Tears. Again.

If you’re sick of hearing about my sorrow, you can leave. I don’t mind. I’m sick of my grief and tears, too, but I’m stuck with them.

Ever since my father’s death two months ago, I’ve been in a strange state. Not only has his death brought back the memory of the death that devastated me (the death of Jeff, my life mate/soul mate), it’s set in motion a whole new set of changes in my life. I came to look after my father after Jeff died, and now that they are both gone, I have to look to my own life and figure out where I want to go and what I want to do.

Do you really think I want to walk the Pacific Crest Trail, live a nomadic life in some sort of camper/van, or any of the other things I blog about? Of course I don’t. But the one thing I do want — to go home to Jeff, the Double Rainbowonly person who truly understood me — is forever denied me. And so I try to find new wants, which isn’t easy because I’m not a person who wants. (I never wanted anyone, either, but like a mythical being clothed in light, Jeff appeared in my life one incredible Saturday morning in August thirty-eight years ago. And then, almost five years ago, he left to go back from wherever he came.)

I’m fine most of the time. Really, I am. But today, I was with friends watching a movie — Patrick Swayze’s The Last Dance — and one woman piped up, “Divorce is so much worse than death.” I’d heard her make that same stark remark many times before, but today, I couldn’t let it pass. I said, more sharply than I intended, “You keep saying that, but it’s not necessarily true.” She went on her normal spiel about how when someone is dead, they don’t keep coming back, and I again spoke sharply. “Don’t you think I would give anything if Jeff came back? Your ex-husband has finally left you alone, but Jeff is still dead.” Her response was her oft-repeated, “But you didn’t have to deal with him rejecting you.”

I could have told her about the thousands of rejections one has to deal with when someone is dying, how they leave you every single day, how they have no time to think of you because their own concerns loom so large, how your heart breaks and breaks and breaks with the constant rejection until finally you don’t feel anything any more. I could have said a lot of things, but I wasn’t able to continue the conversation. I’d started crying when I spoke the simple words, “Jeff is dead,” and I couldn’t stop.

I pulled myself together to take my leave after the movie, but I cried all the way home, and I’m crying still.

How is it possible that almost five years later, I can be pulled back to the pain of his dying so quickly? Sometimes I wish I were as stoic as I once thought I was — I presumed I’d take his death in stride — but grief is more than simply feeling sad or rejected. It’s even more than those insipid 5 (or 7) stages of grief that everyone seems to believe in. Sure, we feel shock, denial, anger, guilt, sadness, depression, and acceptance, but most of us also feel anxiety, frustration, loneliness, confusion, despair, helplessness, panic, questioning (both as a need to know why and as a cry of pain), loss or gain of faith, loss of identity, loss of self-esteem, resentment, bitterness, isolation, inability to focus, suspended animation, waiting for we know not what, envy of those who are still coupled or who have yet to suffer a loss. And we suffer myriad physical symptoms such as queasiness, dizziness, sleep problems (too much or too little), eating problems (too much or too little), bone-deep pain, inability at times to breath or swallow, exhaustion, lack of energy, restlessness, and seemingly endless bouts of tears. (Yes, I know, those who get divorced also feel many of these things, and I empathize with them, but they do not have to deal with the angst of death, which adds a whole other layer of pain to the equation.)

My grief has mostly wound down since I’ve dealt with so many of the various aspects of grief, but still, days like today remind me that I will never be over Jeff, never stop missing him. And so I try to be tolerant of other’s condescension, try to create new possibilities, try to want something enough to make a life out of it.

And yet, no matter what I do for the rest of my life, he will still be dead. Nothing will ever change that — not my thoughts of an adventurous future and most certainly not my tears.

***

Pat Bertram is the author of the suspense novels Light BringerMore Deaths Than OneA Spark of Heavenly Fireand Daughter Am IBertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Channeling My Mother

I’ve been channeling my mother the past couple of days. Not channeling her in the séance sense, just in the sense that I have been doing what I so often saw her doing, and so I feel the continuation of her life.

My mother’s parents came from Poland. It was a shock to me when I realized as an adult that my mother was a first generation American who grew up speaking a language other than English. I always knew that, of course, but as a child you accept your mother for who she is without seeing her in the afternoon teabroader context of life. We often think of first generation Americans as people who have a rough time speaking English (or who speak rough English), but she spoke impeccable English with no hint of that other language in her voice.

Two things she did carry over from her heritage, the Christmas wafer and pirogi. The tradition of the Christmas wafer dates back to the tenth century, and is a celebration of family. In our family, on Christmas Eve, each person got a small rectangular white wafer, paper thin and flavorless. We would hold out our wafer to each in turn, wishing each other Merry Christmas. Each person broke off a piece of the proffered wafer, ate it, then offered theirs in return. This custom in our family ended with the deaths of my mother and her sister.

We children never really appreciated the custom of the Christmas wafer, but pirogi. Now that is a different matter, and much appreciated. I make them once in a great while. A childhood favorite, it reminds me of . . . well, good food, good times, even warmth maybe. A few days ago, I had sampled some pirogi that were indifferent at best, which gave me a craving for my mother’s pirogi, so I went out and purchased the few simple ingredients. As I cut squares of thinly rolled dough, dropped a handful of a potato/cheese mixture into the center and pinched the edges, I could almost feel the shadow of my mother doing the same thing.

I must have made these treats with my mother a hundred times, but it wasn’t until now that I wondered what impelled her to make them when she did. Was it a yen for the connection with her mother? A desire for a taste of home? Perhaps, like me, she simply wanted the treat, or maybe she knew we did. I’ll never know, of course. She is beyond such questions, but it was nice visiting with her if only through memory.

This is the recipe she gave me when I left home:

6 cups flour
4 eggs
1 t salt
milk

6 or 8 large potatoes; boil till soft; mash with 1/2 lb longhorn cheese, salt, pepper paprika.

Roll dough thin, fill, boil, fry.

Not exactly the sort of recipe a neophyte can follow, but it makes perfect sense to me.

If you’re in the area and want a sample, leave a message here or give me a call. I’ll be delighted to have you come for tea and a pirogi or two. I have plenty.

***
Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat onFacebook.

This Thing Called Communication

Whenever I start patting myself on the back for my ability to write, something happens to make me realize how very difficult is this thing called communication.

Today I texted someone to give my opinion about a course of action he was planning to take that would affect me. I immediately received a call from him chastising me for my anger. I was taken aback because I wasn’t angry. I was being direct, or at least thought I was.

phoneI got upset with the situation, and remarked this was always happening to me — I say something that seems unadorned and direct, and the recipient reads it as anger. My communicant today responded, “If it always happens, maybe the problem is with you.”

Perhaps it is. If so, how would I know? I only know what it is I think I am saying, not what it is people hear when they read my words. But come to think of it, even if I were angry, what difference does it make? I’m allowed my own reaction, especially when it comes to things that affect me.

Today, because of his call, we were able to smooth things over. Both of us apologized for the misunderstanding, but that ease of voice-to-voice communication is not always possible. And when that happens, things drag on, with the situation getting ever more complicated. I try to explain myself in subsequent emails but end up only deepening the misunderstanding, because each explanation seems as if I’m refueling the anger.

When we write fiction, we write to evoke emotions — anger, nostalgia, humor — but people don’t always respond the way we want them to. Sometimes the humor falls flat, the romance seems uninspired, the pathos insipid, but we as writers don’t end up in imbroglios because of the miscommunication. In fact, we seldom even know where it is we lost those particular readers, or if they even care. Maybe they felt something completely different and just as meaningful as what we intended.

But real life isn’t as easy. We leave people with impressions we don’t want to make, and no matter how precise we think we’re being, we end up causing confusion. Case in point: I sent this text to the executor of my father’s estate: “I’ve got a note on the cable box that it has to be returned to the company.” And I do have a note taped to the box. I put it there as a reminder to return the box when the house is sold. I just wanted to make sure it didn’t get forgotten or thrown out in the flurry of post-sale activity. But the executor thought I meant that I received a note from the cable company about the box. Eek.

Considering all the misinterpretations that are possible as words slip from one mind to another, it’s amazing that we can communicate at all.

***

Pat Bertram is the author of the suspense novels Light BringerMore Deaths Than OneA Spark of Heavenly Fireand Daughter Am IBertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

You Matter

I received this letter yesterday:

Dear Pat,

Give more than presents this holiday season, share the gift of caring with those who matter to you most!

With the holidays around the corner, the USC School of Social Work believes that there is no better time to encourage random acts of kindness. The simple act of telling someone why they matter could have a bigger impact than you know. For that reason, you’re invited to participate in You Matter, a grassroots campaign designed to foster well-being and bring back some much-needed human connection. We are on a mission to spread as much positivity as possible, and we hope that you’ll join us!

There are four easy steps to participate in #YouMatter:

1) Download a Care Card from the MSW@USC blog.

2) Write a message with someone in mind.

3) Snap a picture of your card and share on social media using the hashtag #youmatter and tag us @youmatterbc to inspire others.

4) Give the Care Card to someone and make that person’s day!

There’s never a better time than now to show others that that they matter in this world. If you love this campaign as much as we do, we ask that you please pay it forward by featuring #YouMatter on your blog.

Wishing you a wonderful and safe holiday season,

Gaby Acosta

####

Sounds like an interesting campaign, even if she did neglect to tell me I matter!

If you’re interested in participating in this project, here is a “you matter” template to use. (Just right click and “save image as…) I was going to fill in the template, but in the end decided there was no “because.” You matter. It’s as simple as that.

you matter

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Thank You, My Friend

Of all the things I am grateful for today and every day, my friends (both online and off), rank the highest. You, my friend, have made these years of transition a special time for me, showing me that grief isn’t just about sadness and broken connections, but about growth, wonder, and new links to life.

Table settingIt’s odd to think about, but if my currently deceased life mate/soul mate were somehow to return whole and healthy, I’m not sure I’d go back to him — I’d be leaving too much behind. Oh, heck, who am I kidding? I’d go back to him in a minute! But the truth is, I’m glad I don’t have to make that decision. I still have dances to learn, friends to enjoy, places to go, adventures to undertake.

I panic at times about the uncertainty of my future, but even that uncertainty is something to be grateful for — uncertainty hides a plethora of undiscovered joys, friends as yet unmet, and untold possibilities. More than that, by your friendship, you have taught me that the future is not an unfriendly place. Once upon a time, you were part of an unknown future of mine, and now you are a significant presence in my life.

Thank you, my friend, for the blessings you have bestowed on me.

Wishing you a very happy day of thanksgiving, even if you don’t celebrate the American tradition of Thanksgiving Day.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Grieving in the Desert

It’s been a while since I went walking in the desert. A couple of months ago, I started taking extra dance classes, so I felt as if I needed to rest in the evenings and on the weekends to make sure I had the strength to dance, but lately it’s more because of . . . well, because of laziness, I guess.

After last night’s upsurge of grief for all my losses, I wanted to talk to Jeff (my deceased life mate/soul mate). During the past four-and-a-half years since his death, I’ve felt the closest to him out in the desert away from the traffic and commotion of the city. But he wasn’t there today. Of course, he’s never been there except for the part of him that used to be a part of me, but today even that tenuous connection was missing.

Bell MountainI used to worry that my grief kept him tied to me so he couldn’t go wherever he needed to go, though I’ve believed from the beginning that when he died, he went far beyond my influences, back to the higher reaches of radiance he came from. (At the same time, oddly, I believe he is gone, obliterated, oblivious. This second belief seems to be the result of my logical mind, while the first is more intrinsic.) I have no true belief as to what happened to him — either way, he is gone from my life with only his very pronounced absence still making him present to me.

At the moment, I have his photograph standing on a table where I can see it frequently, though sometimes I put it away or lay it face down depending on my current state of dependency. During the time of my dysfunctional brother’s nearness and my father’s decline, I needed to keep the photo handy to remind me that my life wasn’t always such a horror. Eventually, I’ll pack the photo away and not look at it much if at all — I’m not sure it’s a good thing to keep reminding myself of our past. The past is past, and only shows itself in what I have become because of it, anything else seems to be . . . I don’t know. Wallowing maybe. Irrelevant perhaps.

It does seem strange to think he isn’t relevant to my life anymore. For thirty-four he was relevant to everything I did, said, thought. Now my life is mine alone. I still wish I could go home to him, but though I seldom admit it even to myself, I know I would chafe under the life his illness forced us to live. I remember how numb I was that long year of his dying, and I don’t have that sort of defense any more. His death and my ensuing grief killed that particular mechanism in me — now I feel everything, as if my emotional tuning fork is poised to thrum at the slightest disturbance.

Sometimes, when I am at my most mystical, I feel as if my life’s journey is just beginning. That everything up to now has been prologue. (That sounds familiar. Didn’t Shakespeare write, “What’s past is prologue”?) So I won’t say prologue. Maybe school. My life does have a bit of that “almost graduation” feel to it, along with the panic/excitement of what is coming — whatever that might be. I’m trying to follow the advice of a very sage woman and not give too much thought to the future, but my mind does seem to wander/wonder at times.

I will make one plan for the near future, though. I’m planning to walk in the desert again tomorrow. Even though Jeff might be absent, I was very much present, and that’s what mattered.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

I am Truly Blessed

I just came back from dance class to an empty house. It felt strange not to have to worry about my father, not to have to deal with our complicated relationship. (Though at the end, it was simple. He wanted to die, and I was there, helping him let go.)

My father died in exactly the same way Jeff (my life/mate soul mate) did — terminal restlessness and agitation treated with morphine and haloperidol for a while, and then finally nothing when they fell into a coma and slowly and peacefully faded out of this world. In both cases, I sat with the empty body until the mortuary came for the remains, though in both cases I had company, a nurse with Jeff and a brother with my father.

But then came the major differences. With Jeff, I was totally shattered, dealing with unbearable angst and agony at his separation from my very being. I did not have that sort of deeply connected relationship with my father. Besides, he was considerably older than Jeff. Where Jeff’s life had been cut short at a fairly young age, my father had used himself up. He had nothing left. Most of all, when Jeff died, I was alone. Completely. Had to deal with everything by myself. Had little support. (Which is why I swallowed my intense independence and went to a grief support group, and one of the reasons I wrote about my grief.)

But this time, I could feel the incredible outpouring of love and caring from both my online and offline friends. Many comments were left on my blog and Facebook — not the typical stranger-to-stranger condolences you get on such sites, but heartfelt expressions of concern from people who have gotten to know me from my chronicling the traumas of my life.

I went walking with my walking group last night and cried on a friend’s shoulder and got hugs from everyone else. And then I experienced the same thing at dance class today, hugs and tears. After class, I went to lunch with friends, got calls this afternoon making this empty house seem not so bleak, and I will be going to dinner with another friend tonight.

I am truly blessed. Thank you for your kindness, your caring, your love. You mean more to me than you will ever know.

Me, Jeff, Mom and Dad on their fiftieth wedding anniversary. Strange to think I am the only one left alive.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Daughter No More

My father died this morning a little before four. One of my brothers was here, and he kept vigil while I took a nap, and that is when father chose to die. Oddly, it didn’t bother me not being there at the moment of his death. I was holding him during his last bit of consciousness, felt his acceptance. After all his time of not wanting to die, suddenly, he was ready. And so he did what he always did when his course was set — just forged ahead. Things happened so fast (things like arranging for a hospital bed), and he changed so rapidly, it felt like weeks passed but was less than seventy-two hours from the beginning of his steep decline to the end.

It took even less time to remove all signs of death — his body, his pills, his equipment. My brother and other siblings are notifying relatives and working to arrange the funeral, so after all these years, I’m left with nothing to do for my father. My mother died almost seven years ago, so now I am a daughter no more. The price of daughterhood has been paid in full, and I am free. But free to do what? I still don’t know.

The house won’t be sold immediately, of course, and my siblings have agreed to let me stay here at least another month or two, which is only fair considering how much worry I saved them. But after that? I’ll just wait, see what happens. I still have to go through my stuff and get rid of what I can since it will all be going into storage until I decide to settle down somewhere.

But all that is in the near future. I’m still just trying to get through this day, and then each of the coming days. For all of you who have followed my grief journey and so might be expecting me to descend into sorrowful depths again, don’t worry. That sort of shattering turned-inside-out grief only happened to me when I lost my soul mate, and I don’t have that sort of all-consuming pain today, only a strange emptiness. My father lived a long, happy, healthy, charmed life, so there is not a lot of tragedy attached to his passing. Once again, though, my life will be changing drastically due to a death, and that brings its own sort of grief, though this time it might also bring an exhilarating sense of possibility.

Thank you for all your concern and support. As always, you have helped me through a trying time.

Here’s wishing for better days for all of us.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Death Rattle

I am sitting here listening to my father’s death rattle. First, there is the puff of the oxygen concentrator machine accompanied by the gurgling of the attached humidifier, then, like an echo, the rattle of his breath.

Things are progressing, or rather degressing, very rapidly. He started having breathing/panic attacks on Thursday, and by Saturday, he was experiencing them every couple of hours. I thought everything was more or less under control, but Saturday evening, he fell. He wasn’t hurt. Just scared. He kept demanding a doctor. I sat with him and tried to soothe him until hospice came. The nurse and I got him on the bed, but he was agitated, sweating, twitching, having pbedroblems breathing, and experiencing what seemed to be hallucinations, so she suggested he take morphine to open the bronchial tubes and haloperidol for the agitation.

Although she wouldn’t say how long he had left, I recognized the “end signs.” I stayed up with him most of the night, and he seemed to be sleeping peacefully, but this morning, he got agitated again. Tried to get out of bed, couldn’t cough up the secretions (as they so delicately call his prodigious amounts of mucus. I’ll spare you the details of my holding him while he drooled those “secretions” all over me). I finally got him partly settled, half on and half off the bed — he’s too heavy for me to lift by myself. Luckily, right about that time, the hospice nurse came to check on him, and she agreed that he is displaying the end signs, especially terminal restlessness.

I won’t bore you with the story of my (his) day, but the upshot is he is now in a hospital bed with rails (so I don’t have to worry about his falling). He’s mostly comatose, and although he doesn’t have mottling of the skin to show that his organs are shutting down, it does seem he has little time left. The nurse says her best guess is 48 hours. He can barely swallow, so I give him his few drugs with an oral syringe. He stopped eating and drinking yesterday. (When Jeff was at this point, he still had five days left, but dad changes by the minute, so I sincerely doubt he will take that long. Since he’s made up his mind to die — in fact, he asked me to help him die, which of course I cannot do — he will proceed posthaste as he always does when his course is set.)

I am with him almost constantly, monitoring his distress, and keeping him as comfortable as possible. I am hoping he doesn’t wake up — the realization that he is in a hospital bed will be too demoralizing for him.

Still, at ninety-seven, he’s led a very long and charmed life, a lot longer, happier, and healthier than most people. And his end won’t be prolonged. Something to be grateful for on this eve of my orphanhood.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

 

 

Dad Update Too

I’m taking a short break from my offline life to catch my breath here online where it is calm and quiet. Oh, what a difference a day makes! Yesterday my ninety-seven-year-old father seemed fairly normal, just starting to have more difficulties, possibly because his body is shutting down, but today, he experienced bad episodes almost hourly, and I’ve spent the entire day with him, in addition to visiting briefly with siblings, and coping with one minor emergency after the other.

And then tonight, after all that, my father fell. Oh, my. I got him untangled from his walker, and kept him lying quietly on the floor, soothing him, while I called hospice and waited for the nurse to come. He seems to be declining rapidly now — every hour is different from anything that has come before.

Luckily, I am only on my own with him until Monday night — my brother-in-law offered to come stay until my other sister could get here. It will be so good not to have to worry about my falling asleep at just the wrong time or having to leave my father to suffer his panic attacks alone. Selfishly, I am glad I will not have give up my dance classes — they keep me strong and sane. But even if it weren’t for the classes, I would need to have someone else here. He is fighting the inevitable with every cantankerous bone in his body, though perhaps the morphine and haloperidol will help him move past the restlessness and let him sleep.

I probably won’t sleep much — I’ll have to stay in the bedroom next to him so I can hear him if he needs help. And, of course, feed him his drugs at the prescribed times.

All this seems bizarrely normal, though occasionally it strikes me as strange that death has been my life for so many years now. First helping with my mother, then taking care of my life mate/soul mate, and now my father.

And afterward? My father will be at peace, and I . . . well, who knows what I will be doing. Other than dancing, that is.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.