I Am an Eleven-Month Grief Survivor

Eleven months ago, my life mate — my soul mate — died of inoperable kidney cancer. He took a final breath, his Adam’s apple bobbed twice, and then he was gone. It was a silent night — no storm lashing out in anger, no rain falling like tears, just the quiet passing of a quiet man. Nothing remained of him at the end but skin stretched around a skeleton without enough weight to make a dent in the bed, yet he left behind a hole in my life and my heart that will never be filled.

We’d been together thirty-four years. In comparison, eleven months seems like a mere blip in time, yet those few months contain an eon of sorrow and pain. He’d been dying for so long that I was glad when his suffering ended. Because of it, I truly did not expect to grieve, and I didn’t at first. I just sat in the room with his body and waited for the funeral director. The people at the hospice care center wanted me to finish the night there, but I couldn’t stay, so after they removed his body (not in a body bag but covered with a red plush blanket — he would have liked that), I headed back to the house. (You notice I don’t say I headed back home? He was my home. The house was just a house.)

I’m not sure when the grief hit me, but when it did, it slammed into me with such force I have not yet recovered my balance. It wasn’t a single body slam — the grief continued to grow for many weeks, until it all but consumed me. It didn’t consume me, of course. I managed to do all the terrible tasks of death: the grim paperwork, the final bills, the disposition of his effects. I’ve even managed to get on with my life. I’ve made friends. I’ve gone to museums. I take care of myself (most of the time, anyway. I still don’t always eat right, don’t always exercise, though I do walk for miles almost every day.)

On meeting me, you’d never know of my sorrow. I laugh, talk, joke, act like a normal person. And I am normal. Grief is now part of my normalcy. Every Friday night and Saturday, it descends on me. (Though upsurges of grief can occur any time without warning.) I cannot go to sleep on Friday nights until after 1:40 am, the hour of his death. Even if I don’t remember, my body does. And then, there is my time of the month — the date of his death. The 27th.

Yesterday I got an email from my sister: Can I tell you something I just love about you? I love your sense of irony, your talent for observation of seemingly insignificant details, and your almost-spiritual gift for connecting dots across time and distance. I thanked her, telling her I so needed to hear something nice, and she responded: Well, considering it’s Saturday, and considering the time of month, you just can’t hear enough nice things today, that’s what I’m thinking.

My time of the month. That used to mean something completely different, but now it means only this: I survived another twenty-eight or thirty or thirty-one days without him.

Surprised by Grief

I continue to be surprised by the intensity and depth and variability of grief. It’s been more than ten months since my life mate — my soul mate – died. Most days now I feel normal, but “normal” for me is his being safe at home, perhaps in the other room, perhaps outside shoveling snow or watering our trees. The renewed realization that he is gone from this life still brings me raw pain. I’m getting used to being alone — in some ways, that aloneness feels normal, too. Until I met him, I’d always expected to be alone, and so part of me is looping back to that earlier life when I had only my concerns to worry about.

Still, despite that normalcy, there are days when it feels as if he just left, as if he walked out on me (or I walked out on him) and it’s a matter of time until we reconcile our differences. I don’t know where such thoughts come from — we had no major differences. Well, except for the soul-shaking differences that came when our journeys diverged — his into death, mine into continued life.

I mentioned before that love and grief were the bookends of a relationship. Because of its intensity, the ability to change a person’s life and outlook, and the all-consuming focus on another person, grief seems to mimic falling in love, though in a bleaker, blacker, lonelier way. And like love, grief stirs up your depths, making you realize you are more than you ever thought you could be. As I’m slowly beginning to define my life solely by me, not by “us”, I’m seeing another similarity. When a couple embarks on a life together, they learn to depend on each other, to find ways to complement each other, to meld their likes and dislikes, their hopes and frustrations into a workable emotional environment for both parties. When half of a couple dies, the person left behind has to find a way to unmeld. To go from thinking about both of you, to thinking solely of yourself, to depending solely on yourself. It’s hard and painful and feels futile at times. (Because, you think, if life is worth living, he would still be here.)

It’s like a teeter-totter. When one person leaves abruptly, you crash to the ground. You do learn to play by yourself, but you are always aware that the other side is empty. Gradually, you get used to it, though — or at least resigned. And that’s where I am, most of the time. Resigned.

I’m even getting resigned to that great yearning I once talked about, especially since it’s nothing new. Looping back to the time before I met him, when I was young, I remember being consumed by yearning, though I never knew for what. I didn’t feel it when we were together, but I feel it now. Could that yearning have been for him? Or could our being together have masked the earlier yearning? Just one of the many questions stirred up from the depths by grief.

The First Terrible Anniversaries of Grief

The first anniversaries, holidays, and special days after a loved one’s death are difficult because we are so intensely aware that the person is no longer here to share in the joyous occasions. This is especially true if that person is a spouse, a life mate, a soul mate. Whatever traditions we developed together become obsolete when only one of us remains to carry on. The pain, the yearning to be together once more can be devastating on these days.

If those first anniversaries do not mark joyous occasions and celebrations but days of horror, the pain is oh, so much worse.

This has been a particularly difficult month for many who lost their mates because Valentine’s Day is shoved down our throats. Wherever we go, we see images of happy couples. We remember we once were loved, once were part of a couple, and now we are not. Oddly enough, my upsurge in grief this month has nothing to do with Valentine’s Day. We were not a romantic couple, did not see the point of following the crowd and celebrating a day just because someone once decided we should. We ignored the day, hence it has no baggage to bring me pain. In fact, today was a good day for me — I had lunch with a couple of friends from my grief group. We have graduated from the need for the group but still need the companionship of those who have experienced the same losses, so today we initiated our own little social group. There was no maudlin talk, just the normal pleasantries of friends sharing a meal.

Still, this has been a dreadful month for me, a month of painful anniversaries. A year ago last week, my life mate — my soul mate — bent down to pick up something off the floor and pain hit him so severely, it sent him to bed for the rest of his life. A year ago next week we got the diagnosis. At the beginning of March, when he saw a doctor for the last time, the oncologist told him he had three to six months to live. Two days after that, we signed up for hospice. Three weeks later, he died.

I hadn’t thought of these days as anniversaries, so I did not steal myself for the onrush of grief. But grief has a schedule all its own, and it came for me. Again. How can his descent into these final stages of dying have begun a year ago? Those days seem so close that if my arms were long enough, I could reach behind me and touch him. Hug him. Keep him safe.

Today, thinking about his last weeks of unendurable pain, I feel self-indulgent for all my yearning to have him back. How could I ever subject him to that again? And yet, like a child, I weep for what I cannot have. I wonder what, in my youth or childhood, I did that was so terrible to deserve such punishment. I listen for the phone, hoping he’ll call me and tell me he forgives me and I can come home.

Grief is irrational. It stems from a part of us that has no logic. I know I did nothing to send him away. I know he is never going to call me again. I know I am not being punished for some long ago transgression.

And yet the grief keeps pounding at me during this time of terrible anniversaries.

Will Traditional Ways of Selling Books be Effective in the Ebook Era?

I participated in a discussion with several authors the other night concerning ways of promoting our books. For once, I didn’t say much, just sat back and listened to their suggestions for getting book reviews, getting the publishing company recognized by RWA and MWA, getting their books in stores. What struck me was that these were all traditional ways of promoting books. There was not a single mention of online promotion, of alternate means of promoting.

I’m the first to admit that online promotion doesn’t sell many books if you’re an unknown, but to be honest, I never said that it did. For me, online promotion has always been about establishing an internet presence. What I know about marketing books can fit on the head of a pin and still leave room for a host of dancing angels, but I figured that once my books reached a certain critical mass of reviews, sales, and readers (fans?), momentum (via the linked nature of the internet) would cause sales to mushroom. Hasn’t happened, but that’s the theory, anyway.

On the other hand, do the traditional ways work? Or, more importantly, will the traditional ways of promotion continue to work as ebooks supplant print books? I never thought that would happen —  too many of us prefer the comfort of a print book —  but recently two bits of information made me rethink my bias. First, the day after Christmas, Barnes and Noble sold a million ebooks. Second, a recent poll found that college students don’t read books. I’m not sure all those people filling up their ebook readers are actually going to read the books they download, but the fact is, ebooks are selling.

Does it matter that our books aren’t in stores if people are going to buy ebooks? Does it matter that we don’t have offline reviews if people will have to go online to buy the books? Does it matter that we don’t have book signings if there are no print books to sign? Perhaps I’m looking too far ahead. Perhaps print books won’t disappear until long after we’re moldering in our graves, but the ebook era is approaching faster than we imagined. We need to find news ways of promoting to meet the challenge. Oddly enough, blog tours are already so prevalent as to be almost useless. But what’s beyond book signings, reviews in magazines, bookstores? What’s beyond blogging, Twittering, Facebooking? That’s what we need to be considering.

Advice to the Newly Bereft

A couple of newly bereft joined the grief group I go to, and seeing how lost and bewildered they are showed me how far I have come these past months. I’ve reached a modicum of peace (though I still have moments of intense grief) and I don’t feel quite so lost and bewildered.

The Kubler-Ross formula for grief is so ingrained in all of us that we think those are the only stages of grief, but I have discovered dozens of phases more universal and potent than denial, guilt, anger, depression. Loss and bewilderment are two such phases. They are major components of grief, though I haven’t found them listed anywhere as a stage the bereft have to deal with.

The worst problem of grief, of course, is that someone who was a vital part of our life is dead. The second worst problem is that we are flooded with so many emotions, topped off with excruciating pain, that it is almost impossible to sort everything out. All these emotions gridlock the brain’s synapses, and we are left feeling lost and alone and totally bewildered. Where did our loved one go? How can he no longer be here? How can the world continue without his presence? How can I continue without his support and love? How can he be so very gone?

That “loss” everyone tells us they are sorry for is not our loved ones. Our loved ones are not lost, not misplaced; they are dead. We bereft are the ones who are lost. Whatever place we thought we had in the world is gone, perhaps forever. The world is different without our loved ones, and this is especially so if the dead we loved was a life partner, a soul mate. They’d become such a part of the fabric of our lives, of our very being, that when death rips them from us, we no longer recognize ourselves. We wander lost, bewildered, in this alien world. Some people manage to find themselves again, others become so changed they never find their way back.

I’d gone through the typical stages of grief before my life mate — my soul mate — died. I’d denied, raged, bargained, accepted, so that I thought I was “over” him, that after his death, my life would continue, sadder, but not much different. The depth of my grief, my loss, my pain, my bewilderment stunned me. I’d gone through all the stages of grief, so I should be okay, right? Wrong. Real grief begins where those so-called stages of grief leave off. Those stages of grief were first noted as the way people learned to accept their coming death, and they bear only a shadow of a resemblance to what those left behind experience.

My life mate and I used to talk about who had it worse — I thought he had it worse because he was the one suffering. He thought I had it worse. It turns out he was right. His suffering is over, but mine will last the rest of my life. My grief will continue to change, to go through additional changes, will abate, might even be forgotten at times, but it is now a part of my life.

And he is not.

That is the crux of the issue, the cause of all that bewilderment, pain, and loss. How do you live with someone who is no longer there? How do you live without them? Here’s how: you find comfort wherever you can, however you can. (Besides drink and recreational drugs, that is.) No matter what you do to get through the worst of your pain, no matter how crazy it is, be assured that others have done it, too. Hug the urn with his ashes, carry his identification, smell or cuddle or wear his clothes, talk to him, scream for him, cover the wall with his photos, write to him, write blogs about your grief. Do whatever it takes to get you through, because, as hard as it is to accept, you are still alive.

I Am a Ten-Month Grief Survivor

I mentioned to someone the other day that it’s been ten weeks since the death of my life mate and that I didn’t know how I managed to survive that long, then it hit me. It hasn’t been ten weeks. It’s been ten months. How is it possible to live almost a year with half your heart ripped out? I still don’t know, but I do the only thing I can: live.

After the nine-month mark, I had a respite from grief. I liked the symmetry of nine months of grief (gestation) before being born into a new life, but as happens with grief, the respite was merely that — a respite. A couple of weeks ago, the need to see my mate one more time grew so great it felt as if the yearning would explode from my body like the creature in Alien. The feeling came and went for a while, and now the creature has gone back into hibernation. But still, the yearning lingers.

I’m learning to live with the remnants of my grief. From others who have also borne such a loss, I’ve come to understand this is the next phase of grief — not soul-destroying pain as at the beginning, but blips of varying intensity and frequency. I know I can deal with this new stage of grief because I have been dealing with my grief all along, but still, a part of me rebels at the necessity.

Planning signifies hope and is supposed to be a sign of healing. Strangely (or perhaps not strangely; perhaps it’s to be expected ) every time I make plans, I have an upsurge of grief. Plans take me further away from him and our life. They remind me of similar things we did together, and they tell me that from now on, he won’t be sharing new experiences with me. Still, I am not holding myself back. I need to fill the hole he left behind, and new experiences are one way of doing that.

In the past four months I’ve gone to various art galleries. I’ve seen Mesoamerican antiquities, aristocratic clothing through the ages, local artists, classic art work. I went to a wild life sanctuary where they take care of captive-bred animals that zoos don’t want. I went to the beach. In May, I’ll be going to a writer’s conference where I’ll be a speaker.

All this shows that I’m moving on, and yet . . .

And yet he’s still gone. That goneness is something I struggle with — how can he be dead? I wanted his suffering to be over, so I was relieved when he died, but somehow I never understood how very gone he would be. I don’t want him to be gone, but he’s not coming back, and there is not a damn thing I can do about it.

Trying to Relight My Life

When I was in high school, I participated in a thesis project for a doctoral candidate. He was trying to prove (I think) that given the right tools, anyone could teach and anyone could learn. The high school students were to teach kids from the lower grades about various aspects of science. During the first class, I handed each of my students a battery and a light bulb and asked them to turn on the light. They couldn’t of course. I asked what they needed, and one kid said they needed a wire. I handed everyone a wire. A bit of experimentation later, they realized they needed a second wire. So, I handed out another wire, and in a very short time all those light bulbs were lit.

I’ve been thinking a lot about that recently — not the program so much as those wires linking the battery terminals to the light bulb. It seems to me that ever since the death of my life mate, one of the wires is missing from my electrical system, and nothing lights me.

Take movies, for example.

My family didn’t have a television when I was growing up, and we seldom went to the movies, so I read to get my daily dose of stories. I wasn’t a speed reader, but was a skimmer — if there was a boring part, such as long descriptions, inane dialogue, and action scenes that went nowhere, I fast forwarded. Skimmed in other words. As a young adult, I went to the movies occasionally, but found most of them dull since I couldn’t skip over the boring parts.

After we’d been together for a few years, my life mate and I signed up for an assortment of movie channels. Back then there were only four premium channels, and those channels offered dozens and dozens of new choices every month. The two of us became entranced with movies. It was something we could share, and the enjoyment we each felt enhanced the enjoyment the other felt. The humor was funnier when shared. The tender scenes more touching. The scary scenes more horrifying. And I wasn’t bored. Didn’t need to skim.

He started taping the movies we liked, then he taped those he liked that I didn’t (such as genre westerns and war movies) then he went on to tape good parts of bad movies and finally he taped the best of the rest.

He’s gone now, but his movie collection remains. I have over 1000 movies to sort through (since I won’t be able to keep them all), so I’ve been watching a lot of movies lately, and I discovered something interesting. The movies that thrilled us, made us laugh, electrified us, the movies that radiated life — the movies that once seemed life personified — are now simply . . . movies. Films. Faded stories on a flat screen. As with the films I saw as a young adult (before I met him), these movies now seem to have nothing to do with me. I watch them. Can even enjoy them, but that’s all. Turns out, I needed two “wires” to make the stories live in me, and one of the wires is permanently defunct.

I’m not even attempting to watch the movies we especially loved, the ones that seemed to be made just for us. Without the other electrical “wire” these movies might also prove to be lifeless streams of motion, which would be unbearably sad. And if the movies still hold up, I couldn’t bear the sadness of watching them alone, without him. I’m sure eventually I’ll find the courage to view them again, but not today.

If the missing wire only affected movie watching, I’d chalk it up to one more loss among so many, but the truth is, with his being gone, nothing seems real. It was as if his smile when I told him good news or his commiseration at bad news or his laugh at silly news grounded me, and made everything more vibrant.

I am getting back into the swing of my life, and I’m starting to feel “normal.” Perhaps someday I might even find a way to relight my life despite that missing wire.

Diving Off the Deep End

I never learned to swim as a child, so when I went to college, I signed up for beginning swimming for my PE credit. On the first day of class, the teacher had us line up at the deep end, then she said, “Dive in.” What????? I stared at her, totally out of my depth. Well, not really out of my depth since I didn’t even jump into the pool. I just stood on the sidelines while everyone else dived. The teacher kicked me out of the class. Apparently, though the syllabus clearly stated the class was for those wanting to learn how to swim, there was an undeclared understanding that people who could swim took the course as an easy way to satisfy the PE requirement, and she had no patience for someone who could barely float.

Today, I’m feeling the way I did that long ago day standing on the edge of the edge of the pool. I mentioned a year or so ago that I was asked to be a speaker at the Scribblers Retreat Writer’s Conference on St. Simon’s Island in Georgia, but I had to cancel due to a death. (Not mine, though it felt like it.) I thought that was the end of it, but conference organizers contacted me and asked me to reschedule. So I did. I’ll be speaking at the May 2011 conference at 3:00 on Friday the 13th. Perhaps an auspicious date? I hope so! This will be my first ever speaker engagement. (No honorarium, but an incredible honor.)

I had no idea of the scope of the conference until today when I learned that the conference was recently voted one of the “Top Ten Organized Conferences in the U.S.” by Writer’s Digest. I also learned that Phillip Margolin will be fellow a speaker. Gulp. This is the big time. The deep end. Shouldn’t I dip a toe in first? Test the waters? Nope. Have to learn to dive very, very quickly.

Oddly enough, despite my lack of experience and a niggling worry that someone made a mistake by inviting me, I know I can do a good job. I plan to use my character questionnaire and, with audience participation, show how to develop a character (and subplots and tension) by making a series of small decisions. I realize talking before a group is not the same thing as moderating online discussion groups, which is my usual venue for talking about writing, but I plan on having fun. And anyway, it’s not as if I’m going to drown — or get kicked out of class — if things don’t work out right.

It’s a Breeze!

I’ve never paid much attention to the weather except to figure out how to dress when I go for a walk. Nor have I paid much attention to the wind except to stay inside when the velocity picks up. But lately, I’ve been tracking the weather where I’m staying since this tends to be a windy area, and I do not like walking in strong winds in the desert. (Sand blowing in my eyes is not something I particularly enjoy.) So, when I see that winds of 8 to 15 mph are expected, I plan my walks for the calmer times. To me, anything more than a gentle breeze is a wind, and one to be avoided.

Imagine my surprise, then, when I discovered that winds with speeds of 4 to 31 miles per hour are considered to be breezes. A thirty-mile an hour wind is a breeze? Not in my world! I always thought the term “gentle breeze” was redundant, but apparently not. What I considered to be a gentle breeze — anything less than 4 miles per hour — is not even a breeze. It’s just light air movement. A gentle breeze is a wind with a speed of 8 to 12 miles per hour. A fresh breeze is a wind with a speed of 19 to 24 miles per hour. A strong breeze is a wind with a speed of 24 to 31 miles per hour. A gale is a wind with a wind speed of 32 to 63 miles per hour. My dictionary defines a gale as a strong current of air. Who knew Webster had such a sense of understatement! (In case you’re interested, a storm is stronger than a gale, and a hurricane strongest of all.)

In light of this information, a person with a breezy disposition would an uptight harridan, and something that’s “a breeze” would be hard enough to blow you away. “The test was a breeze” no longer seems to make sense, but saying, “the test was a light air movement” loses something in the translation. I’ve always been a stickler for using words properly, but breeze is such a light, breezy word, that I will probably continue to use it the way I always have, to mean a gentle air current, something easy, or someone cheerful and free.

Grief Update — Throwing a Tantrum

I haven’t blogged about grief recently. Actually, I haven’t blogged about anything for a while. I’m in a transitional stage — not sure what I’m feeling, not sure what direction I want to go with this blog, not sure what I want to do with the rest of my life. I’ve been purposely thinking of other things than the death of my soul mate, though grief does geyser up without my volition now and again, especially on Saturdays, the day of the week he died. Even if I’m not consciously aware of that day, still, nine and a half months later, something in me acknowledges the date, and sadness grabs hold of me.

Except not this Saturday. This Saturday (yesterday), I wanted to throw myself on the ground and beat the floor in a full-fledged tantrum. I’ve never thrown a tantrum in my life, but if I’d been someplace where no one could hear me, I would have made an exception. I wanted desperately to talk to him. His death was the most significant aspect of our lives since the day we met, and he’s not here for us to compare notes. I want know how he’s doing. I want to know what he’s doing. Is he doing anything, feeling anything? Or is he drifting on a sea of light, like a newborn star?

It seems impossible that he’s gone, and the simple truth is that I don’t want him to be dead. Sure, I can handle it. Sure, I can deal with living the rest of my life alone. Sure, I can do whatever I need to do. But I don’t want to. I want him. I want to see him. I want to see his smile. I want . . . I want . . . I want . . . All those wants erupted Saturday night, hence the desire to throw a tantrum.

I’ve never heard of tantrum as a phase of grief, but I’ve never heard of most of the stages I’ve gone through. My grief cycle does not at all resemble the stages defined by Kubler Ross. Hers is a simplistic view of grief when in fact grief is a cyclical emotional and physical quagmire. The frequency of my grief eruptions has diminished, and so has the worst of my pain, but the hole his death created in my life remains. I try filling the emptiness with physical activity, talking to people, reading, writing, even eating, but nothing fills the want.

How can someone who was so much a part of my life be gone? Even if he is waiting for me on the other side of eternity, he’s still gone from this life. And I don’t want him to be. I want . . . I want . . . I want . . .

Clear the area. I feel a tantrum coming on.