I Am a Thirteen-Month Grief Survivor

Yesterday at my grief support group we were asked to complete the sentence, “After he died, I was surprised that . . .” Everything that happened in the thirteen months since the death of my life mate — my soul mate — has surprised me. No, not surprised me. Shocked me.

I was shocked that the end came so quickly. He’d been sick such a very long time, his health fading slowly, that his dying became our way of life. When he was finally diagnosed with inoperable kidney cancer, we were told he had three to six months to live. He had only three weeks. And those weeks seemed to evaporate in just a few hours.

After he died, I was shocked by the very presence of grief. My brother died four and a half years ago, and my mother died a year later. I handled both deaths well, so I thought I could cope with the death of my mate. I didn’t know, had no way of knowing, that one didn’t grieve the same for every loss. I didn’t know, had no way of knowing, that there was a physical component to the death of a long time mate, that it would feel like an amputation.

After he died, I was shocked by the depth and breadth of my feelings. During the last year of his life, and especially the last six months, he’d begun withdrawing from the world and from me. This withdrawal, this lessening of a need to be with others is a natural part of dying, and my response to his withdrawal was just as natural — an increased determination to live. He might be dying but I wasn’t, and I had to untangle our lives, find a way to survive his dying and his death. I thought I had successfully completed this task, but his death rocked me to the core of my being.

After his death, I was shocked by his sheer goneness. Because I’d spent so much time alone that last year, I thought life without him would feel much the same, but it isn’t like he is in another room or another city or another country — it’s like nothing I’d ever experienced before. I still have no words to describe the finality, the undoableness, the vacuum of death. He was part of my life for thirty-four years. We breathed the same air. We were connected by our thoughts, our shared experiences, the zillion words we’d spoken to each other. And then he was gone from this earth. Erased. Deleted. I still can’t wrap my mind around that.

After his death, I was shocked that I felt so shattered. So broken. And I am shocked that I still feel that way at times. I am shocked that no matter how strong you are, how well you are healing, grief can slam into you at any time, especially after a good day when you’re not expecting it, and the pain feels as raw as it was at the beginning.

After his death, I was shocked by the scope of grief. You grieve for the one who died and you grieve for yourself because you have to live without him. You grieve for all the things you did and the things you didn’t do. You grieve for what went wrong in your shared life and what went right. You grieve for the past and you grieve for the lost future. You grieve for all the hopes and dreams and possibilities that died with him. It’s amazing that anyone can survive all that pain, but we do, and that shocks me, too.

After his death, I was shocked by how complicated human emotions can be. You can feel sad and unsad at the same time. You can be determined to live, yet not care if you live or die. You can know in your depths he’s gone, but still listen for him, still yearn for him, still worry about him.

Mostly I’m shocked that I am still the same person I was before he died. Such emotional trauma should have changed me, made me stronger and wiser perhaps, yet I’m still just me. Sadder, but still recognizably me. Well, there is one change. I’ve always been a worrier, but now I try not to fret about the future, try not to wonder how I’m going to cope with growing old alone. After his death, I am no longer shocked that life can remain the same year after year. Nor am I shocked that it can change in an instant.

Grief: Blindsided by Lilacs

Who knew I would find lilacs in this desert community?

My life mate — my soul mate — loved lilacs. We once saw a house with lilacs lining the long driveway, and he wanted to live there, but we couldn’t afford such luxury. Shortly after we moved to the house where we were to spend the rest of his life, we dug up the lilacs that blocked a gate and replanted them around the perimeter of the yard. When we moved to that house, it was like living in an aquarium — there was absolutely no privacy. By the time he died, it was such a lush environment, it was like living in a terrarium — and there was total privacy. And the gate was once again blocked with lilacs. Apparently, we’d left just enough rootstock that the bushes grew back.

We planted all sorts of bushes and trees in addition to those lilacs, and the thrill of watching our seedlings grow to adulthood was another thing we shared in a twinned life that was all about sharing. It should have been hard leaving the place, but I was in such grief over his death that one more loss didn’t really make much difference to my sorrow.

I still don’t miss the place, or not that much. A place is just a place. I am homesick, but homesick for him. He was home. I miss him. I miss our life together. If he were to call and tell me he was waiting for me, I’d go to him wherever he was — mountains or desert, city or country, there I would be. But he’s never going to call. For months after I came here to the desert to try to figure out what comes next, I’d listen for the phone, hoping he would call and tell me that he was well and I could come home. That feeling is finally fading, but the loss of that feeling just makes me sadder — he is gone and I have to deal with the vicissitudes of life by myself.

I have minor upsurges of grief a couple of times a day, but I try to be upbeat. I have a new book published. I am getting new clothes, trying to reinvent myself from the outside in. I have made new friends (mostly people who have lost their mates. It’s amazing how quickly you can get to know someone when you cry together). I’ve been handling myself well.

And then . . .

Today, strolling around the neighborhood (it was too windy to walk in the desert), I happened to smell lilacs, and instantly, I was back in full-fledged grief mode. People keep telling me one never gets over grief, you just learn to live with it, and that appears to be true. Grief seems to lurk in dark places, ready to gush forth when one is least expecting it. And I was not expecting it today. How could I have known I would encounter lilacs growing in this desert community?

Grief Update: A Yearning as Deep as the Black Canyon

I haven’t been writing much about grief lately. Partly I’ve been trying to keep an upbeat attitude so I can focus on promoting my new book, Light Bringer, which was published on the anniversary of my soul mate’s death, and partly I haven’t wanted to admit how much his being gone still hurts. It seems a bit pathetic since there are so many earthshaking and earthquaking events happening in the world today, and it has been more than a year since he died (a year and fifteen days to be exact). I am doing okay, but I still feel his absence from the earth, still miss him, still yearn for one more word or one more smile.

Fridays and Saturdays are particularly hard. He died at 1:40 am on a Friday night (which made the actually date a Saturday) and my body can’t decide which day is the right time to mourn, so my upsurge of grief spans both days. I say my body can’t decide, because there is an element of physicality to grief, especially when it comes to the death of someone who shared more than three decades of your life. You feel his absence in your cells, in your marrow, in your blood. I can sometimes feel (or imagine I feel) his vibes still surrounding the things he used, the things we shared. I find myself stupidly hugging a dish before I use it, remembering him eating off that plate.

Most of our stuff is packed away because of my temporary living arrangements. Yesterday, I felt a moment of panic when I realized that eventually I would unpack and begin using our household goods, and I would feel his energy permeating them. Usage will dissipate that energy, but for now, it’s still there. Perhaps when I need those items, the psychic remnants of him will bring me comfort, the way using a few of our things bring me comfort now, but it could just as easily set off a whole new strata of pain.

But I won’t — can’t — think of that. It still takes almost everything I have just to get through the days, to concentrate on this day. I can live today. What is one day without him when we had so many? I am most at peace when I forget that he is dead, when somewhere in the far reaches of my mind I feel that he is back in the house we shared, waiting for me. It’s not that I can’t live without him. I can. It’s that the world is such an alien place now that he is gone. I still remember how right the world felt when I met him. I had no expectations of having any more of him than that first relationship of customer (me) and storeowner (him), but back then, just knowing a person such as he existed made the world a more radiant place. When he died, he took the radiance with him.

It’s sort of odd, but I can’t identify that specific quality of radiance he brought to my life. He was sick for so very long, we gradually untwinned our lives, he to dying, me to aloneness. And yet, that connection, that depth, that radiance remained until the end. In his last weeks we even found a renewed closeness, a renewed commitment, but before that, we endured months, maybe years of unhappiness.

And, childishly, I am still unhappy. I want what I cannot have. I try to find in myself the radiance (the center? the heart? the home? — whatever it was that he gave me). I will need that to keep me going through the coming decades, and I fear I am not enough. At times, I think I have depths enough to plumb, other times those depths seem an illusion, an opaqueness that masks my shallows.

But what isn’t shallow is how much I miss him. That yearning is as deep as the Black Canyon.

I Am a Twelve-Month Grief Survivor

Twelve months.

One full year.

It seems impossible that my life mate — my soul mate — has been gone for so long. It seems even more impossible that I’ve survived.

His death came as no surprise. I’d seen all the end signs: his unending restlessness, his inability to swallow, his disorientation, his wasting away to nothing, the change in his breathing. Nor did my reaction come as a surprise. I was relieved he’d finally been able to let go and that his suffering (and the indignities of dying) had stopped. I was relieved his worst fear (lingering or a long time as a helpless invalid) had not had a chance to materialize. What did come as a surprise was my grief. I’d had years to come to terms with his dying. I’d gone through all the stages of grief, so I thought the only thing left was to get on with my life. And yet . . . there it was. His death seemed to have created a rupture in the very fabric of my being — a soulquake. The world felt skewed with him gone, and I had a hard time gaining my balance. Even now, I sometimes experience a moment of panic, as if I am setting a foot onto empty space when I expected solid ground.

I have no idea how I survived the first month, the second, the twelfth. All I know is that I did survive. I’m even healing. I used to think “healing” was an odd word to use in conjunction with grief since grief is not an illness, but I have learned that what needs to heal is that rupture — one cannot continue to live for very long with a bloody psyche. The rupture caused by his dying doesn’t yawn as wide as it once did, and the raw edges are finally scarring over. I don’t steel myself against the pain of living as I had been. I’m even looking forward, curious to what the future holds in store for me.

Strangely, I am not ashamed of all the tears I’ve shed this past year, nor am I ashamed of making it known how much I’ve mourned. The tears themselves are simply a way of easing the terrible stress of grief, a way of releasing chemicals that built because of the stress. And by making my grief public, I’ve met so many wonderful people who are also undertaking this journey.

I’ve been saying all along that I’d be okay eventually, but the truth is, despite the lingering sorrow, my yearning for him, and the upsurges in grief, I am doing okay now.

I expected this to be a day of sadness, but it is one of gladness. I am glad he shared his life (and his death) with me. Glad we had so many years together. Glad we managed to say everything that was necessary while we still had time. Tomorrow will be soon enough to try to figure out what I am going to do now that my first year of mourning is behind me. Today I am going to watch one of his favorite movies, eat a bowl of his chili (his because he created the recipe, his because he was the one who always fixed it), and celebrate his life.

Keeping Vigil

I’m continuing my anniversary vigil, reliving the days that led up to the death of my life mate, my soul mate. This vigil is not so much conscious as subconscious, a feeling that the events of a year ago are happening again. Part of me seems to think I really am there at his deathbed — when I was out walking in the desert today, I found myself wailing, “Don’t go! Please don’t leave me!”

This is so different from last year’s reality. Then, I was concentrating on him, on his suffering, on his need to let go of life, and I never once thought of asking him to stay for me. Would never have subjected him to more pain and suffering. Would never have wished him more days as a helpless invalid. And yet, here I am, today, begging him not to leave me.

Such is grief — a place where time goes backward and forward, stands still and zips ahead.

Perhaps when this first terrible year is finished, when I have experienced this reprise of his death from my point of view rather than his, I will be able to put a lot of my grief behind me and go forward with my life. Though I still don’t know what that life is, where it will take me, or if it will take me anywhere at all. Perhaps all that is necessary is to experience life, and if that is true, well, I have certainly lived this past year.

It’s strange looking back to the long years of his dying. I thought I was ready to leave the emotional burdens and the financial constraints of his illness behind. I thought I was ready to live out my life alone. I even looked forward to the challenges, especially since he told me that when he was gone, things would come together for me. He was a bit of a seer (though he mostly saw doom) so I believed him. But neither of us expected the toll grief would take. (Well, he might have suspected. He was very concerned about me.) I knew I’d be okay, and I am, but I didn’t understand what grief was. (I’d already lost a brother and my mother, but that was not the same as losing my cosmic twin, the person who shared my thoughts and dreams, who lived in the same world I did.) I never expected the sheer physicality of grief, the physical wrenching, the feeling of amputation, the feeling of psychic starvation, the feeling of imbalance in the world, the sheer goneness of him.

Nor did I expect to still be worrying about him. Is he okay? Is his suffering really over?

His death was not a silent one. He moaned for days, though the nurses assured me he was feeling no pain, that he was sighing, that it was a common reaction for those who were dying. I remember standing there, exactly one year ago tonight, listening to him, worrying that he was suffering, and then one of his “sighs” became lyrical, almost like a note from a song, and I knew he was telling me he was all right.

I keep listening for some sound, looking for some sign that he is okay, but today all I hear is silence.

Grief: Counting Down to the First Anniversary

In three days it will be a year since the death of my life mate — my soul mate. I’ve been counting down the days with tears. I would have thought I’d have finished my weeping months ago, and for the most part I have, but here it comes again. I’ve been keeping busy, not wanting to drown in sorrow. In fact, I’ll be leaving in a few minutes to have lunch with friends. Like me, they lost their mates, and so their presence is a comfort. We’ll laugh and talk, and that will keep the tears at bay, but when I get back to the house, I’ll probably be sad again. And that’s okay. I’m finding that now, after a wave of intense grief, there is a backwash of peace.

The anniversary itself was supposed to have been a good day for me, not a celebration so much as an acknowledgement that I survived the year. And perhaps it will be a good day despite the upsurge in sorrow. My latest book, Light Bringer — the last one he helped me research and edit, the last one I read to him as I was writing it — will be published on his death day as a memorial to him (though the book itself won’t be available for another week or so). The book is his epitaph, his tombstone, the final resting place for our joint efforts. (There is one more book he influenced, but that book is only half finished, and I haven’t had the heart to work on it.)

During all this year, I haven’t been able to eat the foods we fixed together (with the exception of salads. Those I still can eat, though why, I don’t know since salads were a major component of our meals). So I thought a good sign of my healing would be to fix one of those meals I haven’t been able to eat. Today I am going to get the ingredients for his chili, and on the anniversary, I will cook a batch in his honor. I will probably watch a movie that he taped for us, which is what we always did on special occasions.

He would have enjoyed such a day. I wish with everything I have that he were here, but of course, if he were here, there would be no such anniversary to endure, to acknowledge, yes, even to celebrate.

Grief and Remembrance

The problem with grief is that while the subject of the grief stays gone, grief comes again and again, sometimes when one is least expecting it. I’d been doing well handling my grief after the death of the man with whom I spent thirty-four years of my life, yet these past couple of days grief has come to revisit me, and my sorrow is as great as it was a year ago.

I mentioned before about the terrible anniversaries of my grief. I lived through the first anniversary of the day pain struck him with such force that he took to bed for the rest of his life. I lived through the first anniversary of the day we got the diagnosis: inoperable kidney cancer. I lived through the first anniversary of the day we signed up for hospice, of the day we signed the DNR (the do not resuscitate order).

I had a hiatus of a couple of weeks where I was mostly at peace, then yesterday I was so overcome with grief that I wanted to scream out in anguish. I couldn’t figure out what hit me or why, but as it happens, the body remembers even when the mind doesn’t, and my body remembered that yesterday was the first anniversary of the last time we hugged, the last time we kissed.

And today . . . today is the first anniversary of the last time we talked. The last time he spoke to me. The last time he knew who I was. Today is also the anniversary of the day we took him to the hospice care center to live out the remaining few days of his life.

I’d been looking forward to the anniversary of his death, supposing that after a year of grieving I would be mostly finished with the pain, that he would have receded from my thoughts. It was a realistic expectation — my focus on him has been diminishing, so much so that sometimes it feels as if our life together was a story I told myself long ago — but as always, grief has its own agenda.

The past year seems to have disappeared. I know I lived it, know what I accomplished (and what I didn’t) yet the cliché is true — it passed in the blink of an eye. If I turn my head quickly, perhaps I will see him. He feels that close. If the world could turn back for just a second, I could catch him. Hang on to him. Never let him go.

But he is gone. And all the tears I shed this year will never bring him back.

Today was my grief support group day. I’d stopped going for a while. At the time, I wasn’t in the same place as the other bereft, and I was afraid I was doing them a disservice by my dissociation. After a few weeks, I did go back to be there for a friend, and today she and the group were there for me. Since I hadn’t had a memorial service for my mate, the facilitator asked me to say a eulogy, to make sense of his life, but I couldn’t make sense of it — I don’t understand the point of his having had to suffer so much. I could make sense of his life as pertains to me, though. I talked about how he accompanied and mentored me on my journey — my quest for truth and meaning — how he went with me as far as he could. Oddly, we’d used up our relationship, not in a bad way, but in a good way. We’d talked for hours on end, day after day, year after year. We read books and discussed them, studied films, researched various topics and shared information, tried to see the big picture and connect all the disparate parts of life.

I want so much to talk with him once more, to have one of those electric conversations where ideas were zinging back and forth, but the truth is, we said everything that was important. I have not come up with a single question for him this past year that he had not already answered. (Except for what he wants done with his ashes, but even that is an answer. If he cared, he would have told me.)

The last thing he ever said to me was, “Remember everything I told you.”

And I do remember.

Going Along for the Ride

Life takes odd twists and turns. It seemed to me, when my life-mate — my soul mate — was dying of inoperable kidney cancer, that our lives would never change. He’d been sick for so many years, dying cell by cell, that it felt as if we were locked in a horror show of endless, predictable misery. Last year at this time, his disintegration suddenly speeded up, and he started dying organ by organ. And then he was gone.

I’ve made no secret of my grief, of the pain his “goneness” has caused me, but through it all, I’ve been getting on with my life, trying to open myself to new experiences, trying to hope for . . . what? That is the kicker. How do you know what to hope for if you can’t even imagine where you are headed?

A couple days ago I sat in a restaurant, one thousand miles from our home, celebrating my birthday with new friends and acquaintances I’d met through a grief support group. Though all nine of us are trying to deal with the devastating loss of a loved one, we talked and laughed and had a good time. It showed me that there is life after death — we lived despite our loved ones’ deaths. And it showed me something else. That for all of life’s seeming predictability, it can still surprise. A year ago, when my life mate was a couple of weeks from death, there is no way I could ever have envisioned that restaurant scene.

Back then, I knew I’d have to leave our home, to find a temporary haven where I could deal with my grief, but I had no clear idea of where I wanted to go, and somehow I found myself in the desert. And, since I’d been a virtual hermit for years, I could never have guessed that I would make so many friends. Nor had I celebrated my birthday in . . . well, never mind how many years it’s been. And yet, there I was, with new friends in a time and place I couldn’t have even imagined a year ago.

So where am I going? How will I get there? Who will I be? Who will I be with?  There is no way of knowing. I’ll just have to go along for the ride and hope that everything works out when I get there. Wherever “there” is.

Standing Tearfully on the Cusp of . . .

My fourth book, Light Bringer, is going to be released later this month. I thought this would be an auspicious time, a time of endings and new beginnings. March is the two-year anniversary of my being published, it’s the anniversary of my birth, and it’s the first anniversary of my soul mate’s death. What I didn’t take into consideration is how emotional this month would be. I mean, I’ve had almost a year to get used to his death. I should be over it by now, right? Apparently not.

After his death, I told myself, “If you can just get through the first month, you’ll be fine.” I wasn’t. So then I told myself, “After the third month, you’ll be fine.” The months passed, and I still grieved, so I told myself, “After six months . . .” And, “after a year.” I’m nearing that first anniversary, but I don’t seem to be completely shedding my grief. Grief follows its own time. It will not, cannot be rushed. Even worse, I seem to be keyed into this same month last year — the final month of his life — and I feel as if I’m counting down to his death . . . again. The big difference is that last year I did not give in to emotion — at least not much and not until the end. His care was all that mattered. Well, I’m feeling now what I didn’t feel then. And just like last year, nothing I do can make him well.

This will be my first birthday without him, and oddly, it saddens me. We didn’t celebrate our birthdays. Sometimes we acknowledged them, sometimes we didn’t, but they were no big deal, just a change of numbers, so I’ve been wondering why this birthday troubles me, and tonight I figured it out. This is one of one of the big 0 birthdays, the one where you can no longer fool yourself into thinking you are still young (even the actuarial tables acknowledge this one as a major change). And here’s the kicker: my mate and I will not be growing old together. There will be no walking hand-in-hand in our twilight years, no reminiscing about our youth, no helping each other overcome the infirmities of age. “The end” has been written on our love story.

If that weren’t enough trauma for one month, Light Bringer is his memorial — his funeral service, obituary, epitaph — all rolled into one. Perhaps I shouldn’t imbue the book with such significance, but it is the culmination of two lifetimes of study — his and mine. It’s the last book he helped me edit, the last one I read to him from beginning to end. Once the book has been launched, it no longer belongs to us — to him and me. It belongs to anyone who reads it. And so one more piece of him will be gone from my life.

I’d hoped to be able to give the book a good send-off, but it’s hard to think of fun, innovative ways to promote when I’m constantly reminded that he won’t be here to help me celebrate. And it is something to celebrate. (Heck, I’m even going to celebrate my birthday!) So, here I am, at the beginning of this auspicious month, standing tearfully on the cusp of . . . what? I don’t know.

The Ferris Wheel of Life

Relationships, especially between long-term couples, change continuously, but we seldom notice those changes in the whirr and whirl of everyday life. Even our images of each other change to accommodate the passing years. We are always “us.”

A day or two after my life mate died, I couldn’t visualize him, so I looked at the only photo I have of us, and I wept because I did not recognize him. Fifteen years ago, when that photo was taken, it was an exact likeness of him, but during the years of illness, he lost the fullness in his face, first becoming distinguished looking, then gaunt. I have an idea/image of him in my mind, perhaps a composite of him through the years, perhaps what he actually looked like near the end, and that single photo I have of him does not resemble the person I knew. One more thing to mourn.

That is the problem with grief, there is always one more thing to mourn.

It’s not just our internal images of a person that changes to accommodate the vagaries of age; our internal image of the relationship itself changes to accommodate the vagaries of life. Most of the transformation of a relationship from youthful and passionate to aged and (perhaps) wise and companionable goes unnoticed. We are always who we are. We are always in the present.

The big events of life — starting a business or losing one, having children or losing them — we celebrate or grieve as the case may be, but other things disappear without acknowledgement. We used to walk together, ride bikes, play tennis, kick a soccer ball, but such activities were supplanted with other, more sedentary activities as his health deteriorated. But still, there we were, on the great Ferris wheel of our relationship — always current, always us. And then he died.

When one of a couple dies, the Ferris wheel of your shared life comes to a halt. Those who have not experienced the loss of a long-time mate think that the Ferris wheel continues with the survivor, but that isn’t true. It looms there, empty. The continually evolving, revolving living relationship is dead. All you have is what has already happened, and now you can see every transformation throughout all the years. You don’t simply mourn the man he was at the end, you also mourn the man you met and the men he became during the subsequent years. And you grieve for all those little things that passed unnoticed during the course of your relationship. They didn’t matter while you were together because you were together, but now they add to the overwhelming whole of grief.

Gradually, the survivor climbs aboard another Ferris wheel of her own, but the original one still haunts. If I live long enough, my grief will fade and perhaps disappear in the whirr and whirl of everyday life, but for now, newly recalled memories keep seeping into my life, and they have to be processed, mourned, dealt with. Sometimes these are minor issues, sometimes major. And all a surprise. How could so much have happened during those quiet years?

One recurring theme in our lives was vitamins and other food supplements. We met at his health food store. The first time we connected physically was when he handed me a bottle of vitamin A and our touch lingered. The first time our gazes locked was over his checkout counter. The supplement regimen he created for me changed as new research came out, but always, there were the supplements, a symbol of how much he cared for me. Now all that loss has to be dealt with somehow.

And that is just one aspect of our shared life. There were almost 34 years worth of good things and bad. 408 months. 1756 weeks. 12,296 days. When he was alive, all those days blended together, but now each exists separately, a thing in itself. A thing to be mourned. No wonder grief is such a major undertaking.