I Am an Eleven-Month Grief Survivor

February 27, 2011 — Pat Bertram

Eleven months ago, my life mate — my soul mate — died of inoperable kidney cancer. He took a final breath, his Adam’s apple bobbed twice, and then he was gone. It was a silent night — no storm lashing out in anger, no rain falling like tears, just the quiet passing of a quiet man. Nothing remained of him at the end but skin stretched around a skeleton without enough weight to make a dent in the bed, yet he left behind a hole in my life and my heart that will never be filled.

We’d been together thirty-four years. In comparison, eleven months seems like a mere blip in time, yet those few months contain an eon of sorrow and pain. He’d been dying for so long that I was glad when his suffering ended. Because of it, I truly did not expect to grieve, and I didn’t at first. I just sat in the room with his body and waited for the funeral director. The people at the hospice care center wanted me to finish the night there, but I couldn’t stay, so after they removed his body (not in a body bag but covered with a red plush blanket — he would have liked that), I headed back to the house. (You notice I don’t say I headed back home? He was my home. The house was just a house.)

I’m not sure when the grief hit me, but when it did, it slammed into me with such force I have not yet recovered my balance. It wasn’t a single body slam — the grief continued to grow for many weeks, until it all but consumed me. It didn’t consume me, of course. I managed to do all the terrible tasks of death: the grim paperwork, the final bills, the disposition of his effects. I’ve even managed to get on with my life. I’ve made friends. I’ve gone to museums. I take care of myself (most of the time, anyway. I still don’t always eat right, don’t always exercise, though I do walk for miles almost every day.)

On meeting me, you’d never know of my sorrow. I laugh, talk, joke, act like a normal person. And I am normal. Grief is now part of my normalcy. Every Friday night and Saturday, it descends on me. (Though upsurges of grief can occur any time without warning.) I cannot go to sleep on Friday nights until after 1:40 am, the hour of his death. Even if I don’t remember, my body does. And then, there is my time of the month — the date of his death. The 27th.

Yesterday I got an email from my sister: Can I tell you something I just love about you? I love your sense of irony, your talent for observation of seemingly insignificant details, and your almost-spiritual gift for connecting dots across time and distance. I thanked her, telling her I so needed to hear something nice, and she responded: Well, considering it’s Saturday, and considering the time of month, you just can’t hear enough nice things today, that’s what I’m thinking.

My time of the month. That used to mean something completely different, but now it means only this: I survived another twenty-eight or thirty or thirty-one days without him.

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Surprised by Grief

February 23, 2011 — Pat Bertram

I continue to be surprised by the intensity and depth and variability of grief. It’s been more than ten months since my life mate — my soul mate – died. Most days now I feel normal, but “normal” for me is his being safe at home, perhaps in the other room, perhaps outside shoveling snow or watering our trees. The renewed realization that he is gone from this life still brings me raw pain. I’m getting used to being alone — in some ways, that aloneness feels normal, too. Until I met him, I’d always expected to be alone, and so part of me is looping back to that earlier life when I had only my concerns to worry about.

Still, despite that normalcy, there are days when it feels as if he just left, as if he walked out on me (or I walked out on him) and it’s a matter of time until we reconcile our differences. I don’t know where such thoughts come from — we had no major differences. Well, except for the soul-shaking differences that came when our journeys diverged — his into death, mine into continued life.

I mentioned before that love and grief were the bookends of a relationship. Because of its intensity, the ability to change a person’s life and outlook, and the all-consuming focus on another person, grief seems to mimic falling in love, though in a bleaker, blacker, lonelier way. And like love, grief stirs up your depths, making you realize you are more than you ever thought you could be. As I’m slowly beginning to define my life solely by me, not by “us”, I’m seeing another similarity. When a couple embarks on a life together, they learn to depend on each other, to find ways to complement each other, to meld their likes and dislikes, their hopes and frustrations into a workable emotional environment for both parties. When half of a couple dies, the person left behind has to find a way to unmeld. To go from thinking about both of you, to thinking solely of yourself, to depending solely on yourself. It’s hard and painful and feels futile at times. (Because, you think, if life is worth living, he would still be here.)

It’s like a teeter-totter. When one person leaves abruptly, you crash to the ground. You do learn to play by yourself, but you are always aware that the other side is empty. Gradually, you get used to it, though — or at least resigned. And that’s where I am, most of the time. Resigned.

I’m even getting resigned to that great yearning I once talked about, especially since it’s nothing new. Looping back to the time before I met him, when I was young, I remember being consumed by yearning, though I never knew for what. I didn’t feel it when we were together, but I feel it now. Could that yearning have been for him? Or could our being together have masked the earlier yearning? Just one of the many questions stirred up from the depths by grief.

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The First Terrible Anniversaries of Grief

February 14, 2011 — Pat Bertram

The first anniversaries, holidays, and special days after a loved one’s death are difficult because we are so intensely aware that the person is no longer here to share in the joyous occasions. This is especially true if that person is a spouse, a life mate, a soul mate. Whatever traditions we developed together become obsolete when only one of us remains to carry on. The pain, the yearning to be together once more can be devastating on these days.

If those first anniversaries do not mark joyous occasions and celebrations but days of horror, the pain is oh, so much worse.

This has been a particularly difficult month for many who lost their mates because Valentine’s Day is shoved down our throats. Wherever we go, we see images of happy couples. We remember we once were loved, once were part of a couple, and now we are not. Oddly enough, my upsurge in grief this month has nothing to do with Valentine’s Day. We were not a romantic couple, did not see the point of following the crowd and celebrating a day just because someone once decided we should. We ignored the day, hence it has no baggage to bring me pain. In fact, today was a good day for me — I had lunch with a couple of friends from my grief group. We have graduated from the need for the group but still need the companionship of those who have experienced the same losses, so today we initiated our own little social group. There was no maudlin talk, just the normal pleasantries of friends sharing a meal.

Still, this has been a dreadful month for me, a month of painful anniversaries. A year ago last week, my life mate — my soul mate — bent down to pick up something off the floor and pain hit him so severely, it sent him to bed for the rest of his life. A year ago next week we got the diagnosis. At the beginning of March, when he saw a doctor for the last time, the oncologist told him he had three to six months to live. Two days after that, we signed up for hospice. Three weeks later, he died.

I hadn’t thought of these days as anniversaries, so I did not steal myself for the onrush of grief. But grief has a schedule all its own, and it came for me. Again. How can his descent into these final stages of dying have begun a year ago? Those days seem so close that if my arms were long enough, I could reach behind me and touch him. Hug him. Keep him safe.

Today, thinking about his last weeks of unendurable pain, I feel self-indulgent for all my yearning to have him back. How could I ever subject him to that again? And yet, like a child, I weep for what I cannot have. I wonder what, in my youth or childhood, I did that was so terrible to deserve such punishment. I listen for the phone, hoping he’ll call me and tell me he forgives me and I can come home.

Grief is irrational. It stems from a part of us that has no logic. I know I did nothing to send him away. I know he is never going to call me again. I know I am not being punished for some long ago transgression.

And yet the grief keeps pounding at me during this time of terrible anniversaries.

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Advice to the Newly Bereft

February 2, 2011 — Pat Bertram

A couple of newly bereft joined the grief group I go to, and seeing how lost and bewildered they are showed me how far I have come these past months. I’ve reached a modicum of peace (though I still have moments of intense grief) and I don’t feel quite so lost and bewildered.

The Kubler-Ross formula for grief is so ingrained in all of us that we think those are the only stages of grief, but I have discovered dozens of phases more universal and potent than denial, guilt, anger, depression. Loss and bewilderment are two such phases. They are major components of grief, though I haven’t found them listed anywhere as a stage the bereft have to deal with.

The worst problem of grief, of course, is that someone who was a vital part of our life is dead. The second worst problem is that we are flooded with so many emotions, topped off with excruciating pain, that it is almost impossible to sort everything out. All these emotions gridlock the brain’s synapses, and we are left feeling lost and alone and totally bewildered. Where did our loved one go? How can he no longer be here? How can the world continue without his presence? How can I continue without his support and love? How can he be so very gone?

That “loss” everyone tells us they are sorry for is not our loved ones. Our loved ones are not lost, not misplaced; they are dead. We bereft are the ones who are lost. Whatever place we thought we had in the world is gone, perhaps forever. The world is different without our loved ones, and this is especially so if the dead we loved was a life partner, a soul mate. They’d become such a part of the fabric of our lives, of our very being, that when death rips them from us, we no longer recognize ourselves. We wander lost, bewildered, in this alien world. Some people manage to find themselves again, others become so changed they never find their way back.

I’d gone through the typical stages of grief before my life mate — my soul mate — died. I’d denied, raged, bargained, accepted, so that I thought I was “over” him, that after his death, my life would continue, sadder, but not much different. The depth of my grief, my loss, my pain, my bewilderment stunned me. I’d gone through all the stages of grief, so I should be okay, right? Wrong. Real grief begins where those so-called stages of grief leave off. Those stages of grief were first noted as the way people learned to accept their coming death, and they bear only a shadow of a resemblance to what those left behind experience.

My life mate and I used to talk about who had it worse — I thought he had it worse because he was the one suffering. He thought I had it worse. It turns out he was right. His suffering is over, but mine will last the rest of my life. My grief will continue to change, to go through additional changes, will abate, might even be forgotten at times, but it is now a part of my life.

And he is not.

That is the crux of the issue, the cause of all that bewilderment, pain, and loss. How do you live with someone who is no longer there? How do you live without them? Here’s how: you find comfort wherever you can, however you can. (Besides drink and recreational drugs, that is.) No matter what you do to get through the worst of your pain, no matter how crazy it is, be assured that others have done it, too. Hug the urn with his ashes, carry his identification, smell or cuddle or wear his clothes, talk to him, scream for him, cover the wall with his photos, write to him, write blogs about your grief. Do whatever it takes to get you through, because, as hard as it is to accept, you are still alive.

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I Am a Ten-Month Grief Survivor

January 27, 2011 — Pat Bertram

I mentioned to someone the other day that it’s been ten weeks since the death of my life mate and that I didn’t know how I managed to survive that long, then it hit me. It hasn’t been ten weeks. It’s been ten months. How is it possible to live almost a year with half your heart ripped out? I still don’t know, but I do the only thing I can: live.

After the nine-month mark, I had a respite from grief. I liked the symmetry of nine months of grief (gestation) before being born into a new life, but as happens with grief, the respite was merely that — a respite. A couple of weeks ago, the need to see my mate one more time grew so great it felt as if the yearning would explode from my body like the creature in Alien. The feeling came and went for a while, and now the creature has gone back into hibernation. But still, the yearning lingers.

I’m learning to live with the remnants of my grief. From others who have also borne such a loss, I’ve come to understand this is the next phase of grief — not soul-destroying pain as at the beginning, but blips of varying intensity and frequency. I know I can deal with this new stage of grief because I have been dealing with my grief all along, but still, a part of me rebels at the necessity.

Planning signifies hope and is supposed to be a sign of healing. Strangely (or perhaps not strangely; perhaps it’s to be expected ) every time I make plans, I have an upsurge of grief. Plans take me further away from him and our life. They remind me of similar things we did together, and they tell me that from now on, he won’t be sharing new experiences with me. Still, I am not holding myself back. I need to fill the hole he left behind, and new experiences are one way of doing that.

In the past four months I’ve gone to various art galleries. I’ve seen Mesoamerican antiquities, aristocratic clothing through the ages, local artists, classic art work. I went to a wild life sanctuary where they take care of captive-bred animals that zoos don’t want. I went to the beach. In May, I’ll be going to a writer’s conference where I’ll be a speaker.

All this shows that I’m moving on, and yet . . .

And yet he’s still gone. That goneness is something I struggle with — how can he be dead? I wanted his suffering to be over, so I was relieved when he died, but somehow I never understood how very gone he would be. I don’t want him to be gone, but he’s not coming back, and there is not a damn thing I can do about it.

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Trying to Relight My Life

January 23, 2011 — Pat Bertram

When I was in high school, I participated in a thesis project for a doctoral candidate. He was trying to prove (I think) that given the right tools, anyone could teach and anyone could learn. The high school students were to teach kids from the lower grades about various aspects of science. During the first class, I handed each of my students a battery and a light bulb and asked them to turn on the light. They couldn’t of course. I asked what they needed, and one kid said they needed a wire. I handed everyone a wire. A bit of experimentation later, they realized they needed a second wire. So, I handed out another wire, and in a very short time all those light bulbs were lit.

I’ve been thinking a lot about that recently — not the program so much as those wires linking the battery terminals to the light bulb. It seems to me that ever since the death of my life mate, one of the wires is missing from my electrical system, and nothing lights me.

Take movies, for example.

My family didn’t have a television when I was growing up, and we seldom went to the movies, so I read to get my daily dose of stories. I wasn’t a speed reader, but was a skimmer — if there was a boring part, such as long descriptions, inane dialogue, and action scenes that went nowhere, I fast forwarded. Skimmed in other words. As a young adult, I went to the movies occasionally, but found most of them dull since I couldn’t skip over the boring parts.

After we’d been together for a few years, my life mate and I signed up for an assortment of movie channels. Back then there were only four premium channels, and those channels offered dozens and dozens of new choices every month. The two of us became entranced with movies. It was something we could share, and the enjoyment we each felt enhanced the enjoyment the other felt. The humor was funnier when shared. The tender scenes more touching. The scary scenes more horrifying. And I wasn’t bored. Didn’t need to skim.

He started taping the movies we liked, then he taped those he liked that I didn’t (such as genre westerns and war movies) then he went on to tape good parts of bad movies and finally he taped the best of the rest.

He’s gone now, but his movie collection remains. I have over 1000 movies to sort through (since I won’t be able to keep them all), so I’ve been watching a lot of movies lately, and I discovered something interesting. The movies that thrilled us, made us laugh, electrified us, the movies that radiated life — the movies that once seemed life personified — are now simply . . . movies. Films. Faded stories on a flat screen. As with the films I saw as a young adult (before I met him), these movies now seem to have nothing to do with me. I watch them. Can even enjoy them, but that’s all. Turns out, I needed two “wires” to make the stories live in me, and one of the wires is permanently defunct.

I’m not even attempting to watch the movies we especially loved, the ones that seemed to be made just for us. Without the other electrical “wire” these movies might also prove to be lifeless streams of motion, which would be unbearably sad. And if the movies still hold up, I couldn’t bear the sadness of watching them alone, without him. I’m sure eventually I’ll find the courage to view them again, but not today.

If the missing wire only affected movie watching, I’d chalk it up to one more loss among so many, but the truth is, with his being gone, nothing seems real. It was as if his smile when I told him good news or his commiseration at bad news or his laugh at silly news grounded me, and made everything more vibrant.

I am getting back into the swing of my life, and I’m starting to feel “normal.” Perhaps someday I might even find a way to relight my life despite that missing wire.

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Grief Update — Throwing a Tantrum

January 16, 2011 — Pat Bertram

I haven’t blogged about grief recently. Actually, I haven’t blogged about anything for a while. I’m in a transitional stage — not sure what I’m feeling, not sure what direction I want to go with this blog, not sure what I want to do with the rest of my life. I’ve been purposely thinking of other things than the death of my soul mate, though grief does geyser up without my volition now and again, especially on Saturdays, the day of the week he died. Even if I’m not consciously aware of that day, still, nine and a half months later, something in me acknowledges the date, and sadness grabs hold of me.

Except not this Saturday. This Saturday (yesterday), I wanted to throw myself on the ground and beat the floor in a full-fledged tantrum. I’ve never thrown a tantrum in my life, but if I’d been someplace where no one could hear me, I would have made an exception. I wanted desperately to talk to him. His death was the most significant aspect of our lives since the day we met, and he’s not here for us to compare notes. I want know how he’s doing. I want to know what he’s doing. Is he doing anything, feeling anything? Or is he drifting on a sea of light, like a newborn star?

It seems impossible that he’s gone, and the simple truth is that I don’t want him to be dead. Sure, I can handle it. Sure, I can deal with living the rest of my life alone. Sure, I can do whatever I need to do. But I don’t want to. I want him. I want to see him. I want to see his smile. I want . . . I want . . . I want . . . All those wants erupted Saturday night, hence the desire to throw a tantrum.

I’ve never heard of tantrum as a phase of grief, but I’ve never heard of most of the stages I’ve gone through. My grief cycle does not at all resemble the stages defined by Kubler Ross. Hers is a simplistic view of grief when in fact grief is a cyclical emotional and physical quagmire. The frequency of my grief eruptions has diminished, and so has the worst of my pain, but the hole his death created in my life remains. I try filling the emptiness with physical activity, talking to people, reading, writing, even eating, but nothing fills the want.

How can someone who was so much a part of my life be gone? Even if he is waiting for me on the other side of eternity, he’s still gone from this life. And I don’t want him to be. I want . . . I want . . . I want . . .

Clear the area. I feel a tantrum coming on.

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Grief: The Great Yearning

January 6, 2011 — Pat Bertram

Now that my grief for my lost soul mate is evolving away from a focus on all I’ve lost and the accompanying pain, I can see the process more clearly. Perhaps for some people the stages of grief — denial, guilt, anger, depression, acceptance — hold true, but for me and for most of the bereft I have met on this journey, those stages have little meaning. For most of us, anger and even guilt are more like quickly passing moods than lingering phases. Some of us get depressed, but most of us don’t. We’re just get damn sad, which is not the same thing as depression. I’ve been in that dark pit and I know what it’s like. This sorrow, no matter how intense, is not depression. And acceptance is not the end — in itself acceptance brings no peace. What does bring peace is feeling the grief and letting it evolve into something we can live with because the loss — the yearning — will always be a part of us. Getting to that point can take years, depending on the depth of the relationship.

Grief is an incredibly complex state that constantly changes and constantly brings changes. The underlying emotion of grief is yearning, not guilt or anger. Even after we’ve put our shattered psyches back together as best as we can, even after we’ve come to an acceptance of our new situation, the yearning to see our loved one last time can be overwhelmingly painful at times. The yearning (such a mild word for the ache or craving or hunger that tears at us) is often manageable, other times it shoots through us like a geyser bursting out of calm waters. Even decades after losing a spouse, or so I’ve been told, we bereft still feel the loss, still yearn for our mates.

A friend who lost her life mate four months after I lost mine, told me how much she hates people telling her to “move on”. She’s not like me, spouting her pain into cyberspace for all to see. If you didn’t know she’d experienced such a soul-shattering loss, you’d never be able to guess it — she’s keeping her grief to herself lest it burden others. She’s taking care of her family. She’s accepting the responsibility for an aging parent. She made the holidays special for those around her. She’s writing. She’s even going out and having fun, or at least as much as is possible considering her situation. In fact, she’s doing all that she ever did, and doing it well. Yet people tell her to move on with her life. What else is there to move on to? Her grief in no way debilitates her. It’s simply a part of her life, this ache to see her mate one more time.

Searching is another major component of grief that is ignored in the “stages” concept. We bereft search for our mates in crowds. We cry out for them, especially at the beginning. We search for them in our dreams. Of course we know we won’t find them. This isn’t a mental aberration, and it certainly isn’t denial. It’s simply a way of coping with the unthinkable. How can our loved ones be gone so completely? It’s the goneness that confuses us, pains us. It destroys everything we always accepted about the world. (Of course we knew all lives end in death, but we didn’t KNOW it.) As the search for our lost one diminishes, we begin searching for ourselves, for our place in this new, unthinkable world.

It would be so much easier to deal with grief if we had a list of stages to go through and to check off as we experience them, but that simply isn’t the case.

So we yearn, and we search, and we go on living.

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Grief Takes as Long as It Takes

January 5, 2011 — Pat Bertram

I’ve been thinking about writing a book about grief, combining my grief blogs, the letters I’ve written to my dead mate, the journal I kept those first few months after he died, and the various bits of information about dealing with grief I’ve collected during the past nine months. Now I’m wondering if anyone will want to read such a depressing book.

This morning, for the first time, I read some of those letters I wrote, and I couldn’t believe the raw pain. The writing chronicles my journey, and perhaps people will see beyond the pain to the insights and the struggle to find meaning after such a soulquake, yet jeez! It’s so damn sad. On the other hand, people might find comfort knowing they are not the only ones going through such trauma. On the other other hand, I might want to bury my head in the sand before I get halfway through putting the book together. On the other other other hand, it could be cathartic.

I did notice something interesting, though. The letters I first read this morning were the ones I wrote four or five months ago. Since those were so agonizing to read, I was afraid of looking at the first ones, but I held my breath and jumped in. Oddly, those first letters are more chatty than angst-ridden, like I was writing to someone who was only going to be gone for a short time. I remember the pain hitting me right after his death, which it did, but apparently it kept on growing until by the end of the first month (when I naively thought I’d be over it) I was so desperate, I went to a grief support group hoping someone could tell me how to survive. They couldn’t tell me, of course. They could only show me by their progress that it is possible to survive.

Good thing I don’t have to make a decision about the book for another three months. Or even longer. I don’t want to write it before the first year of grief is up because I don’t want to skew my healing, and besides, I’m hoping that after a year I’ll be more hopeful, wiser, stronger. Seems to me I’ve been saying that very thing for months. First, it was the end of the first month that was supposed to bring me hope, wisdom, strength. Then I thought I’d have achieved those things by the third month, then the sixth, the seventh, the ninth. Maybe twenty-four or thirty-six months is more realistic. Unfortunately (or perhaps fortunately?) grief takes as long as it takes.

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Building Hopes and Creating Dreams

January 1, 2011 — Pat Bertram

And so ends the worst year of my life.

Last year was a time of soul-shattering loss, grief, and strange blessings. It was a time of despair and self-realization, transition and adjustment. But of course, you know all that — I’ve made no secret of my ordeal, chronicling every painful stage of my journey. Many people endure worse traumas than the death of a soul mate, and they continue living without whimpering, which has made me feel a bit self-indulgent and whiny with my grief bloggeries, yet that was never my intention. The impact of grief after a major loss seems to be one more thing that has been discounted in our discount culture, and I simply wanted to tell the truth.

Oddly, I still don’t know the truth of it. It seems unreal at times. Was I really that woman? That woman who watched a man slowly die, who wanted the suffering to end, yet whose love was so ineffectual she couldn’t make him well or take away a single moment of his pain? That woman so connected to another human being she still feels broken nine months after his death? That woman who screamed the pain of her loss to the winds?

I’ve always considered myself a passionless woman, so how can that woman be me? During periods when I don’t feel the weight of his absence (I never feel his presence, though sometimes his absence feels normal, as if he’s simply in another room), during periods of emotional calm, my stoic side rules, making my grief feel fake, as if it’s something I’m doing to make myself seem important. Yet other times the desperate need to go home to him, to see him one more time, claws at me, tearing me apart.

Making the situation even more unreal, I can barely remember what he looked like — I do not think in images, so it’s understandable (though distressing) that I have no clear image of him in my mind. Even worse, I don’t have a photo that matches what I remember of him. (The only one I have was taken fifteen years ago.)

Nor do I have a clear sense of time. Sometimes it feels as if he died just a couple of months ago. Sometimes it feels like years. The demarcation between our shared life and my solitary life was once so stark it was like the edge of a cliff. All I could see was the past and what I had lost. The living I have done in the past nine months has blurred that edge, adding to the sense of unreality.

I have learned much this year. I learned the importance of importance. If there is nothing of importance in your life, you have to find something and make it important. I learned the importance of goals, even if it’s only the goal of getting through one more day. I learned the importance of hope, though hope for what I still don’t know, but that is part of the journey – building hopes, creating dreams, finding reasons to live.

And so begins a new year.

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