survivors have to deal with unbelievable shock, with the dreadful chores of laying the dead to rest, with the after effects of the loss, with the despair of not having been able to say good-bye, with finding hurtful troves of personal belongings that the deceased would have gotten rid of if they had known they were dying, and probably dozens of other issues of which I am unaware.

If someone dies after a prolonged illness, you still have the shock. Even though you know the person is dying, you get used to it. Their dying becomes a fact of your life, and you just somehow assume that is the way it will always be — their dying, your struggling to live despite it. And when they die, it comes as an unbelievable shock. And, as with any death, the total goneness of the person adds to the confusion and shock. You expected to feel the same way when they were gone as you always did, because, after all, you’d been preparing yourself for years for that eventuality. But you don’t feel the same, you don’t feel any way you could ever have imagined. The onslaught of physical/emotional/spiritual trauma is the same as if he had died suddenly, because all death is sudden. He is alive and then a fraction of a second later, he is dead. There is no in between state. And there is no way to prepare yourself for his total goneness. Nor is there any way to prepare yourself for the reactions of your body and mind. These reactions come without your knowledge, your consent, or your inclination.

Afterward, of course, you have to deal with the chores of laying the dead to rest and with the effects of the loss. Sometimes you have to deal with the despair of not having been able to say good-bye — often doctors hold out hope, wrongly assuming they are doing you a service, when in fact the truth would have been more compassionate. At the very least, you’d have had a chance to say good-bye. This might not seem like much to those who have not suffered a grievous loss, but I did have a chance to say good-bye, and it brought me enormous comfort over the past couple of years. I cannot imagine the pain of not being able to say good-bye or saying one last “l love you” or hugging one more time. Those are moments that are stolen from so many bereft, moments that can never be captured.

Those whose loved ones take many years to die end up with all sorts of traumas and issues because of the long dying. You hate yourself for having taken his dying for granted. You are appalled at yourself for all the times you got angry at or irritated by his infirmities. You feel guilty that you held fast to your own life while his seeped away. You wish you could take back every impatient word, every bristling stance, every horrible thought. (I remember once wishing he’d just die and put us both out of our misery. It was a fleeting thought, and understandable, but still, I wish I’d been less human at that moment and more humane.) All of these traumas add to your grief, because each has to be acknowledged, understood, forgiven.

If your mate died after suffering a long time, you do have the scant comfort of knowing he is no longer in pain, but you also have to deal with the agonizing corollary that he shouldn’t have had to suffer at all.

Even if it were easier to deal with death after a prolonged illness rather than a sudden death, (or vice versa) the truth is still the same, and still unbearable. He is dead, and there’s not a damn thing you can do about it.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Follow Pat on Google+. Like Pat on Facebook.