New Steps on the Journey Through Grief

I’ve reached a new level of grief. I’m still sad, but I can barely remember why. I still feel the absence of my life mate/soul mate, who died two years and two months ago, yet I can barely remember the living man. The life I shared with him is receding, as if it happened to someone else. There is still a hole in my life and a decided lack of “life” — no sparks kindling new ideas, no electricity of excitement, no radiance — but I no longer have anything with which to compare that lack of life. It’s as if these sad and lonely days are the way it has always been for me.

During those years when we were together, I had someone to talk to, someone who could help put life into a different perspective, and now there is just me. To tell the truth, I still talk to him, but he never offers a different perspective. I used to feel a tenuous connection to him (or at least to our shared past) when I talked to him, but now I have no idea if I’m even talking to him or simply talking aloud.

With our shared life moving further into the dim past and my memories of him fading, I worry that I will forget him. I know I’ll forget the person I was when I was with him. No matter how I change, I’m always just me, and yet, (for example) I cannot remember this little girl, cannot remember being her. She has receded far into my past. Or perhaps she’s become subsumed into my current persona? Either way, she no longer exists even in memory. And so will the person I was with him disappear as I move further into the future without him.

The irony is that I was in such pain after his death that I made a special point to experience new things so I could create new memories. I thought new memories would help cushion the severity of the break between our shared life and my life alone, yet those very memories are taking me further away from him.

I might not completely forget him. I have moments when I flash onto a vivid image of him, and as heartbreaking as those moments are (because I am reminded once again that he is dead), they are all I have left of him except for some of his things. It seems cruel that their things outlive the dead. Shouldn’t people live longer than things? Or else, shouldn’t the things disappear when our loved ones do? And yet, as my memories fade, the things I kept of his and the things I kept of ours, such as our household goods, will be all I have to remember him by.

Every new step on the journey through grief brings its own grief. It saddens me that he is forever receding from me. Yet I am still here, and I must live. I can’t cocoon myself in memories of him and our life together. I can only go on doing what I have been doing — experiencing new things and making new memories, even if they take me further away from him.

Two Years and Two Months of Grief

I never expected to feel so sad two years and two months after the death of my life mate/soul mate, and I never expected to still be so easily brought to tears. But then, I never expected most of what I’ve experienced with grief, especially since I tend to be more contemplative and stoic than emotional. As I’ve learned, though, grief might manifest as emotion, but it is so much more than that — it’s a restructuring of the world as we know it, a reconfiguring of reality. And that takes a lot of energy, both mental and physical. And it takes time. A person who was a major part of our life is gone, ripping a hole in our reality, and our brains are struggling to patch the hole (or at least to figure a way around it), which causes an incredible amount of stress.

Part of that restructuring is a new consciousness of death. We all know we are going to die, but after the death of someone we are profoundly connected with, we KNOW deep within our psyches. This knowledge makes life on Earth seem at once more significant and less vital (or do I mean more vital and less significant?), which is why so many of us bereft struggle for meaning. Some of us will eventually settle back into every day life, but for the rest of us, life will always seem a bit off, as if a part of us knows we are aliens in an alien land.

Mostly, I’m doing okay. If we were to meet, you’d have no idea of my ongoing sadness. I don’t try to hide it, it’s just that the sadness has become such a part of me that it doesn’t impede my living. I can smile and laugh and chat as if everything were fine, and it is, for that moment. But when I am alone and not focused on a task, sorrow percolates to the surface. Sometimes our life together seems very far away, as if it were only a dream born of loneliness, but this ongoing sadness reminds me of the truth — I once was with someone I loved deeply, and now I’m not.

I never feel his presence, but his absence hovers beside me as if it were a living thing. When I make a salad, I am aware that he is not washing the vegetables for me. When I am at the grocery store, I am aware that he is not helping pick out what we need. When I am exercising, I am aware he is not in the room. When I need someone to talk to, I am aware he cannot respond. When I watch one of his many video tapes, I am aware he is not sitting next to me. Every time I use something of ours, even something as inconsequential as a spoon, I am aware that he has no need of the article.

I don’t purposely think of such things. In fact, the awareness is not a thought. It’s just that everything I do and everything I own echoes with his absence. Maybe someday even the echo will die away and all I’ll have of our shared life are fading memories. But no matter how I feel or what I forget, I’ll always be grateful that an extraordinary man shared his life with me.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Grief: Haunted by the Hard Questions

One of the more confusing aspects of grief after the loss of a life mate, a child, or someone we were deeply connected to is that we are haunted by the hard questions. Who are we? Why are here? Is this all there is? Where did our loved ones go? Will we see them again? What is the meaning of life, and probably most haunting of all, what is the meaning of death?

Many of my fellow bereft read everything they can find about such matters of the spirit, but I didn’t — I’d spent years on a quest for truth and reality, and I’d come to believe that God is the spirit of creativity that fuels the universe, and we are each a part of that creativity. I was content believing that our spirit/energy returned to the whole . . . until my life mate/soul mate died. Then all of a sudden, I didn’t want that to be the truth. I wanted him to continue existing as him, as the man he was.

I do think there is a deeper reality, I’m just not sure our conscious selves are a part of it. We are a product of our genetics, our hormones, our brains (anyone who has had to cope with an Alzheimer’s sufferer or a loved one who had cancer in their brains, and found a stranger in that familiar body, knows how much the brain controls who we are). So what  survives, if anything? The part of us we never knew — the un-sub-conscious? If so, how would we know who we were after we were dead? Is it just the energy in our bodies that is released? If so, for sure we would not know who we were.

On the other hand, without some sort of afterlife, life simply does not make sense. What’s the point of it all? To survive? For what — more survival until there is no more survival? To help others? Why? So they can survive? For what?

If there is life after death, what do you do with eternity? You have no ears to hear music, no eyes to read or watch a movie, no legs to walk, no hands to caress another, no mouth to talk, no brain to think. Sounds like a horror movie to me. And what will we do if we meet again? Bask in each other’s light? That would get boring after a minute or two.

When we met — my soul mate and I — I still believed in a cosmic plan, and I had the feeling that he was a higher being come to help me on my quest to the truth. But now? I no longer believe there is a universal truth, and I don’t think he’s waiting for me, though I act as if he is. It’s better than believing that he is gone forever.

And perhaps he does still exist in some form. What do I know? One thing I have learned from my grief is that a human life is a spectrum. You don’t notice it so much when you are both alive, because you are both in the moment, both always the people you have become and not yet the people you are becoming. But when one of you dies, his becoming ceases, and you see his life as a whole. The person he was when you met is every bit as alive in memory as the person he was the minute before he died. The youthful man, the middle-aged one, the healthy one, the sick one are all merely spaces on the spectrum of his life.

It’s possible the spectrum of a human life is the same sort of spectrum as light — beginning long before the visible part appears and ending long after the visible part disappears. Of course, the non-visible parts of the electromagnetic spectrum aren’t light but sound and radiation and other invisible waves, so whatever exists outside of the visible human spectrum might be something completely different from we can ever imagine.

It’s also possible that our bodies are like television channels, receptors for certain wavelengths, so that our “souls” actually reside outside our bodies, but still, the selves that we know are defined by life in our bodies. So, again, we come back to the same question, what of us survives?

Grief is an isolating experience, made more so by our spiritual quest. While our family and friends continue on their same daily path, we find ourselves going in a completely different direction. There are no answers to our questions, but still, they haunt us, and we try to figure out a way for it all to make sense.

But life will never make sense because we are still here and our loved ones are gone. Where is the sense in that?

The Two-Year Anniversary of the Worst Day of My Life

The worst day of my life was not the day my life mate/soul mate died. That particular day was sadly inevitable, one I actually had looked forward to. He’d been sick for so long and in such pain, that I was glad he finally let go and drifted away. After he died, I kissed him goodbye then went to get the nurse, who confirmed that he was gone. She called the funeral home, and I sat there in the room with him for two hours until they finally came for him. (They came in an SUV, not a hearse. And they used a red plush coverlet, not a body bag.) I might have cried. I might have been numb. I don’t really remember. All I know is that I sat there with him until almost dawn. I couldn’t even see his face — they had cleaned him and wrapped him in a blanket — so I just sat there, thinking nothing.

The worst day of my life came fifty-five days later, exactly two years ago. I spent all day cleaning out his closet and drawers, and going through boxes of his “effects.” He had planned to do it himself, but right before he could get started, he was stricken with debilitating pain that lasted to the end of his life, and so he left it for me to do. I would not have undertaken the task so early in my grief, but I had to leave the house where we’d lived for two decades and go stay with my 95-year-old father, who could no longer live alone.

I knew what to do with most things because my mate had rallied enough to tell me, but still, a few items blindsided me, such as photos and business cards from his store To Your Health (where we met). Every single item he owned was emotionally laden, both with his feelings and mine. The day was like a protracted memorial service, a remembrance of his life, a eulogy for “us”.

How do you dismantle someone’s life? How do you dismantle a shared life? With care and tears, apparently. I cried the entire day, huge tears dripping unchecked. I have never felt such soul-wrenching agony. I’ll never be able to do anything else for him, so the work and my pain was my final gift to him. I was glad I could do that one last service, but I sure don’t want to ever go through anything like that again.

The only good thing about living the worst day of your life is that every day afterward, no matter how bad, will be better than that day.

I’m not particularly sad today — the sadness came yesterday. Despite it being Saturday, my sadder day, and a day of sporadic tears, I woke with a smile. I’d dreamt we were cleaning out the house (which is odd considering that I did not remember until afterward that today was the anniversary of when I went through his effects). In the midst of the usual chaotic dream images, there was one short clear moment. We were sitting side-by-side. He smiled at me, kissed me gently, and I rested my head on his shoulder.

This was the first time in almost two years that I’d dreamt about him. It was lovely seeing him again, if only in my dreams.

There Are Worse Things Than Not Being Happy

The other day I saw a quote on Facebook: Just because I am laughing, it doesn’t mean I’m happy. Just because I’m smiling, it doesn’t mean I don’t want to cry. I just believe in not emphasizing the negative.

There are worse things than not being happy — living a lie, for example. According to a team of researchers led by Iris Mauss at the University of Denver, “Valuing happiness is not necessarily linked to greater happiness. In fact, under certain conditions, the opposite is true. Under conditions of low (but not high) life stress, the more people valued happiness, the lower were their hedonic balance, psychological well-being, and life satisfaction, and the higher their depression symptoms.”

In other words, living a lie and pretending to be happy is exhausting and stressful and can make you even more unhappy.

Other studies have shown that we are seldom happy in the present. We are happy in retrospect. Think of some of the happy times in your life. Back then, were you aware you were happy? Chances are, you were involved in living and didn’t bother to stop to think how you were feeling. Happiness is elusive. If we go chasing it, we don’t always find it. If we stop chasing it, happiness often finds us. And even if happiness doesn’t find us, being unhappy is not necessary emphasizing the negative.

When my life mate/soul mate died, I had no intention of sharing my unhappiness here on this blog. I’d intended to keep it private, but I became so frustrated with writers whose characters blithely went on with life despite devastating losses, that I figured someone ought to tell the truth about how it feels to lose the one person who connects you to life. Because of my grief writing, I gained support, friends, and a mission — to tell people that it is okay to grieve, that it is important to grieve, and that they will survive. If I had kept my grief to myself and pretended everything was okay in my life, I would have missed out on these positive results, and in the end, I would have been even more unhappy.

It has also been a blessing to be able to reach out to other bereft. Grief is so isolating that it brings comfort to know that others have felt this same sort of all-encompassing loss, and the only way to do that is to be vulnerable and show the hurt. This is not being negative. It is being realistic.

Being realistic sometimes seems pessimistic, sometimes optimistic, but it is neither. It’s seeing the truth of the matter. A pessimist magnifies the negative side of the truth, and the optimist magnifies the positive side, but neither are being realistic. Nor does being realistic adversely affect the outcome of a situation, because a realist knows that no matter how bleak the future looks, there is always a possibility that things will work out.

There is a chance that I will find happiness in the future or it will find me, and if not, well . . . at least I won’t have the stress of living a lie.

When You Lose the Person Who Connects You to the World, What do You Become?

“When you find that one person who connects you to the world, and that person is taken from you, what do you become then?” —John Reese (Person of Interest)

John Reese might be fictional (at least I assume so; I had never of Person of Interest until I saw this quote) but his question is one many of us bereft are pondering. When that one person is first taken from us, we wonder how we are going to survive. We never figure it out, but still, the days pass, then the weeks, months and years, and we realize that somehow we did it. We survived. Then the question facing us is what do we become.

I’m still waiting to find out the answer. So far, I seem to be just . . . me. Sadder, but me. I keep hoping that grief will bring some sort of mind/soul expansion that will allow me to become . . . well, something other than the same person I have always been. I hope for wisdom, perhaps a glimpse into the eternal mysteries, maybe a greater understanding. But so far, such experiences remain beyond my grasp.

I am trying to re-establish a connection to the world, though. For a long time, I felt as if I were balanced on one foot, the other suspended above the void. Occasionally I still have that stepping off into nothingness feeling, but mostly I’ve been trying to concentrate on actually being on Earth. To notice my connection to the world. To feel the ground beneath my feet. To be aware of my breath mixing with the air around me. To feel the wind against my face and the sun against my back. All these things connect me to the world whether I feel connected or not.

During the past few days, I’ve noticed that I’m letting go of the past, or at least feeling an easing of its grip. I haven’t wanted to let go of the past because in the past I was loved. I had mate — a life mate, a soul mate, a play mate. In the past I wasn’t alone. Nothing can bring back the past, and to be honest, I don’t want to bring it back. In the past, my mate was miserable, in pain, dying by inches every day. But without the past, or my connection to the past, what will I become?

Or is that the wrong question? Perhaps the important question is not what I will become, but what will I be at any given moment. If I try to live each moment as it comes, whether it comes with tears or a smile, with heartache or peace, then perhaps all these moments of being will lead to becoming.

Weeping For Those Who Are Newly Born Into The World Of Grief

Someone stopped by my blog this morning to comment that her husband passed away fourteen days ago, and I started crying. I wept for her, for me, for all of us who have had to deal with the soul-breaking and heart-shattering pain of new grief. (Sometimes the only way I had to keep from bursting with the pain was to scream. I’d never screamed before, but I often screamed during the first weeks of grief.)

I don’t know how any of us survive such agony and angst, but somehow we manage to keep taking one breath at a time. As the months pass, the pain does lessen, though according to others further along in the grief process, the sadness never completely goes away. And always, we revisit grief on the anniversary of the death.

There are so many sad anniversaries for me to remember now. May 24. July 23. July 26. March 7. March 27. October 14. All days when someone who was very loved died and left a grief-stricken soul mate behind. I’ve seen much pain these past couple of years from my fellow bereft but even more courage. It takes courage to continue to live, courage to struggle to accept the changes that death brought, courage to strive for understanding, (especially for those who wish to be done with life).

Sometimes I see only the pain of grief — eyes blank, bodies tensed, hearts bleeding — but sometimes I am privileged to see the light shining through the grief as the bereft find new hope and new meaning.

Where does grief lead us? I don’t know. People often equate grief to a journey, which makes us think we are going somewhere, but grief seems to be more of a process, turning us inside out, stretching our minds, souls, psyches so that we can learn to live with our new reality and find peace (and maybe even happiness) alongside the continued sadness.

Despite whatever dubious benefits and insights I have gained through the experience, I would not wish this process on anyone, and so I weep for those who are newly born into the world of grief.

Grieving the Nothings

I’m gradually moving away from the influence of grief. I’m not moving away grief itself, since there is a good chance that somewhere deep inside I will always be crying (I can feel the gathering tears even when I am not overtly sad), but I am moving away from grief’s influence. I can think clearly again, though the answers to many of my questions about life and death and the meaning of it all remain unanswered. I can focus without being distracted by thoughts of my deceased life mate/soul mate. I am not revved up with anger or guilt or adrenaline. I don’t feel quite as soul-shattered or heart-broken as I did at the beginning, and my yearnings for him are not quite as vast. His absence looms almost as large as his presence once did, but I am getting used to working around the void. I am also getting used to the unwelcome knowledge that I will never see him again in this lifetime, never hear him talk, never be warmed by his smile. (I’m just getting used to the knowledge that I will not see him; I will never get used to the fact.)

But . . . now that the big losses are a bit tamer, the small losses are becoming more apparent. I have no one with whom to share a moment with. You know what I mean — you’re watching a movie and, after a particularly touching scene, you turn to each other and smile. If I turn, no one is there. I sometimes look at his photo at such moments, but there is not much “sharing” when it is between you a piece of tinted paper.

I was also going to say I have no one to share anything with, but that’s not strictly true since I do have people I can share major happenings with. What is true is that there’s no one to share nothing with. There are so many little nothings in a day — miniscule victories or insignificant happenings that aren’t worth talking about, but that you want to mention anyway. And there are times when you’re sad or lonely or restless, and just want a moment’s connection before continuing your daily tasks. You can call someone perhaps, or email, but it’s not the same thing. By the time you make the connection, the moment of nothing has become something.

I also have no one to share the small incongruities and ironies of life with. Once walking in the desert, I saw a television on the road. So totally incongruous, it seemed as if it were an art piece in the making, and I had no one to tell about it in passing.  Today I went to the dentist to have him check on a small matter, and he told me to eat lots of sticky candy. The irony of the advice tickled me (I mean, really, when was the last time your dentist told you to eat lots of sticky candy?), and I had no one to tell that to in passing, either.

Come to think of it, there is no “in passing” anymore.

I made it through some of the major traumas of grief. Now I have to try to make it through the nothings.

Wondering About Life And Death And The Meaning Of It All

I don’t think I had survivor’s guilt after the death of my life mate/soul mate, but I do feel bad that I’m leaving him behind. I get a second chance at life, new friends, new vistas, new experiences, but he has been denied that. And in fact, he was denied all those things long before his death since his protracted dying kept him from doing much except struggling to get through one more pain-filled day.

He often told me that when he got incapacitated, I had to put him in a home and walk away. Just forget him. I know he’d want me to do the same thing now that he is dead, but I didn’t walk away when I had to put him in the hospice care center, and I can’t walk away now, and for certain I can’t just forget him.

But perhaps I am looking at the situation backward. His being dead is still the thing that drives my sadness — sadness not just for me but for him. And yet . . . what if it is he who left me behind? Perhaps he has gone on to a wondrous new life, in which case my sadness on his behalf is misplaced. And maybe none of this has anything to do with me. Maybe it’s not up to me to worry if he was cheated or not, or even to wonder if he’s in a better place. Despite our deep connection, he was still his own person. Maybe I’m poking into something that is his alone.

Just as I have to accept that my life is mine alone now.

About a year before he died, I hugged him and accidentally touched his left ear. I know now cancer had metastasized all the way up his left side and into his brain, but at the time, all I knew was that he pushed me away, wincing in agony. Something shut off right then, and a voice deep inside me said, “He might dying but I have to live.” For all that year, we went our separate ways, he to dying, me to living. Then, six weeks before he died, he made the connection with me again. He needed to talk about what was happening to him so he could gather courage to face what was coming, and during that daylong conversation, I remembered why I fell in love with him all those years ago.

Because of that disconnected year, a year where I felt dissociated from him and our life, I didn’t expect to grieve, but here I am, two years and seven weeks later, still struggling to deal with the wreckage of our shared life, still sad, still wondering about life and death and the meaning of it all. When life makes sense, death doesn’t. When death makes sense, life doesn’t. It would be nice to talk to him and compare notes about what we’re both doing, but so far he’s remaining silent.

One thing has changed recently. In between the moments of angst and wanting it all to be over with, in between the pinchings of grief and not caring what happens to me, that determination of several years ago is making itself felt.

He might be dead, but I have to live.

I just wish I knew how.

Getting Grief Right in Writing

Long before I knew the truth of grief and its power, I wrote A Spark of Heavenly Fire. The story begins thirteen months after the death of Kate Cummings’ husband, and she is still haunted by her small unkindnesses during his long illness. It surprises me that I got that part right because so much of the grief journey has been a shock to me, including how much I regret my own small undkindnesses toward my life mate/soul mate. I didn’t do anything bad, just lacked generosity of spirit at times during his last year. If he had lived, of course, these lapses would have passed unnoticed in the commotion of daily life, but with his death, they loomed like vultures over my spirit, waiting to tear me to shreds. If I had known how close to death he was, I would have been more patient, more understanding of his dying ways, but I didn’t know. I’ve come to realize that we were under such stress those last years that both of us did the best we could in the untenable situation. Dying is an unpleasant business for both parties.

Here are a couple of excerpts from A Spark of Heavenly Fire that show Kate’s torment. I wasn’t as feisty as Kate. I didn’t kick furniture or slam doors (well, maybe just once), and I didn’t give in to my anger until after he was dead, but otherwise, these passages show how much we bereft regret the small things we did:

Kate hauled herself upright and groped for her eyeglasses. After sitting on the edge of the bed for a moment, gathering her strength, she dressed and wandered through the house. She hesitated by the closed door of the second bedroom where her husband had lived during the last years of his protracted illness, touched the knob with her fingertips. Yanked her hand away.

This is ridiculous. Joe’s been gone for thirteen months.

Taking a deep breath, she grasped the knob, but could not force herself to turn it. She rested her forehead on the door for a minute, wondering if she’d ever be able to face the ghosts of sorrow and regret locked inside, then squared her shoulders and headed for the front closet to grab a coat and hat.

[Later in the book, Kate explains this inability to open the door to her new friend, journalist Greg Pullman.]

“A little over a year ago, during one of Joe’s rare remissions,” Kate said. “I mentioned we were coming up on our fifteenth wedding anniversary. When he ignored me, I asked, ‘Would it kill you to be nice to me once in a while?’

“He didn’t answer.

“I went out for a walk. When I returned, he was gone.”

“Dead?” Greg asked.

“No. Not then. He’d taken our car, an old Volvo, and left. I didn’t know he felt strong enough to drive. He could barely walk and had a hard time gripping so much as a glass of water.

“When the state patrol called to tell me Joe had been in an accident, that he’d driven off a cliff in the mountains and had died instantly, I wasn’t surprised. It did surprise me when they ruled it an accident. It seemed so obvious to me he’d taken his own life that I was sure everyone else could see it, too.”

Kate gave an unamused laugh. “I never did buy another car.”

Greg looked at her, a frown wrinkling his brow. “I don’t see that you did anything shameful.”

Kate toyed with her empty cup. “I’m not proud of what I said, and I hate knowing those were the last words I ever spoke to my husband, but I don’t think it had anything to do with his suicide. I doubt he even heard me.

“About two weeks after the funeral, I decided to clean Joe’s room. I didn’t feel up to sorting out his things, but I thought I should dust and vacuum in there. I cracked opened the door, as if expecting Joe, or at least his spirit, to inhabit the room. I stepped inside, but seconds later I scrambled out again and slammed the door.

“Memories of all the shameful, petty, inconsiderate things I had done over the years haunted the room, and I couldn’t bear to face my own mean spirit. Too many times I snapped at him or purposely waited a few minutes before going to see what he wanted when he called out. Other times I felt so angry at the way life had treated us, I stomped around the house, slamming doors and kicking furniture. Usually, though, I pounded my pillow, or cried. I’m embarrassed to admit how many times I cried, wishing I had a normal life with healthy children to take care of instead of an uncommunicative and disabled man. Sometimes I even hated him for what he had become, as if he chose to get sick. Can you believe that?”

She didn’t pause for a response, but hurried on, wanting to get it all out. “Worst of all, I realized I was not a strong woman who had shouldered her burden with courage, but a weak woman who lacked generosity of spirit.”

Greg reached across the table and put a hand over hers. “We are a sad pair, aren’t we?”

She gave him a wistful smile.

A full minute went by without either of them speaking, then she asked, “Would you like some more hot chocolate?”