Learning to Deal With the Real World

It seems strange to have to learn to deal with the real world at my age, but for more than half of my life, I didn’t have to deal with the world as it is. My life mate/soul mate and I created our own world of peace and accord. We always wanted the best for each other without ever a hint of envy or resentment. We helped each other. We listened to each other. We cared for each other and took care of each other. We shared values, income, responsibilities without counting the cost or worrying about who got more than their share. In fact, we often worried that we were taking more than we gave.

It wasn’t like that at the end, of course. Long-term illness skews things, so during his last years, there was often tension and frustration as our lives started to diverge — he to death, me to life alone. We could feel the disruption of our world, and though we were under tremendous stress and occasionally gave in to fits of pettiness, we mostly managed to deal peaceably with each other. To others, however, we appeared to be in perfect accord. During one of their visits, the hospice nurse turned to the social worker and said, “I don’t think they have any idea how much they love each other.”

What we had didn’t feel like love, and yet, what else could it be, this creation of a world where we each gave whatever we could without stopping to count the cost? We didn’t have an easy time of it — so often life took disastrous turns, but still, we were always there for each other.

And now we’re not.

He’s . . . somewhere (or nowhere) and I? I’m here, muddling along as best as I can in this alien world. The world is alien in part because his absence has created a black hole into which so much light has disappeared; in part because I am alone without someone listening, caring, helping; in part because it truly is alien. Though people often say, “We’re all in this world together,” they don’t mean it. People want things and they pursue those things with a passion. Isn’t that what most people think life is about? Finding someone or something to be passionate about? But here is the conundrum — passion takes what it wants and doesn’t count the cost to others. (That is why passion is such a great story driver.)

He and I used to play games where the goal was not to win or lose, but to come out evenly matched. We hated games where one person won everything and the other lost everything. It seemed too cruel. Neither of us wanted to lose, but we didn’t want the other to lose, either, because we knew how much losing hurt. (It probably won’t come as any surprise if I tell you we created our own games.)

We never argued. Well, there was that once, six weeks before he died, but I hate thinking of that. I understand now the horrendous pressure of our lives, but for so long all I could think of was how horrible I was for having my first fight with my mate six weeks before his death. (I understand it now, but I still can’t think of it without tearing up. I never wanted to be that woman.) But for more than three decades, if we disagreed, he’d state his position and I’d state mine (or vice versa). If we couldn’t come to a resolution, we’d walk away (sometimes in a huff, sometimes in frustration). The next day, he’d bring up the subject again, conceding that I was right. Of course, by then I’d have mulled over what he said, and I’d concede that he was right. So we were back where we started. The best thing about it is I knew he’d thought about what I said, he hadn’t just blown me off by walking away.

When he died, my world of accord died, too, and now I live in the world everyone else does — a world where some have way too much and some have way too little. A world where passions tear people apart as often as they bring them together. A world where competition is rampant, where it’s not enough just to win, but also to make sure others lose. A world where small disagreements escalate into battles. Admittedly, this is what the world has always been like, but I didn’t have to deal with it.

And now I do.

Two Years and Two Months of Grief

I never expected to feel so sad two years and two months after the death of my life mate/soul mate, and I never expected to still be so easily brought to tears. But then, I never expected most of what I’ve experienced with grief, especially since I tend to be more contemplative and stoic than emotional. As I’ve learned, though, grief might manifest as emotion, but it is so much more than that — it’s a restructuring of the world as we know it, a reconfiguring of reality. And that takes a lot of energy, both mental and physical. And it takes time. A person who was a major part of our life is gone, ripping a hole in our reality, and our brains are struggling to patch the hole (or at least to figure a way around it), which causes an incredible amount of stress.

Part of that restructuring is a new consciousness of death. We all know we are going to die, but after the death of someone we are profoundly connected with, we KNOW deep within our psyches. This knowledge makes life on Earth seem at once more significant and less vital (or do I mean more vital and less significant?), which is why so many of us bereft struggle for meaning. Some of us will eventually settle back into every day life, but for the rest of us, life will always seem a bit off, as if a part of us knows we are aliens in an alien land.

Mostly, I’m doing okay. If we were to meet, you’d have no idea of my ongoing sadness. I don’t try to hide it, it’s just that the sadness has become such a part of me that it doesn’t impede my living. I can smile and laugh and chat as if everything were fine, and it is, for that moment. But when I am alone and not focused on a task, sorrow percolates to the surface. Sometimes our life together seems very far away, as if it were only a dream born of loneliness, but this ongoing sadness reminds me of the truth — I once was with someone I loved deeply, and now I’m not.

I never feel his presence, but his absence hovers beside me as if it were a living thing. When I make a salad, I am aware that he is not washing the vegetables for me. When I am at the grocery store, I am aware that he is not helping pick out what we need. When I am exercising, I am aware he is not in the room. When I need someone to talk to, I am aware he cannot respond. When I watch one of his many video tapes, I am aware he is not sitting next to me. Every time I use something of ours, even something as inconsequential as a spoon, I am aware that he has no need of the article.

I don’t purposely think of such things. In fact, the awareness is not a thought. It’s just that everything I do and everything I own echoes with his absence. Maybe someday even the echo will die away and all I’ll have of our shared life are fading memories. But no matter how I feel or what I forget, I’ll always be grateful that an extraordinary man shared his life with me.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Grief: Haunted by the Hard Questions

One of the more confusing aspects of grief after the loss of a life mate, a child, or someone we were deeply connected to is that we are haunted by the hard questions. Who are we? Why are here? Is this all there is? Where did our loved ones go? Will we see them again? What is the meaning of life, and probably most haunting of all, what is the meaning of death?

Many of my fellow bereft read everything they can find about such matters of the spirit, but I didn’t — I’d spent years on a quest for truth and reality, and I’d come to believe that God is the spirit of creativity that fuels the universe, and we are each a part of that creativity. I was content believing that our spirit/energy returned to the whole . . . until my life mate/soul mate died. Then all of a sudden, I didn’t want that to be the truth. I wanted him to continue existing as him, as the man he was.

I do think there is a deeper reality, I’m just not sure our conscious selves are a part of it. We are a product of our genetics, our hormones, our brains (anyone who has had to cope with an Alzheimer’s sufferer or a loved one who had cancer in their brains, and found a stranger in that familiar body, knows how much the brain controls who we are). So what  survives, if anything? The part of us we never knew — the un-sub-conscious? If so, how would we know who we were after we were dead? Is it just the energy in our bodies that is released? If so, for sure we would not know who we were.

On the other hand, without some sort of afterlife, life simply does not make sense. What’s the point of it all? To survive? For what — more survival until there is no more survival? To help others? Why? So they can survive? For what?

If there is life after death, what do you do with eternity? You have no ears to hear music, no eyes to read or watch a movie, no legs to walk, no hands to caress another, no mouth to talk, no brain to think. Sounds like a horror movie to me. And what will we do if we meet again? Bask in each other’s light? That would get boring after a minute or two.

When we met — my soul mate and I — I still believed in a cosmic plan, and I had the feeling that he was a higher being come to help me on my quest to the truth. But now? I no longer believe there is a universal truth, and I don’t think he’s waiting for me, though I act as if he is. It’s better than believing that he is gone forever.

And perhaps he does still exist in some form. What do I know? One thing I have learned from my grief is that a human life is a spectrum. You don’t notice it so much when you are both alive, because you are both in the moment, both always the people you have become and not yet the people you are becoming. But when one of you dies, his becoming ceases, and you see his life as a whole. The person he was when you met is every bit as alive in memory as the person he was the minute before he died. The youthful man, the middle-aged one, the healthy one, the sick one are all merely spaces on the spectrum of his life.

It’s possible the spectrum of a human life is the same sort of spectrum as light — beginning long before the visible part appears and ending long after the visible part disappears. Of course, the non-visible parts of the electromagnetic spectrum aren’t light but sound and radiation and other invisible waves, so whatever exists outside of the visible human spectrum might be something completely different from we can ever imagine.

It’s also possible that our bodies are like television channels, receptors for certain wavelengths, so that our “souls” actually reside outside our bodies, but still, the selves that we know are defined by life in our bodies. So, again, we come back to the same question, what of us survives?

Grief is an isolating experience, made more so by our spiritual quest. While our family and friends continue on their same daily path, we find ourselves going in a completely different direction. There are no answers to our questions, but still, they haunt us, and we try to figure out a way for it all to make sense.

But life will never make sense because we are still here and our loved ones are gone. Where is the sense in that?

The Two-Year Anniversary of the Worst Day of My Life

The worst day of my life was not the day my life mate/soul mate died. That particular day was sadly inevitable, one I actually had looked forward to. He’d been sick for so long and in such pain, that I was glad he finally let go and drifted away. After he died, I kissed him goodbye then went to get the nurse, who confirmed that he was gone. She called the funeral home, and I sat there in the room with him for two hours until they finally came for him. (They came in an SUV, not a hearse. And they used a red plush coverlet, not a body bag.) I might have cried. I might have been numb. I don’t really remember. All I know is that I sat there with him until almost dawn. I couldn’t even see his face — they had cleaned him and wrapped him in a blanket — so I just sat there, thinking nothing.

The worst day of my life came fifty-five days later, exactly two years ago. I spent all day cleaning out his closet and drawers, and going through boxes of his “effects.” He had planned to do it himself, but right before he could get started, he was stricken with debilitating pain that lasted to the end of his life, and so he left it for me to do. I would not have undertaken the task so early in my grief, but I had to leave the house where we’d lived for two decades and go stay with my 95-year-old father, who could no longer live alone.

I knew what to do with most things because my mate had rallied enough to tell me, but still, a few items blindsided me, such as photos and business cards from his store To Your Health (where we met). Every single item he owned was emotionally laden, both with his feelings and mine. The day was like a protracted memorial service, a remembrance of his life, a eulogy for “us”.

How do you dismantle someone’s life? How do you dismantle a shared life? With care and tears, apparently. I cried the entire day, huge tears dripping unchecked. I have never felt such soul-wrenching agony. I’ll never be able to do anything else for him, so the work and my pain was my final gift to him. I was glad I could do that one last service, but I sure don’t want to ever go through anything like that again.

The only good thing about living the worst day of your life is that every day afterward, no matter how bad, will be better than that day.

I’m not particularly sad today — the sadness came yesterday. Despite it being Saturday, my sadder day, and a day of sporadic tears, I woke with a smile. I’d dreamt we were cleaning out the house (which is odd considering that I did not remember until afterward that today was the anniversary of when I went through his effects). In the midst of the usual chaotic dream images, there was one short clear moment. We were sitting side-by-side. He smiled at me, kissed me gently, and I rested my head on his shoulder.

This was the first time in almost two years that I’d dreamt about him. It was lovely seeing him again, if only in my dreams.

There Are Worse Things Than Not Being Happy

The other day I saw a quote on Facebook: Just because I am laughing, it doesn’t mean I’m happy. Just because I’m smiling, it doesn’t mean I don’t want to cry. I just believe in not emphasizing the negative.

There are worse things than not being happy — living a lie, for example. According to a team of researchers led by Iris Mauss at the University of Denver, “Valuing happiness is not necessarily linked to greater happiness. In fact, under certain conditions, the opposite is true. Under conditions of low (but not high) life stress, the more people valued happiness, the lower were their hedonic balance, psychological well-being, and life satisfaction, and the higher their depression symptoms.”

In other words, living a lie and pretending to be happy is exhausting and stressful and can make you even more unhappy.

Other studies have shown that we are seldom happy in the present. We are happy in retrospect. Think of some of the happy times in your life. Back then, were you aware you were happy? Chances are, you were involved in living and didn’t bother to stop to think how you were feeling. Happiness is elusive. If we go chasing it, we don’t always find it. If we stop chasing it, happiness often finds us. And even if happiness doesn’t find us, being unhappy is not necessary emphasizing the negative.

When my life mate/soul mate died, I had no intention of sharing my unhappiness here on this blog. I’d intended to keep it private, but I became so frustrated with writers whose characters blithely went on with life despite devastating losses, that I figured someone ought to tell the truth about how it feels to lose the one person who connects you to life. Because of my grief writing, I gained support, friends, and a mission — to tell people that it is okay to grieve, that it is important to grieve, and that they will survive. If I had kept my grief to myself and pretended everything was okay in my life, I would have missed out on these positive results, and in the end, I would have been even more unhappy.

It has also been a blessing to be able to reach out to other bereft. Grief is so isolating that it brings comfort to know that others have felt this same sort of all-encompassing loss, and the only way to do that is to be vulnerable and show the hurt. This is not being negative. It is being realistic.

Being realistic sometimes seems pessimistic, sometimes optimistic, but it is neither. It’s seeing the truth of the matter. A pessimist magnifies the negative side of the truth, and the optimist magnifies the positive side, but neither are being realistic. Nor does being realistic adversely affect the outcome of a situation, because a realist knows that no matter how bleak the future looks, there is always a possibility that things will work out.

There is a chance that I will find happiness in the future or it will find me, and if not, well . . . at least I won’t have the stress of living a lie.

When You Lose the Person Who Connects You to the World, What do You Become?

“When you find that one person who connects you to the world, and that person is taken from you, what do you become then?” —John Reese (Person of Interest)

John Reese might be fictional (at least I assume so; I had never of Person of Interest until I saw this quote) but his question is one many of us bereft are pondering. When that one person is first taken from us, we wonder how we are going to survive. We never figure it out, but still, the days pass, then the weeks, months and years, and we realize that somehow we did it. We survived. Then the question facing us is what do we become.

I’m still waiting to find out the answer. So far, I seem to be just . . . me. Sadder, but me. I keep hoping that grief will bring some sort of mind/soul expansion that will allow me to become . . . well, something other than the same person I have always been. I hope for wisdom, perhaps a glimpse into the eternal mysteries, maybe a greater understanding. But so far, such experiences remain beyond my grasp.

I am trying to re-establish a connection to the world, though. For a long time, I felt as if I were balanced on one foot, the other suspended above the void. Occasionally I still have that stepping off into nothingness feeling, but mostly I’ve been trying to concentrate on actually being on Earth. To notice my connection to the world. To feel the ground beneath my feet. To be aware of my breath mixing with the air around me. To feel the wind against my face and the sun against my back. All these things connect me to the world whether I feel connected or not.

During the past few days, I’ve noticed that I’m letting go of the past, or at least feeling an easing of its grip. I haven’t wanted to let go of the past because in the past I was loved. I had mate — a life mate, a soul mate, a play mate. In the past I wasn’t alone. Nothing can bring back the past, and to be honest, I don’t want to bring it back. In the past, my mate was miserable, in pain, dying by inches every day. But without the past, or my connection to the past, what will I become?

Or is that the wrong question? Perhaps the important question is not what I will become, but what will I be at any given moment. If I try to live each moment as it comes, whether it comes with tears or a smile, with heartache or peace, then perhaps all these moments of being will lead to becoming.

Weeping For Those Who Are Newly Born Into The World Of Grief

Someone stopped by my blog this morning to comment that her husband passed away fourteen days ago, and I started crying. I wept for her, for me, for all of us who have had to deal with the soul-breaking and heart-shattering pain of new grief. (Sometimes the only way I had to keep from bursting with the pain was to scream. I’d never screamed before, but I often screamed during the first weeks of grief.)

I don’t know how any of us survive such agony and angst, but somehow we manage to keep taking one breath at a time. As the months pass, the pain does lessen, though according to others further along in the grief process, the sadness never completely goes away. And always, we revisit grief on the anniversary of the death.

There are so many sad anniversaries for me to remember now. May 24. July 23. July 26. March 7. March 27. October 14. All days when someone who was very loved died and left a grief-stricken soul mate behind. I’ve seen much pain these past couple of years from my fellow bereft but even more courage. It takes courage to continue to live, courage to struggle to accept the changes that death brought, courage to strive for understanding, (especially for those who wish to be done with life).

Sometimes I see only the pain of grief — eyes blank, bodies tensed, hearts bleeding — but sometimes I am privileged to see the light shining through the grief as the bereft find new hope and new meaning.

Where does grief lead us? I don’t know. People often equate grief to a journey, which makes us think we are going somewhere, but grief seems to be more of a process, turning us inside out, stretching our minds, souls, psyches so that we can learn to live with our new reality and find peace (and maybe even happiness) alongside the continued sadness.

Despite whatever dubious benefits and insights I have gained through the experience, I would not wish this process on anyone, and so I weep for those who are newly born into the world of grief.

Grieving the Nothings

I’m gradually moving away from the influence of grief. I’m not moving away grief itself, since there is a good chance that somewhere deep inside I will always be crying (I can feel the gathering tears even when I am not overtly sad), but I am moving away from grief’s influence. I can think clearly again, though the answers to many of my questions about life and death and the meaning of it all remain unanswered. I can focus without being distracted by thoughts of my deceased life mate/soul mate. I am not revved up with anger or guilt or adrenaline. I don’t feel quite as soul-shattered or heart-broken as I did at the beginning, and my yearnings for him are not quite as vast. His absence looms almost as large as his presence once did, but I am getting used to working around the void. I am also getting used to the unwelcome knowledge that I will never see him again in this lifetime, never hear him talk, never be warmed by his smile. (I’m just getting used to the knowledge that I will not see him; I will never get used to the fact.)

But . . . now that the big losses are a bit tamer, the small losses are becoming more apparent. I have no one with whom to share a moment with. You know what I mean — you’re watching a movie and, after a particularly touching scene, you turn to each other and smile. If I turn, no one is there. I sometimes look at his photo at such moments, but there is not much “sharing” when it is between you a piece of tinted paper.

I was also going to say I have no one to share anything with, but that’s not strictly true since I do have people I can share major happenings with. What is true is that there’s no one to share nothing with. There are so many little nothings in a day — miniscule victories or insignificant happenings that aren’t worth talking about, but that you want to mention anyway. And there are times when you’re sad or lonely or restless, and just want a moment’s connection before continuing your daily tasks. You can call someone perhaps, or email, but it’s not the same thing. By the time you make the connection, the moment of nothing has become something.

I also have no one to share the small incongruities and ironies of life with. Once walking in the desert, I saw a television on the road. So totally incongruous, it seemed as if it were an art piece in the making, and I had no one to tell about it in passing.  Today I went to the dentist to have him check on a small matter, and he told me to eat lots of sticky candy. The irony of the advice tickled me (I mean, really, when was the last time your dentist told you to eat lots of sticky candy?), and I had no one to tell that to in passing, either.

Come to think of it, there is no “in passing” anymore.

I made it through some of the major traumas of grief. Now I have to try to make it through the nothings.

Wondering About Life And Death And The Meaning Of It All

I don’t think I had survivor’s guilt after the death of my life mate/soul mate, but I do feel bad that I’m leaving him behind. I get a second chance at life, new friends, new vistas, new experiences, but he has been denied that. And in fact, he was denied all those things long before his death since his protracted dying kept him from doing much except struggling to get through one more pain-filled day.

He often told me that when he got incapacitated, I had to put him in a home and walk away. Just forget him. I know he’d want me to do the same thing now that he is dead, but I didn’t walk away when I had to put him in the hospice care center, and I can’t walk away now, and for certain I can’t just forget him.

But perhaps I am looking at the situation backward. His being dead is still the thing that drives my sadness — sadness not just for me but for him. And yet . . . what if it is he who left me behind? Perhaps he has gone on to a wondrous new life, in which case my sadness on his behalf is misplaced. And maybe none of this has anything to do with me. Maybe it’s not up to me to worry if he was cheated or not, or even to wonder if he’s in a better place. Despite our deep connection, he was still his own person. Maybe I’m poking into something that is his alone.

Just as I have to accept that my life is mine alone now.

About a year before he died, I hugged him and accidentally touched his left ear. I know now cancer had metastasized all the way up his left side and into his brain, but at the time, all I knew was that he pushed me away, wincing in agony. Something shut off right then, and a voice deep inside me said, “He might dying but I have to live.” For all that year, we went our separate ways, he to dying, me to living. Then, six weeks before he died, he made the connection with me again. He needed to talk about what was happening to him so he could gather courage to face what was coming, and during that daylong conversation, I remembered why I fell in love with him all those years ago.

Because of that disconnected year, a year where I felt dissociated from him and our life, I didn’t expect to grieve, but here I am, two years and seven weeks later, still struggling to deal with the wreckage of our shared life, still sad, still wondering about life and death and the meaning of it all. When life makes sense, death doesn’t. When death makes sense, life doesn’t. It would be nice to talk to him and compare notes about what we’re both doing, but so far he’s remaining silent.

One thing has changed recently. In between the moments of angst and wanting it all to be over with, in between the pinchings of grief and not caring what happens to me, that determination of several years ago is making itself felt.

He might be dead, but I have to live.

I just wish I knew how.

Is a Salinger-Like Reclusiveness a Viable Option in Today’s Book World?

Here’s an interesting dichotomy — there are so many books being published today that most will never sell more that 100 or 150 copies in a lifetime, yet an article in the New York Times says that in the e-reader era, writing one book a year is slacking. Name brand authors who once wrote one book a year are now writing two, and those who are sticking to a one-a-year schedule are also writing short stories and novellas to keep their names in view. To quote Lisa Scottoline from the NYT article, “the culture is a great big hungry maw, and you have to feed it.” And it’s not just name brand authors. Self-published authors are feeding the maw, too, sometimes with three or four or even six books a year.

Seems silly to me — authors scrambling to write extra books while many worthwhile books from small independent presses are going unread. There should be a way of evening things out, but people obviously prefer to stay with authors they are comfortable with. How else to explain the James Patterson phenomenon? Twelve books in twelve months? Yikes. Granted, some seem to be ghost written (or should I say guest written?), but still that is an incredible output considering that most people don’t read that many books in a year.

I’ve always loved books — in fact, as a child all I ever wanted when I grew up was time to lose myself in books — but now I’ve mostly lost my taste for reading. Too many books are shallow, even the well-written ones, and no wonder — authors who once had the time to write thoughtful books have to spend more time racking up the words and less time thinking. For me, a story isn’t enough. I want to be tantalized with insights, new ideas, different ways of viewing the world. I realize this is not the wave of the future. How deep can the ideas in a novel be if they are intended to be read on a phone or as an interactive ebook that’s enhanced with video, author interviews and social-networking applications?

I’ve never been one to follow the crowd. Sometimes I don’t even know where the crowd is. So it should come as no surprise that I don’t intend to increase my output of writing. (Though, come to think of it, any writing other than blogs would increase my output.) I couldn’t write more even if I wanted to. I am a slow writer. Even at my fastest, I can only write one book a year, and that doesn’t include editing and copyediting.

I am getting an interest in writing again, though. Sometimes I think about the books I’ve started and wonder what will happen to the characters, and just today I figured out how to develop my grieving woman book, the one I started for NaNoWriMo in 2010. It should be not so much a book about grief but about a woman’s journey into self-discovery, and so I should start the story before her husband dies, because it is during his long dying that she first loses herself.

This could be one of those books that takes a lifetime to write, since perhaps I will have to live the character’s life first. Or maybe I need to write the book as if I am writing my own future, and see what I can make of myself. Either way, the book would not be written in a month or even a year. It would take longer than that to glean the necessary insights.

According to the NYT article, “Publishers also believe that Salinger-like reclusiveness, which once created an aura of intrigue around an author, is not a viable option in the age of interconnectivity.” Luckily, I am neither self-published nor published by a major publisher, so I have the luxury of being as reclusive as I need to be in order to write whatever books might be in my future. (Shhh. It’s our secret. Don’t tell my publisher, Second Wind Publishing, I said that.)