Grief: Counting Down to the First Anniversary

March 24, 2011 — Pat Bertram

In three days it will be a year since the death of my life mate — my soul mate. I’ve been counting down the days with tears. I would have thought I’d have finished my weeping months ago, and for the most part I have, but here it comes again. I’ve been keeping busy, not wanting to drown in sorrow. In fact, I’ll be leaving in a few minutes to have lunch with friends. Like me, they lost their mates, and so their presence is a comfort. We’ll laugh and talk, and that will keep the tears at bay, but when I get back to the house, I’ll probably be sad again. And that’s okay. I’m finding that now, after a wave of intense grief, there is a backwash of peace.

The anniversary itself was supposed to have been a good day for me, not a celebration so much as an acknowledgement that I survived the year. And perhaps it will be a good day despite the upsurge in sorrow. My latest book, Light Bringer — the last one he helped me research and edit, the last one I read to him as I was writing it — will be published on his death day as a memorial to him (though the book itself won’t be available for another week or so). The book is his epitaph, his tombstone, the final resting place for our joint efforts. (There is one more book he influenced, but that book is only half finished, and I haven’t had the heart to work on it.)

During all this year, I haven’t been able to eat the foods we fixed together (with the exception of salads. Those I still can eat, though why, I don’t know since salads were a major component of our meals). So I thought a good sign of my healing would be to fix one of those meals I haven’t been able to eat. Today I am going to get the ingredients for his chili, and on the anniversary, I will cook a batch in his honor. I will probably watch a movie that he taped for us, which is what we always did on special occasions.

He would have enjoyed such a day. I wish with everything I have that he were here, but of course, if he were here, there would be no such anniversary to endure, to acknowledge, yes, even to celebrate.

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Grief and Remembrance

March 22, 2011 — Pat Bertram

The problem with grief is that while the subject of the grief stays gone, grief comes again and again, sometimes when one is least expecting it. I’d been doing well handling my grief after the death of the man with whom I spent thirty-four years of my life, yet these past couple of days grief has come to revisit me, and my sorrow is as great as it was a year ago.

I mentioned before about the terrible anniversaries of my grief. I lived through the first anniversary of the day pain struck him with such force that he took to bed for the rest of his life. I lived through the first anniversary of the day we got the diagnosis: inoperable kidney cancer. I lived through the first anniversary of the day we signed up for hospice, of the day we signed the DNR (the do not resuscitate order).

I had a hiatus of a couple of weeks where I was mostly at peace, then yesterday I was so overcome with grief that I wanted to scream out in anguish. I couldn’t figure out what hit me or why, but as it happens, the body remembers even when the mind doesn’t, and my body remembered that yesterday was the first anniversary of the last time we hugged, the last time we kissed.

And today . . . today is the first anniversary of the last time we talked. The last time he spoke to me. The last time he knew who I was. Today is also the anniversary of the day we took him to the hospice care center to live out the remaining few days of his life.

I’d been looking forward to the anniversary of his death, supposing that after a year of grieving I would be mostly finished with the pain, that he would have receded from my thoughts. It was a realistic expectation — my focus on him has been diminishing, so much so that sometimes it feels as if our life together was a story I told myself long ago — but as always, grief has its own agenda.

The past year seems to have disappeared. I know I lived it, know what I accomplished (and what I didn’t) yet the cliché is true — it passed in the blink of an eye. If I turn my head quickly, perhaps I will see him. He feels that close. If the world could turn back for just a second, I could catch him. Hang on to him. Never let him go.

But he is gone. And all the tears I shed this year will never bring him back.

Today was my grief support group day. I’d stopped going for a while. At the time, I wasn’t in the same place as the other bereft, and I was afraid I was doing them a disservice by my dissociation. After a few weeks, I did go back to be there for a friend, and today she and the group were there for me. Since I hadn’t had a memorial service for my mate, the facilitator asked me to say a eulogy, to make sense of his life, but I couldn’t make sense of it — I don’t understand the point of his having had to suffer so much. I could make sense of his life as pertains to me, though. I talked about how he accompanied and mentored me on my journey — my quest for truth and meaning — how he went with me as far as he could. Oddly, we’d used up our relationship, not in a bad way, but in a good way. We’d talked for hours on end, day after day, year after year. We read books and discussed them, studied films, researched various topics and shared information, tried to see the big picture and connect all the disparate parts of life.

I want so much to talk with him once more, to have one of those electric conversations where ideas were zinging back and forth, but the truth is, we said everything that was important. I have not come up with a single question for him this past year that he had not already answered. (Except for what he wants done with his ashes, but even that is an answer. If he cared, he would have told me.)

The last thing he ever said to me was, “Remember everything I told you.”

And I do remember.

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Going Along for the Ride

March 13, 2011 — Pat Bertram

Life takes odd twists and turns. It seemed to me, when my life-mate — my soul mate — was dying of inoperable kidney cancer, that our lives would never change. He’d been sick for so many years, dying cell by cell, that it felt as if we were locked in a horror show of endless, predictable misery. Last year at this time, his disintegration suddenly speeded up, and he started dying organ by organ. And then he was gone.

I’ve made no secret of my grief, of the pain his “goneness” has caused me, but through it all, I’ve been getting on with my life, trying to open myself to new experiences, trying to hope for . . . what? That is the kicker. How do you know what to hope for if you can’t even imagine where you are headed?

A couple days ago I sat in a restaurant, one thousand miles from our home, celebrating my birthday with new friends and acquaintances I’d met through a grief support group. Though all nine of us are trying to deal with the devastating loss of a loved one, we talked and laughed and had a good time. It showed me that there is life after death — we lived despite our loved ones’ deaths. And it showed me something else. That for all of life’s seeming predictability, it can still surprise. A year ago, when my life mate was a couple of weeks from death, there is no way I could ever have envisioned that restaurant scene.

Back then, I knew I’d have to leave our home, to find a temporary haven where I could deal with my grief, but I had no clear idea of where I wanted to go, and somehow I found myself in the desert. And, since I’d been a virtual hermit for years, I could never have guessed that I would make so many friends. Nor had I celebrated my birthday in . . . well, never mind how many years it’s been. And yet, there I was, with new friends in a time and place I couldn’t have even imagined a year ago.

So where am I going? How will I get there? Who will I be? Who will I be with?  There is no way of knowing. I’ll just have to go along for the ride and hope that everything works out when I get there. Wherever “there” is.

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Standing Tearfully on the Cusp of . . .

March 8, 2011 — Pat Bertram

My fourth book, Light Bringer, is going to be released later this month. I thought this would be an auspicious time, a time of endings and new beginnings. March is the two-year anniversary of my being published, it’s the anniversary of my birth, and it’s the first anniversary of my soul mate’s death. What I didn’t take into consideration is how emotional this month would be. I mean, I’ve had almost a year to get used to his death. I should be over it by now, right? Apparently not.

After his death, I told myself, “If you can just get through the first month, you’ll be fine.” I wasn’t. So then I told myself, “After the third month, you’ll be fine.” The months passed, and I still grieved, so I told myself, “After six months . . .” And, “after a year.” I’m nearing that first anniversary, but I don’t seem to be completely shedding my grief. Grief follows its own time. It will not, cannot be rushed. Even worse, I seem to be keyed into this same month last year — the final month of his life — and I feel as if I’m counting down to his death . . . again. The big difference is that last year I did not give in to emotion — at least not much and not until the end. His care was all that mattered. Well, I’m feeling now what I didn’t feel then. And just like last year, nothing I do can make him well.

This will be my first birthday without him, and oddly, it saddens me. We didn’t celebrate our birthdays. Sometimes we acknowledged them, sometimes we didn’t, but they were no big deal, just a change of numbers, so I’ve been wondering why this birthday troubles me, and tonight I figured it out. This is one of one of the big 0 birthdays, the one where you can no longer fool yourself into thinking you are still young (even the actuarial tables acknowledge this one as a major change). And here’s the kicker: my mate and I will not be growing old together. There will be no walking hand-in-hand in our twilight years, no reminiscing about our youth, no helping each other overcome the infirmities of age. “The end” has been written on our love story.

If that weren’t enough trauma for one month, Light Bringer is his memorial — his funeral service, obituary, epitaph — all rolled into one. Perhaps I shouldn’t imbue the book with such significance, but it is the culmination of two lifetimes of study — his and mine. It’s the last book he helped me edit, the last one I read to him from beginning to end. Once the book has been launched, it no longer belongs to us — to him and me. It belongs to anyone who reads it. And so one more piece of him will be gone from my life.

I’d hoped to be able to give the book a good send-off, but it’s hard to think of fun, innovative ways to promote when I’m constantly reminded that he won’t be here to help me celebrate. And it is something to celebrate. (Heck, I’m even going to celebrate my birthday!) So, here I am, at the beginning of this auspicious month, standing tearfully on the cusp of . . . what? I don’t know.

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The Ferris Wheel of Life

March 6, 2011 — Pat Bertram

Relationships, especially between long-term couples, change continuously, but we seldom notice those changes in the whirr and whirl of everyday life. Even our images of each other change to accommodate the passing years. We are always “us.”

A day or two after my life mate died, I couldn’t visualize him, so I looked at the only photo I have of us, and I wept because I did not recognize him. Fifteen years ago, when that photo was taken, it was an exact likeness of him, but during the years of illness, he lost the fullness in his face, first becoming distinguished looking, then gaunt. I have an idea/image of him in my mind, perhaps a composite of him through the years, perhaps what he actually looked like near the end, and that single photo I have of him does not resemble the person I knew. One more thing to mourn.

That is the problem with grief, there is always one more thing to mourn.

It’s not just our internal images of a person that changes to accommodate the vagaries of age; our internal image of the relationship itself changes to accommodate the vagaries of life. Most of the transformation of a relationship from youthful and passionate to aged and (perhaps) wise and companionable goes unnoticed. We are always who we are. We are always in the present.

The big events of life — starting a business or losing one, having children or losing them — we celebrate or grieve as the case may be, but other things disappear without acknowledgement. We used to walk together, ride bikes, play tennis, kick a soccer ball, but such activities were supplanted with other, more sedentary activities as his health deteriorated. But still, there we were, on the great Ferris wheel of our relationship — always current, always us. And then he died.

When one of a couple dies, the Ferris wheel of your shared life comes to a halt. Those who have not experienced the loss of a long-time mate think that the Ferris wheel continues with the survivor, but that isn’t true. It looms there, empty. The continually evolving, revolving living relationship is dead. All you have is what has already happened, and now you can see every transformation throughout all the years. You don’t simply mourn the man he was at the end, you also mourn the man you met and the men he became during the subsequent years. And you grieve for all those little things that passed unnoticed during the course of your relationship. They didn’t matter while you were together because you were together, but now they add to the overwhelming whole of grief.

Gradually, the survivor climbs aboard another Ferris wheel of her own, but the original one still haunts. If I live long enough, my grief will fade and perhaps disappear in the whirr and whirl of everyday life, but for now, newly recalled memories keep seeping into my life, and they have to be processed, mourned, dealt with. Sometimes these are minor issues, sometimes major. And all a surprise. How could so much have happened during those quiet years?

One recurring theme in our lives was vitamins and other food supplements. We met at his health food store. The first time we connected physically was when he handed me a bottle of vitamin A and our touch lingered. The first time our gazes locked was over his checkout counter. The supplement regimen he created for me changed as new research came out, but always, there were the supplements, a symbol of how much he cared for me. Now all that loss has to be dealt with somehow.

And that is just one aspect of our shared life. There were almost 34 years worth of good things and bad. 408 months. 1756 weeks. 12,296 days. When he was alive, all those days blended together, but now each exists separately, a thing in itself. A thing to be mourned. No wonder grief is such a major undertaking.

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I Am an Eleven-Month Grief Survivor

February 27, 2011 — Pat Bertram

Eleven months ago, my life mate — my soul mate — died of inoperable kidney cancer. He took a final breath, his Adam’s apple bobbed twice, and then he was gone. It was a silent night — no storm lashing out in anger, no rain falling like tears, just the quiet passing of a quiet man. Nothing remained of him at the end but skin stretched around a skeleton without enough weight to make a dent in the bed, yet he left behind a hole in my life and my heart that will never be filled.

We’d been together thirty-four years. In comparison, eleven months seems like a mere blip in time, yet those few months contain an eon of sorrow and pain. He’d been dying for so long that I was glad when his suffering ended. Because of it, I truly did not expect to grieve, and I didn’t at first. I just sat in the room with his body and waited for the funeral director. The people at the hospice care center wanted me to finish the night there, but I couldn’t stay, so after they removed his body (not in a body bag but covered with a red plush blanket — he would have liked that), I headed back to the house. (You notice I don’t say I headed back home? He was my home. The house was just a house.)

I’m not sure when the grief hit me, but when it did, it slammed into me with such force I have not yet recovered my balance. It wasn’t a single body slam — the grief continued to grow for many weeks, until it all but consumed me. It didn’t consume me, of course. I managed to do all the terrible tasks of death: the grim paperwork, the final bills, the disposition of his effects. I’ve even managed to get on with my life. I’ve made friends. I’ve gone to museums. I take care of myself (most of the time, anyway. I still don’t always eat right, don’t always exercise, though I do walk for miles almost every day.)

On meeting me, you’d never know of my sorrow. I laugh, talk, joke, act like a normal person. And I am normal. Grief is now part of my normalcy. Every Friday night and Saturday, it descends on me. (Though upsurges of grief can occur any time without warning.) I cannot go to sleep on Friday nights until after 1:40 am, the hour of his death. Even if I don’t remember, my body does. And then, there is my time of the month — the date of his death. The 27th.

Yesterday I got an email from my sister: Can I tell you something I just love about you? I love your sense of irony, your talent for observation of seemingly insignificant details, and your almost-spiritual gift for connecting dots across time and distance. I thanked her, telling her I so needed to hear something nice, and she responded: Well, considering it’s Saturday, and considering the time of month, you just can’t hear enough nice things today, that’s what I’m thinking.

My time of the month. That used to mean something completely different, but now it means only this: I survived another twenty-eight or thirty or thirty-one days without him.

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Surprised by Grief

February 23, 2011 — Pat Bertram

I continue to be surprised by the intensity and depth and variability of grief. It’s been more than ten months since my life mate — my soul mate – died. Most days now I feel normal, but “normal” for me is his being safe at home, perhaps in the other room, perhaps outside shoveling snow or watering our trees. The renewed realization that he is gone from this life still brings me raw pain. I’m getting used to being alone — in some ways, that aloneness feels normal, too. Until I met him, I’d always expected to be alone, and so part of me is looping back to that earlier life when I had only my concerns to worry about.

Still, despite that normalcy, there are days when it feels as if he just left, as if he walked out on me (or I walked out on him) and it’s a matter of time until we reconcile our differences. I don’t know where such thoughts come from — we had no major differences. Well, except for the soul-shaking differences that came when our journeys diverged — his into death, mine into continued life.

I mentioned before that love and grief were the bookends of a relationship. Because of its intensity, the ability to change a person’s life and outlook, and the all-consuming focus on another person, grief seems to mimic falling in love, though in a bleaker, blacker, lonelier way. And like love, grief stirs up your depths, making you realize you are more than you ever thought you could be. As I’m slowly beginning to define my life solely by me, not by “us”, I’m seeing another similarity. When a couple embarks on a life together, they learn to depend on each other, to find ways to complement each other, to meld their likes and dislikes, their hopes and frustrations into a workable emotional environment for both parties. When half of a couple dies, the person left behind has to find a way to unmeld. To go from thinking about both of you, to thinking solely of yourself, to depending solely on yourself. It’s hard and painful and feels futile at times. (Because, you think, if life is worth living, he would still be here.)

It’s like a teeter-totter. When one person leaves abruptly, you crash to the ground. You do learn to play by yourself, but you are always aware that the other side is empty. Gradually, you get used to it, though — or at least resigned. And that’s where I am, most of the time. Resigned.

I’m even getting resigned to that great yearning I once talked about, especially since it’s nothing new. Looping back to the time before I met him, when I was young, I remember being consumed by yearning, though I never knew for what. I didn’t feel it when we were together, but I feel it now. Could that yearning have been for him? Or could our being together have masked the earlier yearning? Just one of the many questions stirred up from the depths by grief.

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The First Terrible Anniversaries of Grief

February 14, 2011 — Pat Bertram

The first anniversaries, holidays, and special days after a loved one’s death are difficult because we are so intensely aware that the person is no longer here to share in the joyous occasions. This is especially true if that person is a spouse, a life mate, a soul mate. Whatever traditions we developed together become obsolete when only one of us remains to carry on. The pain, the yearning to be together once more can be devastating on these days.

If those first anniversaries do not mark joyous occasions and celebrations but days of horror, the pain is oh, so much worse.

This has been a particularly difficult month for many who lost their mates because Valentine’s Day is shoved down our throats. Wherever we go, we see images of happy couples. We remember we once were loved, once were part of a couple, and now we are not. Oddly enough, my upsurge in grief this month has nothing to do with Valentine’s Day. We were not a romantic couple, did not see the point of following the crowd and celebrating a day just because someone once decided we should. We ignored the day, hence it has no baggage to bring me pain. In fact, today was a good day for me — I had lunch with a couple of friends from my grief group. We have graduated from the need for the group but still need the companionship of those who have experienced the same losses, so today we initiated our own little social group. There was no maudlin talk, just the normal pleasantries of friends sharing a meal.

Still, this has been a dreadful month for me, a month of painful anniversaries. A year ago last week, my life mate — my soul mate — bent down to pick up something off the floor and pain hit him so severely, it sent him to bed for the rest of his life. A year ago next week we got the diagnosis. At the beginning of March, when he saw a doctor for the last time, the oncologist told him he had three to six months to live. Two days after that, we signed up for hospice. Three weeks later, he died.

I hadn’t thought of these days as anniversaries, so I did not steal myself for the onrush of grief. But grief has a schedule all its own, and it came for me. Again. How can his descent into these final stages of dying have begun a year ago? Those days seem so close that if my arms were long enough, I could reach behind me and touch him. Hug him. Keep him safe.

Today, thinking about his last weeks of unendurable pain, I feel self-indulgent for all my yearning to have him back. How could I ever subject him to that again? And yet, like a child, I weep for what I cannot have. I wonder what, in my youth or childhood, I did that was so terrible to deserve such punishment. I listen for the phone, hoping he’ll call me and tell me he forgives me and I can come home.

Grief is irrational. It stems from a part of us that has no logic. I know I did nothing to send him away. I know he is never going to call me again. I know I am not being punished for some long ago transgression.

And yet the grief keeps pounding at me during this time of terrible anniversaries.

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Advice to the Newly Bereft

February 2, 2011 — Pat Bertram

A couple of newly bereft joined the grief group I go to, and seeing how lost and bewildered they are showed me how far I have come these past months. I’ve reached a modicum of peace (though I still have moments of intense grief) and I don’t feel quite so lost and bewildered.

The Kubler-Ross formula for grief is so ingrained in all of us that we think those are the only stages of grief, but I have discovered dozens of phases more universal and potent than denial, guilt, anger, depression. Loss and bewilderment are two such phases. They are major components of grief, though I haven’t found them listed anywhere as a stage the bereft have to deal with.

The worst problem of grief, of course, is that someone who was a vital part of our life is dead. The second worst problem is that we are flooded with so many emotions, topped off with excruciating pain, that it is almost impossible to sort everything out. All these emotions gridlock the brain’s synapses, and we are left feeling lost and alone and totally bewildered. Where did our loved one go? How can he no longer be here? How can the world continue without his presence? How can I continue without his support and love? How can he be so very gone?

That “loss” everyone tells us they are sorry for is not our loved ones. Our loved ones are not lost, not misplaced; they are dead. We bereft are the ones who are lost. Whatever place we thought we had in the world is gone, perhaps forever. The world is different without our loved ones, and this is especially so if the dead we loved was a life partner, a soul mate. They’d become such a part of the fabric of our lives, of our very being, that when death rips them from us, we no longer recognize ourselves. We wander lost, bewildered, in this alien world. Some people manage to find themselves again, others become so changed they never find their way back.

I’d gone through the typical stages of grief before my life mate — my soul mate — died. I’d denied, raged, bargained, accepted, so that I thought I was “over” him, that after his death, my life would continue, sadder, but not much different. The depth of my grief, my loss, my pain, my bewilderment stunned me. I’d gone through all the stages of grief, so I should be okay, right? Wrong. Real grief begins where those so-called stages of grief leave off. Those stages of grief were first noted as the way people learned to accept their coming death, and they bear only a shadow of a resemblance to what those left behind experience.

My life mate and I used to talk about who had it worse — I thought he had it worse because he was the one suffering. He thought I had it worse. It turns out he was right. His suffering is over, but mine will last the rest of my life. My grief will continue to change, to go through additional changes, will abate, might even be forgotten at times, but it is now a part of my life.

And he is not.

That is the crux of the issue, the cause of all that bewilderment, pain, and loss. How do you live with someone who is no longer there? How do you live without them? Here’s how: you find comfort wherever you can, however you can. (Besides drink and recreational drugs, that is.) No matter what you do to get through the worst of your pain, no matter how crazy it is, be assured that others have done it, too. Hug the urn with his ashes, carry his identification, smell or cuddle or wear his clothes, talk to him, scream for him, cover the wall with his photos, write to him, write blogs about your grief. Do whatever it takes to get you through, because, as hard as it is to accept, you are still alive.

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I Am a Ten-Month Grief Survivor

January 27, 2011 — Pat Bertram

I mentioned to someone the other day that it’s been ten weeks since the death of my life mate and that I didn’t know how I managed to survive that long, then it hit me. It hasn’t been ten weeks. It’s been ten months. How is it possible to live almost a year with half your heart ripped out? I still don’t know, but I do the only thing I can: live.

After the nine-month mark, I had a respite from grief. I liked the symmetry of nine months of grief (gestation) before being born into a new life, but as happens with grief, the respite was merely that — a respite. A couple of weeks ago, the need to see my mate one more time grew so great it felt as if the yearning would explode from my body like the creature in Alien. The feeling came and went for a while, and now the creature has gone back into hibernation. But still, the yearning lingers.

I’m learning to live with the remnants of my grief. From others who have also borne such a loss, I’ve come to understand this is the next phase of grief — not soul-destroying pain as at the beginning, but blips of varying intensity and frequency. I know I can deal with this new stage of grief because I have been dealing with my grief all along, but still, a part of me rebels at the necessity.

Planning signifies hope and is supposed to be a sign of healing. Strangely (or perhaps not strangely; perhaps it’s to be expected ) every time I make plans, I have an upsurge of grief. Plans take me further away from him and our life. They remind me of similar things we did together, and they tell me that from now on, he won’t be sharing new experiences with me. Still, I am not holding myself back. I need to fill the hole he left behind, and new experiences are one way of doing that.

In the past four months I’ve gone to various art galleries. I’ve seen Mesoamerican antiquities, aristocratic clothing through the ages, local artists, classic art work. I went to a wild life sanctuary where they take care of captive-bred animals that zoos don’t want. I went to the beach. In May, I’ll be going to a writer’s conference where I’ll be a speaker.

All this shows that I’m moving on, and yet . . .

And yet he’s still gone. That goneness is something I struggle with — how can he be dead? I wanted his suffering to be over, so I was relieved when he died, but somehow I never understood how very gone he would be. I don’t want him to be gone, but he’s not coming back, and there is not a damn thing I can do about it.

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