The Soundtrack of Our Lives

I never paid much attention to the soundtrack of my life until a few months after my life mate’s death when I realized all the things I wasn’t hearing. Every morning for decades, I woke to the motorized whine of his blender as he made a protein drink, the shushing of running water as he filtered the drinking water for the day, the clink of weights as he did his exercises. We were quiet people, but during the day, I’d occasionally I’d hear the soft hum of his music or tinny voices from the television in the other room. In the summer I could hear the rustle of the hose in the weeds as he watered the bushes and trees outside my window, and in the winter I could hear the stamp of his boots when he came in from clearing off snow. And always when we were together, there was the lovely sound of his voice as we talked and talked and talked — we talked of anything and everything until he got so sick he couldn’t carry the thread of a conversation any more. At the end, there were the scary night sounds of his falling when he tried to get out of bed, and the even scarier sounds of his yelps when he woke and couldn’t remember who he was or where he was.

Just from those sounds, you get an idea of our life together and how it ended. What is the soundtrack of your life? How has it changed over the years?

If you are a writer, what are the soundtracks of your characters’ lives? What do those sounds mean to your characters, and how does the soundtrack change during the course of the book to reflect the changes in their circumstances. How much can your readers tell about your characters from the sounds they hear?

Letter to a Grieving Friend

Hello, my friend.

I understand what you said about the continuity of attachment even after death. At the beginning of my grief, I held to the thought that I was sparing my life mate — my soul mate — from ever having to grieve for me since he died first, then it occured to me that if, in fact, we continue to live somewhere beyond this earth, maybe he is feeling as lost as I am, as disconnected, and as lonely. That took away the last bit of comfort I had. My other thought was that even if something of us survives, I will never see him again. When he and I met all those years ago, I had the strange notion that he was some sort of exalted being come to help me find truth and reality (when the student is ready, the teacher will appear, they say). I’m not sure why I thought I was so special, but the time when we met was steeped in mysticism for me. I sometime wonder if perhaps my grief is so difficult because our separation is truly forever, that by the time I die, he will have taken his rightful place somewhere high up in the pantheon of radiance, and I’ll still be muddling along without him. Such strange thoughts that beset us bereft!

I’m beginning to realize that in some way my grief might always be a part of my life. It’s too immense, this thing called death. Too hard to deal with the reality of it. Oftentimes when people mention how the loss of their mate helped them become the person they were meant to be, it makes me cringe, as if the loved one was an adjunct to their life, not a life in itself. But we all deal with life and death the best we can. My grief has two parts: my missing him and his being missing from this world. Both feelings will be with me forever. And through it all, grief really is molding me into what I will become. I thought I’d have arrived at that place of becoming by now, but it’s still a long way away.

Supposedly, people who deal best with the hole in their lives are those who continue to have a connection to the person, such as still talking to them or writing to them. What is the difference between that and a fantasy? Either way, the person has no physical being (except, in the case of the dead, as dust in the ground or pulverized bone — cremains as the funeral business so cutely calls them). But perhaps that attachment even after death is what makes the difference.

I’ve decided that a life of fun and/or adventure is the only thing that will make the coming years tolerable, yet I have no idea how to have fun. Don’t even know what fun is, except perhaps doing new things or learning new things.

I feel as if I am disappearing, though. So many friends, even friends I made after his death, have disappeared from my life, and I worry that I will disappear, too. Perhaps that’s not a bad thing. I’ve been looking at photos of me as a child, and I am no longer that person, can’t even remember what I was thinking or feeling when the photos were taken (can’t even remember having my picture taken) so that youthful “me” has disappeared. Maybe when today’s me disappears, I’ll be not simply old and decrepit, but different somehow, and able to handle the challenges that the future will bring.

I hold to the idea that maybe someday you and I will have a grand adventure together.

Your sister in sorrow,
Pat

Following Grief Wherever It Leads

A couple of weeks ago at my grief group, I mentioned that the day I cleaned out my life mate’s effects — his clothes, personal items, and mementoes — was the worst day of my life. I then said the only good thing about it was that since it was the worst day of my life, by definition, every day afterward would be better. The moderator of the group gave me a surprised look and said, “That’s a very positive thing coming from you.” Huh? I didn’t know we were supposed to be positive. I thought the whole purpose of dealing with grief, of talking about it, of learning from it was to feel it, process it, and let it go so that we’d eventually be able to rebuild our shattered lives. Being foolishly positive seems to be a rather negative way to deal with a soul-shattering loss.

After the first painful weeks, most bereft are outwardly optimistic when it comes to sharing their grief because they’ve been taught that dwelling on anything unpleasant is unhealthy. They talk about looking forward to new opportunities, new goals, new hopes, but inwardly they are still reeling from their horrendous loss. (And if they aren’t, chances are they are denying what their loss means to them.) I chose instead to feel my grief, to dissect it, to put it into words for the bereft who couldn’t express what they were feeling. I also wanted to illuminate the experience for those who haven’t a clue what grief really feels like (especially novelists, who so often get it wrong), and to challenge the current myths about grief. If I wanted to, I could have been as optimistic as everyone else, but that was not my self-imposed mission. I don’t need to shore myself up with positive thinking — I’m strong enough to take grief straight. This does not mean I am closing myself off to new possibilities. Eventually I will have to rebuild my life, but I am in a position right now where I can follow grief wherever it leads.

And where it is leading is into the second year of living without my mate.

The first year of grief is all about dealing with the emotional, physical, mental, spiritual shock of the soul quake you experience when a long-time mate dies. That shock protects most of us from feeling the full effect of the truth — that we’ll never see our mates on earth again. After the first year, when we begin to rebuild our lives, to feel that the worst is over, we are hit with the aftershocks, and it’s as if we are experiencing the loss all over again, but this time without the protective effects of the original shock. If we’ve worked through our particular issues — our shoulda, woulda, coulda’s — we are left with pure heartbreak.

Our family and friends (the few who stuck with us) have moved past the loss and they expect us to move on, too. One of my blog readers, a professional consultant in emotional-mental health who has been supportive of my efforts to demystify grief, wrote, “At this time of the journey, (the second year) people are at such risk of going into severe depression, of jumping into relationships they usually wouldn’t enter etc because everyone expects they’ll be ‘moving on,’ ‘creating a new life,’ when in fact the shock is only now subsiding (the emotional shock of losing the loved one is so under appreciated and I believe lasts for at least twelve months).” She hopes I will continue to share my journey, because “the next eight to twelve months will be just as important for folks to read. It seems to me the second year is about another level of acceptance . . .about the recreation of life whilst initially hating that it has to be recreated at all . . . about choosing life and the potential for happiness when death has taken our loved one . . . about choosing to find different lights to shed meaning on our existence.”

She makes good points, and I wouldn’t mind continuing to chronicle my journey into grief (despite the fact that I’ve alienated most of my blog readers). The problem is, I have nothing to say. Or at least, not much. For the most part, my situation isn’t changing. I’m caring for my 94-year-old father (or, to be more accurate, I’m staying with him so that he can keep his independence as long as possible), so I’m not doing much except taking a few isolated trips in an effort to fill the hole my mate left behind. It won’t be until after my father goes (and I could be 94 myself by that time!) that I will be able to start the rebuilding process, try to find a new life, a new place, a new reason for living. I’m still in a holding pattern. Obviously, I’m not totally stagnating, but I’m not moving on in any significant way, and I can’t because of my living situation. I’m not even having any revelations as I walk in the desert. (Of course, the heat could be baking my brain, burning off any thoughts before they form.)

I have no hopes at the moment, but I am not despairing, not weighted with hopelessness. I’m merely waiting for what life throws at me next. Perhaps this waiting is another stage of grief, a hiatus before the real healing begins, and if so, I’ll be ready. Dealing with grief as it comes, without the frill of foolish optimism, has taught me that I can handle anything. (Well, anything but torture, but I have no interest in being a martyr for any cause, so I should be okay.)

A Search for Meaninglessness

The death of my life mate — my soul mate — has posed such a conundrum for me that for the past sixteen months I’ve been questioning the meaning of my life. Life didn’t seem meaningless when he and I were together. I never felt as if I were wasting time no matter what we did — even something trivial like playing a game or watching a movie — so why do I feel I’m wasting time if I do those things alone? Don’t I have just as much worth now that I’m alone as I did when I was with him? Of course I do. It’s the things themselves that feel a waste. I feel as if I should be doing something significant. Something that has meaning. The problem is that very little seems meaningful. So much of life consists of basic survival tasks such as eating, sleeping, chores, paying bills, which are essentially meaningless (or meaninglessly essential). Even more meaningless are the things we do to kill time, such as playing computer solitaire, watching television, or writing blog posts.

When I was out walking in the desert recently, I had a revelation of sorts. I decided that if my life mate still exists somewhere, if he still has being, if life doesn’t end with death, then life has an inherent meaning — whatever we do or think or feel, no matter how trivial, has meaning because it adds to the Eternal Everything. If death brings nothing but oblivion, then there is no intrinsic meaning to life. So a search for meaning is meaningless (except on a practical level. We all need to feel we are doing something meaningful so we can get through our days and even thrive). Life either has meaning or it doesn’t. Meaning isn’t something to find but to be. So, I’m going to search for meaninglessness, or at least accept it.

Such thoughts seem as meaningless and as trivial as the rest of life. They get me knowhere. (I’m leaving that typo, because . . . wow! So perfect!) But I need to find the bedrock of life, a foundation on which to rebuild my life, and meaninglessness seems as good a place to start as any.

The Silent Language of Grief

The so-called five stages of grief are so ingrained that most people think that’s all there is to grief. You deny, you get angry, you feel pain and guilt (and sometimes you bargain for the return of your loved one), you feel depressed, and finally, you accept. Sounds nice, doesn’t it? A brief checklist of stages, and then you get on with your life.

But grief is not that simple. First, those stages were described by Kübler-Ross to show how people come to terms with their own death and perhaps that of a loved one. It bears little resemblance to how people grieve after the death of a long time mate. Sure, we bereft have moments of anger, times of depression, some feelings of guilt, but most of us undergo a completely different set of stages, such as shock, bewilderment, hopelessness, loss of identity, anxiety, panic, isolation, loneliness, yearning. (For most of us, not anger or guilt but a vast yearning to see our mates once more drives our grief.) We also have physical changes to cope with that aren’t addressed in the Kübler-Ross model, such as immune system deficiencies, stress, dizziness, nausea, changes in brain chemistry, hormone disturbances, loss of equilibrium, and a higher death rate from all causes than non-grievers.

Still, whatever stages of grief a person goes through, there does come a time when you accept the truth deep in the marrow of your being — he is gone forever. You think this acceptance signifies the end of your grief, but do you want to know what often lies on the other side of acceptance? Heartbreak and tears. Sure, there are times of peace as you become used to your aloneness, but acceptance feels like another death, and it needs to be grieved. (It’s one thing to know he’s never coming back, and another thing to KNOW it. This acceptance is why the second year of grieving is often worse than the first year.)

Grief is a way of processing information. We know our loved one is absent, but is it possible to comprehend how very gone he is? To understand the nature and finality of death? Perhaps not, but by feeling the pain of separation and releasing it through tears, we can come to accept (however unwillingly) the idea that our loved one is gone from this earth.

It’s been sixty-nine weeks since my life mate — my soul mate — died of inoperable kidney cancer, and I still have bouts of tears. I was always a stoic and believed in facing reality, but this is one reality I cannot comprehend. I try to conjure him up in my mind, but he is forever out of reach. Forever gone.

According to Voltaire, “Tears are the silent language of grief.” When we have no words to describe our loss, when we have no way of comprehending the incomprehensible, all we have left are tears to communicate to us the depth of that knowledge and the depth of our loss. And so I weep.

If Cowboys Had Wept . . .

During the first months after the death of my life mate—my soul mate—I sometimes felt I wasn’t handing my grief well. I cried around others at the beginning (couldn’t talk about his death without tears streaming down my face) but later I did my grieving in private. Only I (and my blog readers) knew what I was doing to assuage my grief, so why would I think I wasn’t handling it well? Because I was weeping and wailing. In our present culture, tears are a sign of weakness, but who decided that weeping and wailing are inappropriate ways of relieving the incredible stress, pain, and angst of losing a long time mate? Such releases are necessary. Otherwise, where does the pain go? It either stays inside to cause emotional and physical damage, or it gets relieved by truly inappropriate behavior such as illicit drugs or misplaced anger.

Through thousands of movies and books, we are taught to be stoic, to hold back our tears, to be cool. Yul Brynner in The Magnificent Seven was the epitome of western cool, gliding across the film’s landscape without a single show of emotion. Cinematic heroes such as he could relieve their tensions and emotions through shooting rampages, hard liquor, and harder women. Perhaps, if these men had wept, the west (at least the mythological west) would have been a more genteel place.

Many people, when hit with the maelstrom of emotions we call grief, feel as if they are going crazy. Oddly, I didn’t, even though some of my actions and reactions would have made me a suitable candidate for a fictional madwoman. (Makes me wonder. Were those women hidden away in attics and tower rooms really crazy, or were they simply grief-stricken?) I knew I was sane, knew I was well adjusted, so any emotions I felt or things I did to comfort myself, by definition, were normal. Not having to worry about being crazy enabled me to deal with the pain itself rather than my reaction to it.

Like most people, I am afraid of pain, so I do not know where I got the courage to embrace the agony of losing my mate, to face it head on, arms open wide. But I did, and I still do. I don’t cry where anyone can see me, mostly because my tears are private but also because I don’t want to make people feel bad since there is nothing they can do about my sorrow.

And that, perhaps, is the real reason for tears being frowned on in our culture. We don’t want to be confronted with the outward show of someone’s grief because it forces us to confront our own weakness in the face of life’s (and death’s) enormity.

I Thought I Was Through With Grief, But Grief Wasn’t Through With Me

I’d planned to stop writing about grief. Someone I respect said, “There comes a time when it’s healthy for one to move on and drop the grief banner. It comes at different times for different people and it is an important part of the healing process.” I thought I was at that point. I’ve been getting on with my life, living each day as it comes, dealing with the loneliness, seeing the whole of our shared life rather than the terrible end.

For the most part, we had a good relationship. We were friends, life mates, and business partners. We helped each other grow. We never expected the other to fix our individual problems, though we often took each other’s advice. We didn’t cling, demand, or base our relationship on unrealistic expectations. Together we provided a safe environment where each of us could be ourselves. We supported each other in any way we could. And we enjoyed being together.

Long-term illness, however, skews a relationship. Over the years, our world kept getting smaller and smaller, trapping us in a life where neither his needs nor mine were being met. In that constricted world, small betrayals loomed large. Small disagreements seemed insurmountable. And there was guilt galore. After he died, I worked through all of those leftover problems, came to a greater understanding of our relationship and what his ill health had done to us, and finally realized we both acted the only way we could in such an untenable situation. I also dealt with the soul searing pain of loss, with the confusing physical symptoms. (Like falling in love, falling in grief causes changes in hormones and brain chemistry, and creates incredible stress, but unlike love, you can’t regulate those changes with sex. Unless you’re into necrophilia.)

I thought I was through with grief, but grief wasn’t through with me. There was no great realization, no lightning bolt of discovery, just the truth settling into my soul: I’ll never see him again in this lifetime.

Seems an obvious conclusion, doesn’t it? I’ve been saying for fifteen months that he’s gone, though I always accompanied the statement with a bewildered remark about not being able to fathom the sheer goneness of him. And yet somehow, someway, in the dark recesses of my mind, I felt as if we were on a break, as if I’d come to take care of my father for a while, just as I did for my mother, and soon I’d be going back to our life. It didn’t help that, when I drove away from our home for the last time, his car was sitting out in front as it always did when I left. (I’d donated it to hospice, and they hadn’t yet come to pick it up.) Nor did it help that I’d made this same trip, stayed in this same room several times before.

I’ve often listened for the phone, hoping he’d call to ask me to come home as he’d once done, but now I know the truth, I feel it.

Eleven months ago I wrote: I dread the time it hits me deep down in my soul that he is dead, that I will never be going home to him, that I will never see him again. Well, this is that time. There are no more issues to work through, guilt to suffer, or blame to lay. No more feelings of being rejected or abandoned (as if it were his choice to leave me). There is no more stress or gut-wrenching pain. Just pure and simple heartbreak. And silent tears.

Grief Group Update

In my last post, I told you that I got kicked out of my grief support group. The facilitator cancelled the meeting this week to give us time to “self-evaluate.” If we are functioning in the normal world, we are not to return. Since we didn’t want to leave the newest member of the group without support at this critical time, we went on a picnic during the regular meeting time. Chances are, if the facilitator hadn’t said anything, several of us would have left the group in the next couple of months anyway, but this whole situation has brought us closer together. Like disaster survivors.

We’re all going to the scheduled meeting next week. (What’s he going to do? Give us grief? That doesn’t scare us. We’ve been there.) We want to find out the truth, whether the directive was instigated by hospice, by the facilitator himself, or in response to a complaint. And then we’ll see what happens.

Perhaps I have stayed with the group longer than absolutely necessary, but even if I’m just there to be around those who understand, what’s wrong with that? My grief is dissipating, (though I am troubled by an upsurge in tears the past three weeks).  Mostly I feel like I’m disappearing from life. Don’t feel quite real.

The truth is, I’m functioning well in the normal world (except for the small matter of being unable to write). It’s the abnormal world of grief I have problems with.

Driving My Grief

It might seem as if I am making zero progress or even backsliding with this upsurge in grief blogs, but writing my book on grief is bringing it back.

Do you want to know the sum total of all I have learned in the fourteen months and fourteen days since my life mate died? Here it is: you can get through grief. You can learn to live without him. You can find happiness again by living one day at a time. But the dead are still dead, and nothing you do can ever change that.

That is what drives my grief. Not the self-pity that sometimes breaks through my wall of courage, not the sustained note of sadness that keens beneath my consciousness, but the awareness that he is gone. He no longer cares that he suffered for years with an ailment the doctors couldn’t diagnose until it was too late. He no longer cares that he will never again watch any of his favorite movies or read a book. He no longer cares that he will never go on another road trip. He no longer cares that he will never again walk or talk or eat or smile. But I care.

Perhaps it is foolish of me still to care for and about someone who is beyond caring, but I cared immensely for him while he was alive, so why would I stop now that he is dead? He may no longer have feelings, but I do. Once he was alive and now he is not. Why shouldn’t I care about that?

There are many books on the market about how to get through grief quickly, how to get your life back on track, how to put the dead out of your head and take what you can from life. I know there is an element of self-pity when it comes to grief, and those books address that issue. But self-pity is not all there is to grief. Grief is a vast network of emotional, spiritual, and physical reactions, and part of that is sorrow on behalf of the one who died.

If grief is just about me (and perhaps someday I’ll get to the point where it is only about me), then it’s not my place to care about my life mate being gone from this earth. But if life is worth living, how can I not care that it is being denied him?

The corollary is, if he is the one who got the better end of the deal, if he truly is in a better place, then why am I still here? But I’d just as soon not dwell on that.

Surviving a New Stage of Grief

I’ve been working on my grief book, typing what I wrote immediately after the death of my soul mate. Suddenly it seems as if the past sixty-two weeks have melted into oblivion and I’m back there again, newly bereft, wandering in a fog of pain, wondering how to cope with the massive changes in my life. I know I have come a long way because the revisited pain seems bewildering to me. Did I really feel all that? Did I really survive such a terrible time? Apparently I did, because here I am, mostly back to normal. I’m still lonely, though, and the loneliness surges unbearably at times.

Loneliness is the newest stage of my grief, as it is for so many who are coming out of the first numbing months of grief. I don’t know how to cope with this vast loneliness, but I didn’t know how to cope with any of the other stages of grief, either. I just embraced the pain, the anger, the sorrow, and waited for a gentler time. So that’s what I will do with the loneliness. Embrace it and wait for it to subside. Waiting is not all I’ve been doing, though. I’ve been making an effort to be with people, which helps, and so does writing. I’d forgotten how quickly the hours go when one is immersed in words.

I still wonder if anyone will want to read this grief book when it is published. It is so intensely personal. And painful. Yet people who have read my blog posts about grief have found some comfort in them, so perhaps this book will serve the same function. Even if no one is interested in reading my daily struggles to come to terms with the death of my mate of thirty-four years, the book is important to me. It’s a way of binding my grief into a neat bundle so I can get on with my life, though I have been told one never truly gets over such a loss. But we do survive, and that is ultimately what my book is about — surviving grief.