Grief’s Growing Pains

I often walk in the desert, finding solace (and exercise) among the rocky knolls and creosote bushes. Sometimes I even find a bit of enlightenment. And so it was today.

From the beginning (odd how I always refer to my onset of grief as the “beginning,” when that time seemed to be all about “endings”), I tried to break grief down into its various components to demystify it and make it more manageable . When grief is new, one is bombarded with so many emotions, physical responses, and mental gymnastics that it is almost impossible to see/know/feel what is happening. As time passes and the bombardment slows, it’s easier to separate the feelings into categories and deal with them. As time continues to pass, some of the components of grief dissipate (such as the panic, the need to scream, the confusion) and some disappear (such as the nausea, dizziness, difficulty breathing, inability to eat or inability to stop eating). But always is the knowledge that the world is forever altered because your loved one is dead.

Now twenty months have passed since my life mate/soul mate died, and that awareness of his being dead is the part of grief I have the hardest time with. I miss him and yearn desperately for one more word from him, one more smile, but I can deal with that now — I’ve mostly grown used to it. I can also remember him and our shared life without breaking down. I can deal with what life throws at me even though he is no longer by my side. And I’m learning to deal with the loneliness and the aloneness. But what I can’t deal with is his being dead. That is where my mind hits a wall and causes so much pain I start crying.

I few days ago I wrote in my Grief Doesn’t Take a Holiday blog: He is gone, and there is nothing I can do about it. I keep
re-realizing those two simple facts. I do not think our brains are wired to understand the sheer goneness of death. Someone emailed me not long ago, expressing her admiration that I can talk about grief without feeling sorry for myself, but honestly, except for isolated moments, which I refuse to feed, I don’t feel sorry for myself. A lot of grief has to do with the mind disconnect that happens when you realize your loved one is no longer here on earth. It’s as if for a second you open up to a cosmic reality or an eternal truth. The façade of life shatters, and through the cracks you can almost see, almost sense, almost know . . .

And this is where today’s enlightment comes in. Out in the desert, which historically is a place for mystical thoughts, I realized that my tears are caused by growing pains. My mind/spirit/psyche is trying to stretch so it can understand why he is not here, why I can’t see him or hear him, why he is so very gone. Maybe my grief will burn itself out before my mind stretches enough to encompass such an enormous thought, but maybe, just maybe, I’ll get to where I need to be.

Gathering Patience for the Lonely Years Ahead

A major loss in one’s life, such as the death of a long-time mate, often changes a person. For almost twenty months now, I’ve been saying I’m no different than I was, but lately I can feel a small change. It started with his long illness, developed during his final agonizing weeks, and came to fruition in the months since his death. This change? Patience. An ability to wait.

I’ve never been a particularly patient person. I always open mail as soon as I receive it. (It used to mystify me how my late mate could let his mail sit for days without any inclination to see what the sender wanted.) I immediately begin to read books when I get them, open packages of snacks when I return from the grocery story, check my email first thing in the morning.

Well, I still do those things, but I am more patient with life’s vagaries and people’s foibles. There is no person I prefer to be with above all others, no place I want to be. If I have to stand in line at the grocery store, I simply wait without tapping my foot or wishing the line would move faster. If someone tells a long boring story, I simply listen without trying to edge away.

I’m not sure this is patience so much as resignation. When my mate died, he detached one of my connections to the world, and this connection has never been replaced. There’s something missing in me, some synapses that doesn’t spark, as if I am at one remove from the world. It’s possible this feeling of reserve comes from a new awareness of death or an awareness that life is not as it seems. Life isn’t all about shopping and what’s on television. It’s not about cars and clothes and things. I always knew that, of course, and because of it was already one step away from the everyday world.

My mate and I were not materialistic people. We lived in a world of ideas, of books, of films. Learning, research, discovery, growth were important to us. He used to say we were bad for each other — since we had someone to share these unthings, we had no reason to make a concession to the materialistic world. Though he’s dead, I’m still unable to connect to such a world. In fact, with my disconnect from him, I am now two removes from the so-called real world.

I’ve built new connections, made new friends, experienced new places and activities. I’ve become more aware of basic connections, such as the way my feet connect to the ground, or the way air flows through us, around us, connecting us one to the other. I’ve grown more empathetic and sympathetic. But still, there is no great attachment to any specific thing or any specific person. There is only me, and wherever I am, there I am, so there is no reason to be anywhere else.

This could change in the next few months, of course. I am almost two-thirds through my second year of grief, and the second half of the second year seems to be a limbo, a time for settling into this new phase of life, a time of gathering patience for the lonely years ahead. (The first half of the second year is often a time of re-grief, of having to deal with the horrible realization that even though you managed to get through your first year without him, even though you passed this test, your loved one is still dead. It can be a time of catastrophic pain.)

I’ve managed to come this far, and I will continue to manage. I’m from a family of long-lived people, so it’s a good thing I am learning patience (or resignation). I will need it.

Grief Doesn’t Take a Holiday

I wasn’t going to write about grief this Thanksgiving (except for yesterday’s brief mention of the guests who won’t be coming to dinner) because I didn’t want to break anyone’s holiday mood. Then I realized this is exactly the attitude I’ve been fighting. We shouldn’t ignore grief just because it is inconvenient for others or because it might make them pause to reflect on the ephemeral nature of life. Grief is part of life, and for some of us, it is our life.

The truth is, a huge number of people in the United States will be crying themselves to sleep tonight. For some of those people, this is the first Thanksgiving since the death of a significant person in their lives — a spouse, perhaps, or a child. For others it is the second Thanksgiving or even the tenth. But the number of years that the person has been gone doesn’t matter when it comes to holidays. What matters is that our loved ones are dead. A happy occasion with family, friends, food, turns out not to be so much fun when an absence (or a remembered presence) looms darkly over our hearts. Or if the occasion is fun, and the bereft forgets the truth for a moment, the grief rebound can be painful.

I had a lovely time today. Three of my brothers and their mates came to have dinner with my father and me. They brought everything except the table decorations and the turkey. Those I did. (I didn’t actually cook a turkey. I cooked turkey tenderloins several days ago and froze them, then today I steamed the pieces and arranged them on a platter. I didn’t feel up to cooking a turkey, and anyway, the oven is on the blink.)

The talk was congenial, the company delightful, the meal delicious, the toasts divinely inspired (I toasted my mother, who would have been proud of her men. During her final weeks, she worried that the family would drift apart.)

Afterward, two by two, the guests headed home. My father lay down for his nap. And there I was, alone, with no way to go home. My dead mate was my home, and even after nineteen months, I haven’t been able to find “home” within myself or anywhere else for that matter. I stood for a moment feeling adrift and sorry for myself, then set my father’s house to rights — taking the extra leaf out of the table, putting away the dishes that had been washed, doing all the other after tasks.

And then . . . in the quiet moment before I focused my mind on another activity, grief — that great yearning — burst over me. (For those of you who worry about me, there is no need. I am okay. Truly. These grief bursts, which relieve the stress of my sorrow, are how I keep on being okay.)

He is gone, and there is nothing I can do about it. I keep re-realizing those two simple facts. I do not think our brains are wired to understand the sheer goneness of death. Someone emailed me not long ago, expressing her admiration that I can talk about grief without feeling sorry for myself, but honestly, except for isolated moments, which I refuse to feed, I don’t feel sorry for myself. A lot of grief has to do with the mind disconnect that happens when you realize your loved one is no longer here on earth. It’s as if for a second you open up to a cosmic reality or an eternal truth. The façade of life shatters, and through the cracks you can almost see, almost sense, almost know . . .

Then you are back to yourself, and you don’t see, you don’t sense, you don’t know anything but that — holiday or not — you are alone.

To all of my bereft friends, who are struggling with the challenges of this holiday, I wish for you a peaceful night.

Waiting For the Guests to Arrive

I’ve been staying with my almost 95-year-old father, not to take care of him so much as to look out for him. Last year, the two of us spent a quiet Thanksgiving. He wasn’t up to company and neither was I since it was the first Thanksgiving after my life mate’s death. This year, a couple of my brothers (who perhaps had no more exciting plans) decided they wanted to get together for dinner, and one fast-talking brother conned . . . er, sweet-talked . . . my father into letting them come here. This brother also negotiated a deal where up to six people could stay for two hours. (Which worked out to be three brothers and their mates.) If you knew how quickly that many people would wear out a 95-year-old recluse, you’d understand what a great concession my brother wangled. (BTW, I really admire this brother’s negotiating skills. I once saw him talk a clerk at Office Max into giving him an extra l0% discount, and the guy agreed to it for no reason that I could see.)

The last time I spent Thanksgiving with any of my siblings was four years ago, a couple of weeks before my mother died. We’d come to spend a final Thanksgiving with her, but she was too sick and too weak to join us. Still she was glad we came. She always wanted her children to be close, and she worried that after her death, we would drift apart. Now here I am, in her house, and she is not here.

She’s just one of the guests who can’t come because of cosmic impossibilities. My next youngest sibling died the year before she did, and her grief at his dying helped bring on her own death. And then there’s my life mate. I doubt he would have come (he couldn’t the last time because of his own illness), but it saddens me that he doesn’t have the choice. Makes me even sadder that after the holiday, I won’t be going home to him.

I set the table today to lessen tomorrow’s commotion, and I used my mother’s china. (Sorry, BBB. Paper plates just won’t cut it!! And yes, I will do the dishes.) I want the day to be special because how many more Thanksgivings can my father have? And if he’s blessed with a dozen more, who knows whether even my brother’s vast negotiating skills will gain such concessions again.

And it pleased me to be able to do this small thing.

Afterward, I was overcome with a burst of grief (to be honest, it wasn’t so much grief as plain old feeling sorry for myself.) My brothers will be at dinner with their mates, and I won’t be with mine. Still, I had him for all those years, and for that, I am truly grateful.

(And never mind trying to figure out how many siblings I had. For most of my years there were too many, and now there aren’t enough.)

Grief Bursts

From the beginning (the beginning of my grief, that is) I’ve talked about various aspects of grief, even the parts I thought made me look weak. Today’s topic — grief bursts — is one I was going to keep to myself, but it’s an important one so I’m going to risk seeming weak once more.

I’ve often said that the trouble with grief is that it doesn’t stay gone. You think you’re doing well, settling into your new life, accepting your situation, and then zap! It hits you, generally when you’re least expecting it. One of the worst of these zaps occurred after my life mate had been dead for five months. I dreamed that he died, and in the dream I woke to discover that he was alive and getting better. I could feel the tension of grief draining out of me, and it felt good to just be . . . me. I awoke for real with a smile on my face, glad he was still alive, and then I was sucker punched by the truth. I felt the way I did the first time I realized he was dead, and it set off an upsurge of grief that lasted several months.

Then last spring, at about the fourteen month mark, I was walking, collected and serene, down a suburban street carved out of the desert,  and I was blindsided by lilacs. He loved lilacs, and we’d planted lilacs all around our property. The year before he died, the plants were tall enough to create an oasis of privacy, and when they bloomed, we’d go outside and bask in the heavenly scent. When I came to the desert, I  never expected to encounter lilacs, but there they were, growing wildly in a vacant lot. That familiar scent, coming toward me when I was unsteeled against a grief upsurge, did me in for a couple of weeks.

The last big upsurge of grief that stayed with me for more than a day or two came at the eighteen month mark. I still don’t know why — there was nothing in particular that set it off, and a year and a half doesn’t seem like a special anniversary, not like the first year anniversary or the second. Eighteen months just sort of hangs innocuously in the middle. Or it should have, but it didn’t. Well, I got through that grief upsurge like I did all the others. (How? Glad you asked that. The only way to get through a grief upsurge is to feel it, process it, and when it begins to abate, let go.)

Mostly now, I’ve settled into uncoupled life. I miss him, of course, and yearn desperately at times to talk with him, but I’ve accepted as well as is possible that I have to continue on with my life. I feel like myself again (meaning I don’t feel weighted down with grief all the time, nor do I hold myself tensed against possible upsurges of pain).

What I do experience are grief bursts — brief bursts of grief, with all the angst I felt at the beginning, that last but a minute or two. These bursts come a couple of times a day, generally after I’ve been concentrating on a project (such as writing a blog or reading a book), and in the moment when my mind is not otherwise engaged, I remember that he’s dead, and grief bursts over me. I cry for a minute or two as if my heart will break (though I know it won’t. It’s already been shattered and glued back together, stronger than before). And then I’m fine again with no lingering aftereffects.

Of all the strange stages of grief I’ve experienced, these grief bursts are the strangest. Like being skewered with a burning poker and then healed a second later. This particular stage, or so I’ve been told, can last a long time. Even decades after a significant death, you can experience bursts of grief. I’m sure, like all the other phases of grief I’ve gone through, these bursts will diminish in frequency, perhaps even diminish in intensity, but oddly, this is one stage of grief I don’t mind. It reminds me that he was worth grieving for, that his absence from this world matters, that he once was part of my life.

***

Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Hurrying Through Grief To See What is On the Other Side

During the first months of wild grief after the death of my life mate, I occasionally had the feeling that something wonderful was going to happen to me. I don’t know why I had that feeling — perhaps my sense of fairness dictated that a great good was needed to balance a great grief. Or perhaps such a cataclysmic closing of one segment of my life demanded an earthshaking opening of another segment. Or perhaps after years of waiting for his suffering to be over, I felt deep down that it was time for me to live.

I wasn’t the only one who thought his death might bring good changes to my life. Shortly before he died, he himself told me that everything would come together for me after he was gone. (He never explained what he meant, though, and foolishly, I never asked.) And afterward, my sister, who witnessed my grief and saw it as life affirming, told me that I could be entering the happiest time of my life.

Whatever the truth of it, I held on to the feeling because . . . well, because it was all I had to hold on to. In fact, the feeling was so strong at times that I wanted to hurry through my grief to see what was waiting for me on the other side. But here it is, nineteen months of grief later, and whatever that wonderful thing I expected to happen, didn’t.

Part of me is still waiting (just as an ever-diminishing part of me still waits for his phone call to tell me I can come home), but mostly, the feeling that something wonderful was going to happen to me is gone. Oddly, this is not an uncommon feeling for us bereft, and those who had the feeling of expectation also felt let down when nothing wonderful happened, which leads me to believe that the feeling is a survival mechanism, or perhaps another one of the many stages of grief nobody ever talks about. (Those who did have something wonderful happen in their lives weren’t able to feel the wonder of it, which left them feeling empty, and that is almost as bad as having nothing wonderful happen.)

Yesterday at the grocery store, I saw one of the hospice social workers who occasionally moderated the grief group I used to attend, and I thanked her for helping me through such a terrible time. During our conversation, I mentioned the odd feeling of anticipation I’d had during my months of grief. She replied, “Something wonderful did happen to you. You got through it.”

Is that wonderful enough to account for all those months of expectation? Maybe is has to be.

The Symphony of a Life Gone By

It is impossible to freeze a single moment of music — what you get is a chord that means little by itself. It only gains meaning by what went before it and what comes after, by existing as part of a whole.

Ever since the death of my life mate, I’ve been haunted by images of him at various stages of his life — when I first met him, when we were in the fullness of our relationship, and then at the end, when there was nothing left but a body depleted of life. Which of these moments was him? Were any of them him? Or, like music, were each a single meaningless chord in the symphony of his life?

This might seem a foolish reflection, but it is one that echoes now that his life has been silenced. When a person is alive, the person you know is the culmination of a life, with everything — every note and chord of his existence — leading up to that very moment and foreshadowing the song of his future. When the person is gone from this earth, there is no more culmination. The man I knew at the end — the man who had spent his last breath — is gone, burned into a pile of ashes and crushed bone. The man I knew at the beginning, the radiant man with half of his life still ahead of him is also gone, burned by the fires of living and dying. So which is the real person? How do you remember a life — a man — when all you have are bits of the whole?

We were not picture takers, and I have but a single photo of him. Although it looked exactly like him when it was taken fifteen years ago, it doesn’t look at all like him at the end of his life. For months after his death, I refused to look at the photo, afraid that the image of him in my mind would be supplanted by the image of the photo. Recently I decided it doesn’t matter if the image in my head is not of him. No image is “him.” He is gone, his moments forever broken into meaningless chords. I know I cannot hold the whole of him in my mind — it took 63 years of living to play his entire repertoire, parts of which I never heard.

And so, I look at the photo, this single chord of his life, and remember the symphony of a life gone by.

Saturday, My Sadder Day

Another sad Saturday — 83 of them since my life mate died. Even when I don’t remember that it’s Saturday, or that Saturday is the day of the week he died, my body remembers, and my usual muted feeling of sadness becomes more pervasive. It’s not that I want to be sad; the sorrow just comes, especially when the weather is as perfect as today’s — warm, still, clear sky, bright sun, gently cooling breeze. I’d worry more about my continuing sadness except that I tend to be of a melancholic bent. And the sadness does reminds me to pay attention. Since he can no longer make note of a lovely day, it’s as if I need to appreciate it twice — once for me and once for him.

If Saturday is a sadder day than normal, that must be a sign that I am doing okay most of the time (otherwise I wouldn’t feel sadder; I’d just feel sad). The world still feels flawed, I still feel the phantom itch from where he was amputated from my life, and I still yearn to talk with him. Part of me (perhaps that fabled inner child?) cannot understand why I can’t call him to find out how he is doing, to see if he needs anything, to ask if I can come home. This yearning flares up every Saturday, as if he’s closer on this day, and it seems as if I should be able to reach out and touch him. But he’s gone, out of reach of even my sadness.

Oddly, in many respects, my life is much better now, at least temporarily, than it was at the end of “our” life. I don’t have to worry about him any more (though the habit of a lifetime is hard to break, so I wonder if he is feeling as lost and as alone as I sometimes feel). I have a lovely place to stay with proximity to wild spaces. I have a respite from bills and other such annoyances. I have time to indulge myself with small excursions and escapes.

But my heart doesn’t care for such things. It wants what it cannot have, especially on Saturday, my sadderday.

Life Goes On Even if the Whole Thing is Flawed

Today marks the nineteenth month since my life mate — my soul mate — died of inoperable kidney cancer. 580 days of missing him have passed, and there is still a lifetime of such days ahead of me.

It was a quiet day for me today, no big emotional storm — the storm came last month. I can see why there would be a grief upsurge at twelve months — that is a major anniversary and a big step. But at eighteen months? Can’t figure that one out. But, as I have learned, grief has no logic. It comes and goes as it pleases. Most times I do well by keeping busy and focusing on the moment, other times I am overwhelmed . . . again . . . by the realization that he is dead.

I hate that he is gone. The world is so much poorer without him. If he had left me for another person or place on earth, I would probably be furious at him for leaving, but I would not have this feeling of blank. It’s as if something in the middle of the page of my life was erased, and that blank spot remains. I work around the blank spot, fill it with excursions, friends, exercise, online activities, but still, it is there, a major flaw in my life.

He and I used to make tapes of the songs we liked, along with an index of each tape so we’d know what we have. I started going through some of his music tapes, trying to decide what I want to do with them. (I’d like to keep everything I have left of his, but when one leads an unsettled life, extraneous possessions become a burden rather than a luxury.) I was doing fine until I came across a tape marked flawed. I pulled out the paper that listed the songs on that particular tape. He had written in big letters across the top of the page: whole thing flawed. I set both the tape and the index on my work table, and that was the end of that. I haven’t been able to go through any more of his music, nor have I been able to throw away that tape or that paper. So every day I see that message: Whole thing flawed. That’s what life feels like now — it’s continuing on, but with him gone, the whole thing seems flawed.

I still have his tape player, and in the player is one of his tapes. If I rewind the tape a bit, I’ll be able to listen to the last song he ever heard. That’s something else I haven’t been able to do, or wanted to do. I don’t know how I’ll feel. Don’t know if it will make me feel connected to him, if it will set off a storm of tears, or if I will feel as if I were spying on him. So the tape player with that final tape is packed away, along with all his other tapes except the one on my table with it’s stark reminder: whole thing flawed.

Codependency or Interdependency?

Several months ago when I was steeped in grief, I found comfort in the thought that my deceased life mate — my soul mate — was at peace, but then it occurred to me that maybe he wasn’t, that if there was some sort of life after death perhaps he felt as split apart as I did. According to one minister I talked to, my mate could be having problems depending on how codependent he was. Whatever that means. I thought a relationship was about being dependent on each other, and we were. At least until our last year together when we began untwinning our lives so we could go our separate ways — he to death, me to continued life. That’s also why my grief shocked me so much—I thought we had untwinned even before he died.

Shortly after that conversation with the minister, a woman who should have known better accused me of being codependent because I was having such a hard time learning to live without my life mate. (The truth is, I knew how to live without him because I was doing it. What I was having a hard time with was wanting to live without him. Life, of course, doesn’t care what we want, and I continued on to where now I am — mostly “healed.” ) But still, there was that C word again.

I can see that people would have questions about codependency considering how bereft I was without him and how lost I felt, but when he was alive, we were never obsessed with each other, though we were connected in so many ways. We were friends, life mates, and business partners. We always wanted what was best for the other. We helped each other grow. We never expected the other to fix our individual problems, though we often took each other’s advice. We didn’t cling, demand, or base our relationship on unrealistic expectations. Together we provided a safe environment where each of us could be ourselves. And we supported each other any way we could. Yes, we were dependent on each other, but isn’t that what life is all about?

Long-term illness, however, does skew a relationship. Over the years, our world kept getting smaller and smaller, trapping us in a terrible situation where neither his nor my needs were being met. To that extent, perhaps, we were codependent, staying together when others might not have, but what is wrong with that? Still, I’ve felt foolish at times admitting my need for him. In this world that prizes independence so much, it seemed immature and self-indulgent.

But, as one commenter on my Grief is NOT Self-Indulgent post said, “There is nothing foolish in dependence. The foolishness lies in the notion that we are not co-dependant on each other. We are a co-dependant vulnerable species who waste a whole lot of time and cause ourselves much suffering by pretending we are not. There are many reasons why we perpetuate this denial but just as we are dependant on the earth for our physical health so are we dependant on each other for our emotional health.

“Personally I feel there is a strong connection between people not understanding grief and those same people not understanding just how precious and vital their relationships are. Every day I see people not recognizing the value of each other. It often amazes me how much we deny our dependence on each other . . .  we don’t even like the word dependant. Perhaps that is why grief is so hard to witness for then our dependence is there in the open smacking us in the face.” (She developed this idea into a blog post The Illusion of Independence at Leesis Ponders.)

Well, I no longer have to worry about whether we were codependent or interdependent. I am independent now. His death freed me, but for what? I still have to figure that out.