The Challenges of Looking After an Aged Parent

Taking care of an aged parent is a challenge, with new tests — and testiness — arising every day. The biggest problem, of course, is that the parents want to be babied while giving up none of their parental authority. (They seem to forget that such authority had expired decades previously when we grew up, left home, and developed our own life with our own unique responsibilities.)

rainA friend cautioned me against coming to take care of my father — she knew first hand the challenges I would face. But for the most part, he and I have managed to deal together okay, mostly because I adopted a policy of doing whatever he needed but nothing that he could do for himself. (He wanted me to wait on him like some unpaid servant, or like my mother did for the sixty years they were married.) After his recent hospitalization and an ensuing bout with pneumonia (he refused to sit in a chair or take walks while hospitalized, saying he had patients’ rights, and he had the right to refuse any treatment, so the pneumonia came as no surprise), I’m having a hard time resetting those parameters. He simply won’t do anything for himself, even though he is still strong and reasonably healthy for his age. (He says it tires him. I want to say “get over it,” though I don’t.)

And then there is the problem of the household finances. When he lost his ability to think clearly and keep enough numbers in his head to reconcile his accounts, he turned the household finances over to me.

Sort of.

When he is unwell, everything goes smoothly. He says he trusts me, and that I have permission to arrange matters (and papers) most convenient for me. When he is well, he forgets that trust, rummages around in his desk, puts everything back the way he had it, disarranges my work and makes my to-do list disappear.

Yikes. What a balancing act — letting him think he is still in control while making sure the bills get paid and balky appliances get fixed.

I figure if he’s well enough to mess around with such matters, he’s well enough to get his own meager meals, but he doesn’t see it that way. I try to be patient, realizing it must be hard to be ninety-seven years old and dependent on a daughter, but I also can’t forget that I am that daughter, with a life of my own. I never took a vow of obedience to him. Never signed on to be a servant. I’m just the designated daughter, the unattached one who got stuck with the awkward situation.

I’m hoping in the next week or so things smooth out and I can stop being at his beck and call. Well, I will stop — that’s a given. I just don’t know how that will sit with him.

And so it continues, my paying the wages of daughterhood.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Rockin’ Pneumonia and the Boogie Woogie Flu

Well, no, I don’t have pneumonia or the flu. Nor do I feel much feel much like rockin’ since I have a sinus infection that has laid me low. (I always get sick when I travel, which makes my idea of going on the road after my father is gone a bit foolish.)

This infection has made me concentrate on myself and is helping me forget my brother. I tend to worry about him, though there’s nothing I can do for him. I tried to get him help while he was here, which came to nothing. I tried to protect him as much as I could, but only put myself in danger. Now that he’s back in his home state and on his own, he will have to take care of naphimself as best as he can.

When he was younger, the whole world was his backyard. He seemed to be able to live anywhere until he got the hoarder’s disease and became tied to “stuff.” (A lesson to me to get rid of even more of my stuff, though I doubt I will ever be able to do what my sister did — get rid of everything that didn’t fit in her car.) But now that he is older and developing physical problems as well as mental issues, the world seems alien to him. He says it’s changed, and that it scares him.

Still, he did want to go back to Colorado. If he can hold himself together long enough to make the rounds of social services, he will be okay. Could even end up with a small pension. He admitted he didn’t want to be here, that he got stuck, and perhaps in the end, I did for him what he couldn’t do for himself — get him out of here. (At least that’s what I tell myself, and for all I know, it might even be true.)

One of the reasons we needed him to go was that my father was rapidly declining. We didn’t think the old man had long to live, and the house couldn’t be put on the market with my brother living in the garage. But my father is doing better, so much so that he can be left alone some of the time. My sister, who came to help and who precipitated the exit of my brother, is thinking of leaving, and so once again it will be just me and my father in this house of ghosts.

Since my father needs to use a walker (though most of the time he carries it), he won’t be able to fix his meager meal (and if he could fix them, he wouldn’t be able to carry them), so I can fix his food before I leave for dance classes. (I’ve missed too many classes as it is, and will be missing more because of my sinus infection, and dancing holds me together.)

Mostly I’m just listening to old movies (watching them with my eyes closed, and dozing off periodically), drinking tea, and trying not to think of the next step, either the continued care of father, or what is in store for me when he is gone.

Thank you again for all your prayers, support, well wishes, thoughts, and comments during this trying time. You helped me in more ways than even I know.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Dealing With Elderly Parents

A friend spoke to me today about our different reactions to the care of our aging parents. She seems to think I’m more accepting of my elderly father’s insistence on having his way than she is of her mother’s foibles. Maybe it’s true, but no matter how we deal with the problems that arise with elderly parents, it will always be difficult. To our parents, we are eternal children who lack the necessary skills to navigate through life. More than that, it’s difficult for them to see what is so obvious to us — that they are no longer the strong-bodied and strong-minded people they once were. All that is left is the strong will they are determined to exert even if they no longer have the means of assessing the situation.

icecreamAlthough my run-ins with my father do bother me at the time they happen, I quickly let the frustration go. For the most part, I don’t see that it makes any difference what he does, and besides, I’ve used up my cajolability. If he wants to eat ice cream for every meal, that’s his prerogative. I’m not going to cajole him into eating healthily. If he doesn’t want to do his breathing treatments, well, that’s his choice too. He’s 97 years old. His various medications can only help him be more comfortable. They can’t cure his congestive heart failure, his COPD, his prostate problems. Nor can they give him what he most needs — a modicum of youth.

I suppose it’s possible my blasé attitude comes more from exhaustion than acceptance. I’ve been here for four years watching him deteriorate at an increasingly rapid rate, and there’s not much I can do except watch.

This particular wage of daughterhood is so hard that some days I want to run away, but running away won’t change the situation, just remove me from the equation. I suppose if I had somewhere to go, I would go, but as of right now, only emptiness awaits me when I leave here. I’ll have to start rebuilding my life, and I don’t really have any strong inclinations to do one thing or another. I’d like to keep taking dance lessons, of course, but other than that . . . nothing.

And so I stay, answering my father’s summons when he wants something, checking on him when he doesn’t, and dealing with the other strange elements of my life the rest of the time. (My dysfunctional brother and the sister who has come to help with our father.)

Some day there will only be me to consider.

People tease me and tell me I will miss all this. I doubt that I will miss any of it, and yet there has been so much insane drama during the past fifteen months that the emptiness of my life afterward will seem even emptier by comparison.

I’m trying not to look to the future, though. For a while, dreaming impossible dreams helped me feel alive and made me believe that one day things will be different, but for now all I can do is hunker down and survive each day the best I can.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+. Like Pat on Facebook.

Designated Daughter

The problem with having a star-studded weekend is that resuming real life can be difficult. Sunday evening, on the way back from the airport, I found myself dreading the return to my life. It’s not that I would have wanted to keep up the frantic pace of wonderful waterside seafood restaurants, Ferris wheels, merry-go-rounds, limousines, champagne, and fabulous shows, but that until I was away from it for a while, I hadn’t realized how depressing my current living situation is. (I am the “designated daughter,” looking after my 96-year-old father.)

Dad and me

Dad and me

When I came here three years ago to be with my father, he was still mostly strong and vital, which gave me the opportunity I needed to grieve for my deceased life mate/soul mate without having to deal with the minutiae of daily life or my father’s medical condition, but this changed as my father declined. And now, I’m back where I was for so many years, keeping vigil while someone close to me struggles to live (or die. Sometimes I’m not sure which is harder for them.)

My father is doing well (he even insisted I leave him by himself while I was gone instead of getting someone to stay with him) but still, he is suffering from congestive heart failure, and it’s hard watching someone decline, especially when it’s someone you have a complicated relationship with. He vacillates from being the authoritative father when he is well to needy child when he isn’t, which makes a complicated situation even more problematic. And for the most part, I am his main contact with the outside world, which at times adds an additional burden.

I thought I was doing okay, accepting this new direction in my life, but now I see that this situation only adds to my sorrow. But it is what it is, and there’s not much I — or anyone else — can do to change things, though life itself will eventually make the change for me. Until then, I’ll muddle through the best I can, and try not to give in to depression.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+

The Dower House of Grief

floozyWhile doing a word puzzle, I came across the clue “widow,” which gave me pause since I couldn’t think of anything that means the same as widow, but then it came to me: dowager.  According to the dictionary, “Dowager” can apply to any elderly widow who behaves with dignity, though generally the word is used in historical, monarchical, and aristocratic contexts.

In previous eras, when an estate owner died and a married son took over the estates, the widow was often moved out of the principal family house and relegated to a dower house, a separate abode on the estate. If the heir wasn’t married, the dowager sometimes stayed in the main house until he got married, and then she was shunted off to the dower house, leaving the new bride as mistress of the family home.

Many of us today who have lost our mates have also been shunted off to a dower house of sorts. Without a husband or young children still living at home, we are often relegated to taking care of our elderly parents. Or, almost as frequently in these uncertain financial times, a daughter with a new baby moves in with us. This seems to be the “dower house” of grief, a way for us to still be part of the world, to still be useful, though we are no longer in our primary life of having our mates to care for and love.

Unlike the dowagers of old, the exile in our dower house of grief will come to an end, and then what? Most of us long for freedom and the resources to enjoy it. As one bereft friend says, “We need adventure and excitement and something different. A change of scenery, throwing caution to the wind or anything to get us “out of the parking lot” of our lives (which a friend claimed I’m stuck in).”

Maybe what we need is to embrace dowagerhood. Despite the definition of dowager as an elderly widow who behaves with dignity, I always had the impression of a dowager as a not-so-old, imperious and outspoken woman in outrageous hats, who sailed through life like an icebreaker, pushing ahead regardless of whatever obstacles floated in her path.

Sounds good to me. Meantime, I’ll go for a walk in the desert. That’s about the only adventure I get nowadays, and it’s better than sitting here coming up with (and mixing) metaphors for my life.

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Pat Bertram is the author of the suspense novels Light Bringer, More Deaths Than One, A Spark of Heavenly Fire, and Daughter Am I. Bertram is also the author of Grief: The Great Yearning, “an exquisite book, wrenching to read, and at the same time full of profound truths.” Connect with Pat on Google+